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Guest post: Dietary restrictions - "I was convinced people would think I was making it up"

45 replies

MumsnetGuestPosts · 22/04/2015 13:29

When I first started following the most restrictive diet in the universe – known also as the Specific Carbohydrate Diet – I did, for a spell, think my life was actually over. Not only had I been diagnosed with colitis (the world's least glamorous condition), but I reluctantly had to accept that food, which was placed very much at the centre of my life, was partly the cause of my symptoms.

Initially, I'd been happy take medication and carry on as I always had, but after a bit of research I felt I had to at least give this diet – which reduces inflammation – a try. That meant saying goodbye to most of the things that I loved and cherished with all my heart. So, pizza, pasta, and Pringles, no more. Begone, Mr Kipling cakes. Fare ye well potatoes in every form. It was time to give up my reign as Queen of Carbohydrates.

Here are some things that I can no longer eat: sugar; all grains (so: no bread, pasta, couscous, polenta, rice or even quinoa); yoghurt (unless I make it myself, over 24 hours), cream, milk, chickpeas, sweet potatoes and potatoes, soya, broad beans and butter beans and soft cheese – although hard cheese is okay. Keep up at the back!

It's boring, isn't it? And I couldn't bear the idea of being the annoying, high-maintenance buzz-kill guest who turns up with a list of demands so long that it takes any joy out of getting together. And do you know why I thought that? Because I used to be that person - the one who did a slight eye-roll if someone said they were, say, lactose intolerant. I was convinced that someone would think I was making it all up to get some attention and feel a bit special.

I spent the majority of the first two years feeling a bit hard done by, sad - and hungry. I'd sit next to my husband trying not to cry because he could eat bread and I couldn't. At the beginning I was so deranged with deprivation that in bed at night I'd imagine myself eating slices of chocolate cake, salty chips, or cheese sandwiches, which actually helped a bit.

As far as my life went, it was like I'd gone into mourning. I felt embarrassed that I had colitis so I didn't tell people. I stopped going out – certainly to restaurants where you can never be entirely sure what lurks within the soup, but even over to the houses of dear friends. Because the problem with a diet like mine is you can't just wing it and hope for the best.

Stopping doing anything that involved other people cooking for me really shone a light on how much our lives – or mine at least – revolve around food: making it for others, them making it for me, chewing the fat over something delicious and a glass of wine. And, luckily, after a while I realised that the solution was not to withdraw from all these things that made life worth living, but to get my head around the diet and find ways to make the best of it. And you may not be surprised to hear that my nearest and dearest were practically begging me for lists of things I can't eat because they didn't give a fig about me being high-maintenance and just wanted to spend time with me.

That's not to say that it was entirely plain sailing. I felt so awkward going to stay with my lovely in-laws at first that I didn't explain as much as I should have. What I should have said is: "I've got colitis. It really is hideous and if I eat so much as the tiniest bit of a long list of stuff I will get really sick, and the way it works is that I will stay sick for up to three months. Believe me, I really hate having to be such a control freak."

I learned the hard way that no matter how much I dislike feeling fussy, being honest about my needs is far better than being presented with a slaved-over meal that I can't eat because I haven't been clear. There is now a very prominent list on their fridge of all the foods I can and can't have, and I have learned to live with the embarrassment.

I've had to become very brave and unselfconscious about interrogating waiters about exactly what is in the food. But, happily, the world around me is changing – restaurants increasingly have gluten-free menus, and people like the lovely Hemsley sisters and Deliciously Ella have come along and made it positively glamorous to follow a restrictive diet.

And there are many upsides to my restricted life: I've been medication-free for six years. And I am healthier than I have ever been (without turning into a sanctimonious health nut).

In taking control of my health, I've found that I'm not embarrassed about saying I have colitis any more. And I don't feel the need to add insult to injury by sitting in the corner quietly apologising for my decision to treat it with diet. Over the years I've started experimenting in the kitchen, and started a food blog, which is all about having a lovely life, based on my philosophy of focusing on what I can eat rather than what I can't. I've even worked out how to make delicious cakes. In fact my life, in many ways, is better now than it was when I was Queen of the Carbs. And I never, ever, thought I'd hear myself say that.

