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Lacies, elephants, potato-based snacks... Whatever we are, this is our 57th CANCER SUPPORT THREAD

968 replies

WhatWouldLeslieKnopeDo · 29/09/2016 23:49

Welcome everyone to another cancer support thread. This thread is open to anyone with any sort of cancer. And we have plenty of hands to hold if you're undergoing tests for cancer. We are always pleased to wave people off with an all clear, and there's plenty of room here if the news isn't what you hope for.

So don't be shy! We are a friendly bunch and there's probably someone who has been through something similar. Nothing is off limits here. Scream, shout, swear, stamp your feet...

I'm sorry that anyone needs this thread, but very glad that it's here. Cancer is shit. But it's a little bit less shit when you have people to share it with.

Our previous thread is here

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chewingawasp · 13/11/2016 14:01

Afternoon I mean Hmm

EtTuTuttiFrutti · 13/11/2016 16:01

Oooohhh Chewing Sad

Everything crossed for your scan results.

Flowers
WhatWouldLeslieKnopeDo · 13/11/2016 20:38

chewing everything crossed for your results. Not surprised you are not feeling great with that hanging over you. My oncologist gave me some antibiotic lotion that has really helped my chemo acne so might be worth mentioning it to them if the spots continue. I hope they clear up soon Flowers

I think I will be going into hibernation for the next couple of days so I will rather feebly hand round some blankets for all who need them before I settle down :)

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chewingawasp · 13/11/2016 20:45

Thanks Leslie. I am seeing onc later this week so will ask for something to help if it's no better.
I hope you are doing ok. Hibernation sounds a good idea (love the picture). I have a hot water bottle every night now and it's lovely to get into a nice warm bed Smile

chewingawasp · 13/11/2016 23:24

Tutti hope you enjoyed pottering in the garden enjoying the sunshine and that your nose has stopped bleeding. Very interesting about the chemo drugs. One of mine is made from the poisonous mandrake plant and the other contains platinum.
Off to bed now - CT scan tomorrow. Night lacies.

Fresta · 14/11/2016 07:52

Morning everyone, just popping in to wish everyone luck with results this week and hope those having treatment cope well x

doraismissing · 14/11/2016 15:02

My wire insertion is in 30 minutes. Absolutely sh@"£ing myself. God only knows what I am going to be like tomorrow.

WhatWouldLeslieKnopeDo · 14/11/2016 15:11

Good luck dora and chewing Flowers

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indyandlara · 14/11/2016 16:31

Sorry for taking so long to get back to the thread. I came down with a pretty vicious sickness bug the day after my appointment and I'm just starting to feel myself now.
Thankfully I got the all clear on Thursday at the Breast Clinic. I saw 2 consultants, had a mammogram and an ultrasound. There is a cyst there and the thickening is an area of dense tissue but they can see nothing sinister there.

I would like to thank you all for your kind, supportive words and wish all of the lacies good days ahead.

WhatWouldLeslieKnopeDo · 14/11/2016 17:06

Brilliant news indy (apart from the bug!) Flowers

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doraismissing · 14/11/2016 18:47

Indy great news. So pleased for you.

Wire now in. Bit of a hiccup as they couldn't find the marker on ultrasound so had to have it under mammo. All done now. Just tomorrow to get through.

rocket74 · 14/11/2016 20:18

Great news Indy!! Really pleased for you x

jhon63 · 14/11/2016 20:27

This reply has been deleted

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royalmama · 15/11/2016 12:22

Pleased for you Indy
Wishing you all the best for today Dora
Waving to all ther other lacies.

Fresta · 15/11/2016 20:49

So happy to be waving someone off- there's been far too many newcomers to this thread recently!! Best wishes Indy.

FlippyNeck · 15/11/2016 23:47

Hello lacies, hope everyone is managing ok at the moment. I disappeared for a bit to get my head around my results, and to read up on them. Rovercat and SillyDog, thank you for your posts.

I went for my bone scan today - had to get the lovely radiographer to move my toes for me, as they started cramping and I wasn't allowed to move them myself. I didn't realise I wiggled them so often usually! I dropped in to see the BCN and ended up having a very long chat, joined by the consultant surgeon.

