CANCER SUPPORT THREAD 60! Here we are again... join us if you have any sort of cancer (or if you're waiting for cancer test results)

[WhatWouldLeslieKnopeDo]

Welcome everyone to a shiny new thread :)

It's a club nobody wants to join, but if you need us, you are more than welcome. If you're waiting to find out if you have cancer or not then pull up a chair. We hope you won't need to be here long, but we are here as long as you need us. And if you do have cancer then this is the place for you. Swear, rant, scream, laugh, cry... someone will have at least an inkling of what you're going through!

We only have one rule, which is do not Google. Though perhaps we should update that to please Google responsibly as few can resist completely!

I hope this thread will be a source of support for all who need it

Our previous thread can be found here

that's promising wombat I'm sure she wouldn't tell you if she wasn't pretty certain. But I understand wanting the official verdict :)

Hello milesjupp, sorry you are here but welcome, we have gained a lot of new members this week. Many years ago when we had small children Friday night, once we got them to bed was the three C's. Curry, cava and coma, i.e. Falling asleep on the sofa afterwards. We've just had curry and a bottle of something fuzzy but not cava and I'm probably about to have 40 winks. Happy Friday night everyone and yes wine is definitely recommended.

Fizzy!!! But then again.....

mrsrhodgilbert we have two hairy dogs, so drinks often fuzzy.

Pissed now.

Good way of coping with (probable) cancer diagnosis.

So glad I found you all X

Thanks nicky

twitter I hope your dd is ok soon. wombat I'm pleased your news was good.
thanks to all for your kind and calming thoughts.

Very good way of coping, oncologist has not banned wine. Whatever gets you through. Obviously not everyday but it has it place.

Quick updating as I am wiped out. Dd OK. Discharged at 7 pm. Has taken me 5.5 hours to get here. Normally 2.5. Cannot be cross. Some poor woman died in the m5 crash poor soul. Hospital don't know what's wrong. Not uti. More tests on Monday. They think something to do with the tonsillitis. No meds. They kept an eye on her - I'm guessing for oz flu or sepsis. Have left her in halls with flatmates and told them to ring 999 if she gets worse again. Thank you lovely people. Pass the gin. Thank god chemo has'nt killed my desire for a drink!

Am in hotel on my own. Tootired to drive back today. Upside is hotel breakfast tomorrow!

Hi, Miles - fellow dweller in a haematology/oncology unit here. I have leukaemia (CML) and don’t know that much about lymphoma.

Yes, you do tend to get tests straight away once they think something is up, which can be a bit alarming. But then you might have to wait for a while for results (if they havd to groe your cells before testing) eg - 10-14 days after bone marrow biopsy. Which big of you is being biopsied this time?

And do you kind what kind of lymphoma they suspect it might be? Keeping fingers crossed you gave a nice slow-grieving treatable one (the newer biologically targeted drugs have revolutionised haem prospects - try not to google, there’s still a lot of older/outdated info out there)

My consultant has blessed the consumption of wine btw, Not getting hammered, but no reason not to have s glass of two whenever I fancy it,

Good to see how many of us are permitted the ! (Health giving. Isn’t it?)

Twitter enjoy you’d jnecoected night in a hotel. Can you exploit your anonymity and chat up interesting strangers in the bar?

My mind is roaming inappropriately because of envy. I’ve been mainly in bed today because of the dire rear (can never spell it properly)

Where is the effing star for bold? IVamp am ROFPMsl at the thought of chatting up strangers in the bar! I'm a hefty 58 year's old with an interesting hairstyle and an inability to hold a glass with anything less than 2 hands... Add benign essential tremor to chemo to steroids and you Will appreciate I am not someone you want to sit next to.

Miles Sorry to hear you probably had cancer, DH's friend had Hodgkin's Lymphona about 10 years ago at around 40 caught at stage 2. He went through one treatment twice a month for 3 or 6 months and after has been completely fine partying, holidaying and working (he's one of the most active guys I know) so not ideal but very treatable. I think its also the cancer my teacher had and she's been fine past 15 years. Anyway enjoy your wine bath, I misread it as you bathing in wine to start with

Twitter Hope you daughter gets better soon and you have a good rest tonight. Think you're an amazing Mum to rush down whilst mid treatment yourself.

Hope everyone else is OK and happy half term to those with kids.

oh wombat that sounds like good news!
Twitter here's hoping your daughter continues to feel better. Enjoy your night in the hotel! You have earned it after your heroic maternal sprint down the M5. May I recommend minibar and movie.
IVampire I am appropriating the term "dire rear" for future use I hope you will have some relief from it soon.

Gosh it's been busy in here tonight! I've started a new thread here before this one fills up completely.

Can anyone advise. My sister has myeloma. Just started treatment chemo injection and steriods anti sickness and acid tablets. No real side affects only tingling in hands BUT she can not sleep. Early days as just started treatment 2 weeks ago. She goes late afternoon so when she takes the 10 little steriod tabs nurse thinks these maybe kicking in late on and keeping her awake so she is now taking them the next morning to see if it helps. Anyone any advice on not sleeping

at iVampire. How long ago was your diagnosis, & how are you?

They haven't indicated the type of lymphoma they suspect, but having googled briefly (in the hospital loo straight after the consultation in which they dropped the C-bomb) it sounds like Hodgkins is likely. Swollen lymph nodes in neck, heavy periods, drenching sweats etc. I thought it was peri-menopause!

Thanks for the welcome, penguin.

The shock seems to have worn off a bit now, so I'm going to focus on enjoying half term with my lovely, funny children.

Happy Saturday everyone!

123 I had exactly the same problem with sleeping, I had to take my steroids as early as I could and I got some sleeping tablets from the doctor for the days I had to take steroids

Hello to everyone. Leslie how are you today? Twitter how is your daughter doing?

Hi Genie tx for asking

Inconclusive. She has to have more tests on Monday. I left her there today, tearful and not well, but not feverish. She was hooked up to ECG for 5 hours yesterday but thankfully they didn't cannulate her. If I'd got there earlier I would have bought her back, but M5 chaos put the kibosh on that. TBH,, it wouldn't help bringing her home because of the additional tests next week.

She's 10/15 mins from her hospital. Here, we're an hour. The uni doctors are very good - she is getting same day appointments!!! yes, get that people... And this is why I don't want to bring her back. She was very tearful though, which is hard to take. She's still my baby...

Hi Twitter I'm sorry she isn't feeling a lot better yet, but your decision to have her stay at uni makes all kinds of sense. It sounds as if she will have much more immediate access to good care if she feels that she needs it again. Of course it's hard to take when she's upset; no matter what age she is, she will always be your baby. She is probably tearful at seeing you (relieved to see you and can let herself be emotional with you) as well as because of feeling tired and unwell. I hope tests on Monday will give some answers. I think this is hard with what you have on your own plate right now as well. Sending you a huge hug.

Big hug very much appreciated.. and much needed xx