OP posts:
ppeatfruit · 24/04/2015 09:02

choco Take a look at the Blood Type by Dr. Peter D'Adamo. If you're an O type you should actually eat meat. Not pork though no one should eat it in any form.

HappySpills · 24/04/2015 09:13

I eat low GI and low tyramine, which is an interesting combination. Lots of eggs. Lots and lots and lots of them.

bottersnikes · 24/04/2015 12:21

Interesting little piece of research, marriednotdead. I was so sick that I wouldn't be at all surprised if my gut flora balance was seriously upset by that bug. Subsequent years of antibiotics have been the final straw!

Here's to eating stuff that works for us and getting support from those around us (and offering it in return!)

:)

ppeatfruit · 24/04/2015 14:15

Yes exactly bottersnikes Grin I'm usually ready to offer help, sadly there are not many people willing to try different things Sad

chocoluvva · 24/04/2015 14:25

ppeat - thank you from me too. I've told my DD that a vegan diet is not necessarily healthier than a diet that includes some meat, fish eggs and dairy. A vegan diet will of necessity be extremely high in carbs. But eating a lot of meat and dairy is not good for the environment.

I find it hard to motivate myself to eat more healthily now as I no longer have much hope that a clean diet will make me feel better. Sad I know that's a defeatist attitude - low levels of energy are all the more reason to eat cleanly.

I really admire OP's positive attitude.

It's hard when I don't have a definite diagnosis.

#pitypartytoday

anotherdayanothersquabble · 24/04/2015 17:46

There are some fascinating pieces of information around why we might be unable to process certain foods and how our gut impacts the rest of the body; Gut and the Psychology Syndrome, Dr Sarah Myhill's writings on the Stone Age Diet, the mutations of the MTHFR gene and its effects, Heavy metals and allergies (Melisa.org), the natural healing of tooth decay by Nagel and the Westen Price foundation publications. All have interesting theories, it seems so complex!

I am considering taking part in the genetic research by 23andme and the gut bacteria research (will have to pop back later with the link) both of which, for a relatively small donation, you get a testing kit which will give you some genetic information or tell you the contents of your gut / skin / mouth bacteria. All fascinating stuff, I hope some answers come from it so that more people can eat food that makes them well!

ppeatfruit · 24/04/2015 20:42

choco If you find out your blood type (you can buy a kit in the large Boots) then it may well be what you need . You don't have anything to lose And as me, *Thumbwitches, Kim Catrall, Courtney Cox, there's loads of cured people on Facebook too, have discovered it's brilliant!

That sounds a bit like the Blood Type too anotherdayanother.It's based on the varying chemicals (the lectins) in foods and how they react with the varying chemicals in our guts.

anotherdayanothersquabble · 24/04/2015 21:06

genetic profile and Fundrazr link for British Gut Project including a fascinating TED talk.

PyjamaLlama · 24/04/2015 22:05

Please have a look at this article from a few years ago: www.telegraph.co.uk/lifestyle/wellbeing/7930256/Herbal-remedy-for-digestive-disorder.html
Reading it at the time was a revelation to me. My then 4YO DD was unable to eat any gluten, sugar (including all fruit and veg containing any sugars), or dairy. Eating any of those foods would cause her to be doubled over in pain. The Paediatric specialist was unable to diagnose the problem, despite lots of tests and labelled it IBS. I took her to see Susan Koten and she diagnosed Giardia straight away. Within weeks DD was eating normally. I would honestly urge anybody with symptoms described in this thread to at least have a look at the website.

anotherdayanothersquabble · 25/04/2015 13:08

The parasite information is interesting too. Both of my allergic / intolerent children had parasites, the youngest was discovered when he was 12 months old, no exotic travel. Whether there is something that makes them susceptible or the parasite is the starting point, I don't know. However clearing the parasite was not been the complete solution. But it did improve things. Genova Diagnostics do a fairly comprehensive and well recognised testing for parasites.