I talked to them about chemo and how I really really don't want to go down that route - consultant said that I had very good reasons and it would be possible to have herceptin without chemo. I'm still worried about the effects of that on my heart (both sides of my family have suffered with heart disease), but I think that's it worth the risk if I'm also not poisoning my entire system. MDT meeting tomorrow morning when they will have my final biopsy results and will discuss my treatment options taking my wishes firmly into account. It was a good discussion, and I feel a lot better about it - it felt like I was getting some control back.

Back to the hospital tomorrow afternoon to find out the biopsy results and discuss surgery - I'm expecting to have to have a mastectomy, because my luck isn't likely to change at this point!

Dora, hope you're ok, and Chewing, good luck with scan results. I treated myself to an electric blanket a few weeks ago - never really needed one when DP was around - so I'm making the most of it before my chemically induced menopause kicks off. Lovely to have cosy toes in bed without socks!

Mummyshortlegz · 15/11/2016 23:55

I'm sorry but I haven't read the thread as it's so long.

Went to the GP on Friday with a weird lump under my arm thinking it was a boil or a lymph node up for some reason. She didn't like it and examined my breasts. She declares them lumpy as anything but she also found a separate very different lump. Hard, not painful and she couldn't move it. So a worrying lump. I see breast care on Monday. I'm 34 so I expect it'll be an ultrasound and then whatever follows.

How can I stop spiralling? I've diagnosed myself with cancer that's gone to at least one node and maybe beyond. I know it's more likely to be cysts, but there is a very real possibility it isn't.

My mind is wondering about my kids, I have a 14 month old and a 3.5 year old. I am a sahm. If i have cancer and need treatment will I be able to look after them? What if I'm terminal?

I am spiralling. Terribly. I've stepped my Christmas prep up a gear as my mum pointed out if it is bad news I'll start treatment quickly probably.

I can't believe I didn't find the lump. That scares me in itself. How long has it been there?

Sorry, late night rambling worries.

Grismo · 16/11/2016 09:56

Mummyshortlegz welcome, though I'm sorry you're here! (It's dinster here, I had to change my username).

Of course, of course you're scared and spiralling and imagining all sorts. As you say, most lumps aren't cancerous - but most of us here have been on the wrong side of that statistic, so it's pointless to say don't worry!
Instead, I can say that even if the news isn't what we all hope, there will be fast treatment and treatment that's more effective these days than ever before. It won't be as much fun as doing the twist with George Clooney, but it will be doable.

But, also, if at all possible - try not to jump ahead. And if you can, don't Google! Just do whatever distracting things you can to get through until Monday. If it helps you feel in control, then get that last Christmas card written, and have plenty of cuddles and cocoa and silly films or whatever helps... And come Monday, do take someone with you if you can, to be with you and to be another pair of ears at any consultations.

I'm sure I can speak for all the lacies when I say that we're rooting for you.

Hello to everyone!

chewing hope you're doing OK and wishing all the best for the scan results.

leslie I'm glad you got your chemo this time. How are you doing?

Waving and sending warmest thoughts to anyone waiting or in pain or just FED UP with this whole cancer malarkey.

gingeroots · 16/11/2016 10:59

Mummyshortlegz waiting for tests and results is a very special sort of hell and ,as many will testify ,if you are diagnosed it one of the worst bits .So huge sympathies .

I'm copying a recent post from one of the long term posters on this thread .,Amberlight who describes herself thus

" I'm not any sort of healthcare professional. I had breast cancer diagnosed five years ago, had all the usual stuff done (chemo, surgery, rads, herceptin for a while) and started reading the oncology and related papers online every day. And following the big cancer conferences and their summaries of latest and best news. Have done ever since. Just an autistic science-geek, really, but there's so much encouraging news out there for so many people. Whatever I say on here should always be checked out with teams, and teams are always the best people to know what's what. No great skill to what I do at all - I just happen to have read a lot of it "

and says

For those who have not discovered earlier writings on this on this thread/elsewhere, some possible reassurance for breast cancer waiting.
9 out of 10 lumps in boobs are something else. Only 1 in 10 is cancer.

