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Gallbladder op - FAQs and words of comfort and wisdom

92 replies

Piggywaspushed · 01/09/2024 10:22

Hello

I am aware lots of us are in the gallstone boat , awaiting ops, post op, post diagnosis etc. There have been many threads but I wondered if we could pull them together into one support thread in which folks can tell stories and share inside knowledge?

I have my op 21st September. Pleased (NHS GP found me a fast track appointment at nearby private hospital - a route definitely worth pursuing if anyone else, like me, was pencilled in to wait nearly a year for even a consultation) but bricking it, too. I am on a few Facebook pages but not everyone on there is UK based and there is a lot of negativity. I don't mind realism but scaring people is not on.

Here are my questions!

1.What are attacks like for you? Symptoms, frequency, triggers? (my consultant seemed unconvinced that my symptoms are gb related - would love to share.)

2.What are your gallstones like? I have one 3cm stone.

3.Is the op a magic wand , or are their post op lifestyle changes and consequences I should prepare for?

4.I have read about the post op trapped wind! Do hospitals give you meds for this or do I need to buy in advance? If so , what?

5.Does anyone take regualr anti histamines? If so, do you take with Buscopan? There is very conflicting advice on this!

6.If I can't sleep the night before my op (almost 100% likely!) can I take something to help me? I ask mainly because lack of sleep triggers attacks for me and I don't want to be too sick to operate on.

7.What were people's recoveries like?

8.How soon before I can have a shower? What happens with the wounds and dressings? Is anyone else allergic to glues and plasters? This is a worry of mine.

9.When did you go back to work? What was that like? I cannot WFH , not a possibility and recuing hours also not likely to occur without adding to my workload. I'll have to set two weeks of work while I'm off as well, which is annoyingly time consuming and stressful (teacher).

10.Bras - I keep seeing people saying vest tops or bralettes. Not really an option for me as I am ample of bosom. Anyone know of supportive but suitable non wired bras?

11.What was sleep like afterwards? All the Americans bang on about recliners . I have a reclining chair but it is self powered so hard to get on and off really (requires stomach muscles). Also, I could not sleep in it at night because the room won't be dark or quiet enough!

12.Eating afterwards - what did people manage? I have a terrible relationship with food . DH can't cook , so this has to be basic easy stuff for me. He and DS can learn to fend for themselves! I am reading a few horror stories about food and eating. Low fat is not an issue for me, to be honest but if I can't drink tea, I'll cry. Did anyone gain weight afterwards? I really do not want to as have recently lost a stone. I have become terrified of eating so am hoping having the gb out will solve a lot of my anxiety around travel, lack of sleep, food.

13.How soon before driving/shopping/ lifting anything?

14.Did anyone go on a holiday after the op? How soon after? What were the travel insurance implications?

15..Any things they don't tell you that you wish they had?

16.Out of curiosity, how long did it take you for a GP to take your symptoms seriously? I'm at about the 10 year mark, maybe 6 or 7. This has been complicated by them focusing on trying to find gynae issues , which may or may not also exist, and various red herrings such as recent shingles and kidney infections. These of course were diagnosed and/or treated so the frequency of episodes was dismissed or overlooked. Annoying, it took DH's assertiveness for me to get referred for an abdo scan. I'm all for peri and menopause being taken serioulsy but it now feels like every ailment a woman has is put down to menopause. I may even have a tendency to do that myself. The pill version of HRT definitley did make my symptoms far worse, possibly coincidentally.

Feel free to answer or ask questions and share your stories!

OP posts:
Piggywaspushed · 28/09/2024 06:14

CraftyGin · 27/09/2024 22:02

You've really gone through the mill, Piggy.

I am three weeks post-op and am mostly fine in the upper abdomen, but have recently had a few twinges that take me back - with about 1% of the pain.

I still have a sore stomach, so need to really sort out my diet.

My appetite has returned. I now realise that I must have been ill for a long time before the pain set in, as I ate like a bird and was often nauseous.

That sounds exactly like me. I am still not convinced all my issues are gallbladder related but I definitely recognise your experiences!

I think it's a generational ting - I wasn't brought up drinking water regularly - but I need to learn to embrace chugging as I suspect I am constantly a bit dehydrated. I never really feel thirst or hunger though, as a rule. I'm like a camel...

OP posts:
CraftyGin · 28/09/2024 07:48

Yes - I'm terrible at drinking water - just can't do anything that adds to much.

I'm now drinking tonic water and non-alcoholic prosecco, and that it working well to keep me hydrated. As a bonus, my skin looks a lot brighter.