SunshineAndShadows · 25/04/2015 13:42

Really useful info thanks everyone. My lifestyle is high risk for having contracted giardia so I'm definitely going to raise this with my consultant

JiminyCricket · 26/04/2015 08:34

I have some kind of histamine intolerance (uriticaria, headaches, ear and eye problems) and if I mainly steer clear of dairy, eggs, yeast, citrus, alcohol, chocolate and soy (plus the long list of high histamine foods/histamine releasing foods/dao blockers eg nothing smoked/matured, all fresh as histamine higher in leftovers) I feel a bit better (until I remember that all these foods are mainly the point of living...). I have had tremendous problems adapting to it, especially as it is too long a list for complete elimination, so often feel like a fraud. Family are baffled but DH has been lovely - mainly because he has two colleagues with the same issue so was more inclined to accept it and be sympathetic.

It's not just food either I can no longer wear any kind of make up, earrings and necklaces itch, scarves itch, can't wear viscous or acrylic fabric (I previously had the least sensitive skin imaginable through do remember going through an ' itchy' phase in my teens so am crossing my fingers it's hormonal and I'll grow out of it again.

Weirdly though I noticed that when MY diet changed dd1s regular tummy aches stopped (I guess our meal choices changed a bit to adapt to my needs but no one else has 'given up' anything) and dd2 has had more energy.

Niacin 100 mg and vit b 12 have helped enormously. Still get symptoms but don't feel rubbish all the time. I have got good at whipping up a quick loaf of non dairy soda bread when I crave toast, and have more of a 'fish/beans and two veg' approach to meals (don't eat meat through preference). I still have some chocolate and red wine and coffee because even though I might feel better without them, on the other hand how on earth am I going to feel better without them? (Double bind situation). GPs can't help I have had to work it all out through Dr google and mumsnet.

ppeatfruit · 26/04/2015 10:09

Interesting about parasites , dh got giardia while he was working in Indonesia and it does hang about (the only good thing about it was that he lost a LOT of weight which he needed to , he's put it all back on now Sad).

He's clear of giarda but not good with lots of foods, he thinks I'm nuts, but I'm the one skipping about at 64!

Jiminy How are you with sugar? If you look at the blood type it will pinpoint the foods that cause your urticaria. e.g. I get it with oranges but am good with lemons,grapefruits etc. So although I miss tomatoes I can eat cucumber, lettuce etc. and olive oil is my saviour it totally cleared some dried eczema I had. I'll have a lemon juice, english mustard, olive oil, non vinegar, salad dressing.

I just remembered if I've accidentally had dairy I'll take a spoonful of ground turmeric mixed with olive oil and a glass of water. It's magic for those runny nose type symptoms.

Oh and linseeds and pumpkin seeds are fab too. I' m ok with yeast, not wheat though, I have rye bread from Waitrose, and sometimes make my own with rice flour, spelt and or Kamut flours. The Health food shops have good substitutes too.

JiminyCricket · 26/04/2015 18:13

Sugar seems ok. Turmeric and any spice are really helpful, I agree. Pumpkin seeds bring me out in hives.Will look it up, thanks.

Roonerspism · 26/04/2015 23:26

Choccaluva - check out an American site www.perfecthealthdiet.com.

Basically the tenet is paleo plus "safe" carbs (being potato and rice). I think being very low carb is not great in the long term, especially for chronic fatigue

BerylStreep · 27/04/2015 09:04

That Telegraph link about the giardia (sp?) was very interesting.

chocoluvva · 27/04/2015 09:05

Thank you. I eat loadsa carbs now. Can't eat much rice anymore as it gives me stomach pains, nausea and digestive upset, same with oats, rye, barley, corn, pulses, nuts, sunflower oil/seeds, yeast, beetroot, carrots, olives, onions, squashes, cucumber, tuna, sardines, anchovies, mackerel, seafood and I don't eat the following at all: dairy, egg-white, lamb, salmon, white fish.

IMO a healthy diet is everything in moderation and unprocessed as possible.

Roonerspism · 27/04/2015 21:18

Oh goodness - that is so restrictive. Have you thought about a gut healing diet- lots of bone broth and collagen rich foods and homemade probiotic food?

Sorry if this is stating the obvious.... I looked into it all a few years ago after some health issues of my own

chocoluvva · 28/04/2015 09:01

Thank you for the reminder about bone broth. Smile

ppeatfruit · 28/04/2015 09:07

I can't eat potatoes or any deadly nightshade veg. too acid forming; they give me arthritis. Whole organic well cooked rice is fine though.

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