@MothralovesGojira
When oncology said that about your lungs, was that the breast team or lung Multi-Disciplinary Team (MDT)? Or does your hospital have a more general oncology dept where they cover multiple types under one Team? It does seem odd and scary that they'd say that to you but then leave it without ongoing observation.
I'm sorry to hear the radiologist was such an arrogant upstart and so unprofessional; you have every right to ask questions and receive polite answers without being treated like that. He should understand that after what happened to your SIL you were of course going to be very worried and cautious about radiotherapy - who wouldn't be!
It's shocking what the consultant told you this week about you not getting the second meeting about radiotherapy. I didn't 'refuse' any treatment so didn't know that was the protocol, but it makes sense doesn't it. You seem to have been let down with that second meeting not taking place. Are you still at the same hospital?
The 10-year survival rate you were given was high. I think my 5-year rate is about 60-70% no idea about 10-year, but my cancer was far more advanced than yours on diagnosis. I also sort of think these rates are only helpful in the case of extremes (99% survive or 99% don't) otherwise they aren't much use because we don't know which group we'll be in or how many in the alive group are alive but living with metastatic disease. There are so many subtypes within each subtype...
From what I know, the fact you had 4 cycles of EC chemo is really good. I had that to start my treatment plan, and they said that chemo is to try to obliterate the cancer in the whole body (not sure if it can cross into the brain, but at least everywhere else).
It's maybe odd that you didn't then receive any further chemo; having Grade 3 ER-negative, HER2+++ AFAIK it's usually then Paclitaxel weekly for 12 weeks. I personally stopped that very early due to side effects, but was prescribed the 12 weeks. This is maybe something you can ask about if you are finding out about your previous treatment plan not being complete.
I'm really sorry to hear about the financial pressure you're under and also the insecurity about your home. That's horrendous and too much to take on top of the cancer. If you have a National Insurance record of contributions in the last 2-3 years (I don't know the exact rules) then there's Contribution Based ESA. For people on chemo there's the Support Group which gives you about £560 a month. I have been receiving this for some months now (didn't know about it before then). This carries on for as long as they think you qualify, there's no set end. I filled in a PIP form and spent ages on it, but chickened out of sending it in because I was scared of the interview - I was so emotionally vulnerable.
I need to go now, but will reply more soon.
xxx