Sunshineandrainbow · 28/09/2024 11:09

Does anyone get pain over stomach area..
This week I get waves of gripping pain over where my stomach is. Left side just under ribs.

Piggywaspushed · 28/09/2024 11:11

Do you still have your gallbladder?

OP posts:
Sunshineandrainbow · 28/09/2024 11:25

Piggywaspushed · 28/09/2024 11:11

Do you still have your gallbladder?

Yes I do, sorry I realised after that I should have said that.

Piggywaspushed · 28/09/2024 11:36

Sunshineandrainbow · 28/09/2024 11:09

Does anyone get pain over stomach area..
This week I get waves of gripping pain over where my stomach is. Left side just under ribs.

Then, yes, that was a large part of my symptoms.

It all names more sense when you hear it called colic.

OP posts:
pickd · 28/09/2024 11:37

@Sunshineandrainbow not on my left side, no. I'd be keeping an eye on that as could be appendicitis. That tends to begin in the centre and moves across to the left where you're describing. I do get abdominal pain with my gallbladder but it's very much on the right hand side.

Sunshineandrainbow · 28/09/2024 12:51

Thank you both

I get pain on right side when having a Gallbladder attack.

This gripping pain has only been this week, last about 10 seconds and comes on regularly through the day. More noticeably after eating. And lots of hunger pans but I have eaten. Albeit not a lot due to gallbladder!!!

I will keep an eye on it. I just always think the worst and have been googling stomach cancer.

Greybeardy · 28/09/2024 13:16

pickd · 28/09/2024 11:37

@Sunshineandrainbow not on my left side, no. I'd be keeping an eye on that as could be appendicitis. That tends to begin in the centre and moves across to the left where you're describing. I do get abdominal pain with my gallbladder but it's very much on the right hand side.

appendicits would more usually cause right sided pain rather than left (because it’s usually found on the right)… but actually can cause pain in all sorts of places.

pickd · 28/09/2024 13:36

@Greybeardy going from my own experience of appendicitis it was the left. But it might depend on the person of course.

pickd · 28/09/2024 13:37

@Greybeardy I should add though that at the time the pain was so severe I wouldn't have even been able to say which side so I could be remembering wrong Blush

CraftyGin · 28/09/2024 14:29

Sunshineandrainbow · 28/09/2024 11:09

Does anyone get pain over stomach area..
This week I get waves of gripping pain over where my stomach is. Left side just under ribs.

Welcome to my world!

Greybeardy · 28/09/2024 17:23

pickd · 28/09/2024 13:36

@Greybeardy going from my own experience of appendicitis it was the left. But it might depend on the person of course.

the appendix is a right sided organ (there are some rare anatomical variations that put it on the left). It more usually causes right sided pain, but if it's really gammy on the inside/ the appendix is long and reaches further than usual then the pain may focus in other places/all over. Appendicitis would not be top of the list of possible diagnoses in someone with upper left abdominal pain (which was the context of the post you commented on).

GenericDietCola · 29/09/2024 12:09

I hope you don’t mind me joining. I was in A&E last week with epigastric, shoulder and back pain with vomiting. I had an ultrasound and the dr found gallstones. Was eventually sent home with codeine, but have an appointment for another scan tomorrow. Apparently this will be more detailed and I have to see the surgical team afterwards to discuss treatment.

Can anyone advise on possible next steps? I’m assuming I will need my gallbladder removing but am curious about timing. Google tells me the wait times can be very long, but do you know if there’s a more urgent pathway where it would be done sooner?

Piggywaspushed · 29/09/2024 12:16

Mine would be an example although it was more me pushing (in a very non assertive way) than me being fasttracked. You are lucky you were scanned. I have been to hospital up to 8 times and only ever had bloods and urine tests. I only ever got a san because DH insisted a GP referred me for stomach pains.

Once you have your full scan they will know what the exact situation is .Then your GP should refer you to gastroenterology. My standard NHS wait for that was nearly a year and that was just a consultant appointment - God knows how long I could have waited from there to an op.

My GP referred me to a private provider who now have reciprocal agreements to take NHS patients. I was really lucky that one of their specialisms is GI. So my wait from scan was 3 months.

Make sure you ask questions about expediting you.

OP posts:
Piggywaspushed · 29/09/2024 12:18

It actually sounds like your referral will come form hospital not GP so that's good. It doesn't seem there are too many standard operating procedures!

GB removal is apparently the most common procedure in the UK - hence long waiting lists.

OP posts:
GenericDietCola · 29/09/2024 13:12

Thank you @Piggywaspushed , that’s really helpful. Hope you are recovering well.

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