Firstly, it is impossible to die from a lump in the boob. Literally cannot kill you in there. So if that is where it is, you're fine. Treatment for that is not fun, but it's doable.

If the cancer has had a long long time to grow and wander about, it may have got into the lymph nodes under the arm. They are a 'safety net' of a sort for the body. So, if they have caught it, that's a pretty good thing. It means more surgery to get it out of there too, of course.

If the cancer has spread to elsewhere, you're pretty certain to know about it. Not everyone does, hence the tests. But if it has reached other bits of the body, people tend to be jolly unwell before treatment. If you are feeling fine, that's a good sign that you are fine.

Even if it has spread to elsewhere, these days it's remarkably treatable. We really are seeing some results showing 80% success rates from treating cancer that has turned up in one place in the liver, for example. If it's first ended up in the lungs after the boob, one recent study showed most people are still alive and kicking ten years later...and counting. That was a surprise to the teams.
So, it's not the killer it used to be. Treatments can settle it down to be a long term nuisance for people, if it has spread. No guarantees at all. We all know people who have not been fortunate with their own cancer, and we hold them in our thoughts. But for the vast majority, now, there is every good chance of seeing old age.
None of it takes away from the eek of waiting, or the exhaustion of treatment if it's needed though. And all of us live with that tiny bit of uncertainty. It becomes a 'new normal', after a while, though, for most of us.
Hoping that has helped a little.
As I say, no guarantees. But we really are seeing some very good news from the multiple new treatments and potions.

gingeroots · 16/11/2016 11:02

Love to everyone else and thinking of leslie who I hope might be coming out from under the duvet soon .

Mummyshortlegz · 16/11/2016 11:21

ginger actually that is the most helpful thing I have read. Thank you. It is very reasonable and understandable.

I am a HCP and in fact worked with mammography until recently (I trained people to use the equipment, i am a radiographer by trade) so it is very odd to be this side.

I have bought wrapping paper and collected a huge Argos order and I am almost there with shopping. Two more days till DH is home, that will help.

Thank you for the support, the unknown is the worst at the moment. Grismo I will be better on my own, anyone I take with me I will end up supporting and explaining things to and I'd rather just concentrate. If they biopsy i will take dh for results.

I suddenly am frightened of my boobs and I don't want to touch them. Is that normal? My son was stroking my boob and I was relieved when he stopped. He is such a lovely 3 year old and very touchy feely.

WhatWouldLeslieKnopeDo · 16/11/2016 13:07

I'm peeking tentatively out from under the duvet ginger Grin how are you?

Lovely to see you Grismo I'm good thanks. How are you?

I hope all went well Dora and that you are resting up now Flowers

Flippy good luck with the biopsy results today :) your conversation re. chemo sounds promising. I'm glad your team are taking your views seriously

Mummy sorry that you have had to join us. I hope your visit here will be a short one :) I felt the same after my diagnosis a few months ago. I could barely stand to shower as I felt scared of touching my own body!

As others have said, try to take it slowly and just do whatever you need to do to get through this bit. Christmas prep sounds like a good distraction. Others have thrown themselves into projects and found them quite helpful. It's good to have something real to focus your attention on, rather than all the swirling thoughts.

Unfortunately most of the advice seems a bit trite because really it's just a case of grinning and bearing it until this awful waiting time is over.

There are others with little ones too who would be able to advise better on the practicalities of looking after children during treatment, if necessary. But short answer: yes, you would still be able to look after your children :)

Waving to everyone

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Cookiepuss · 16/11/2016 13:39

Afternoon Lacies

Indy fab news, I know I don't know you but I am so pleased that someone has good news.

Just wondered if there is room for a permanent seat for me as I had my results (well most of them) last night. As expected by the consultant both lumps are cancerous and the lymph node has also tested positive. The upshot is (which most of you are no doubt aware) that I will have 6 cycles of chemo (possibly 8 - will know more when I see oncologist) before I have any surgery.

So, chemo road it is which I am actually dreading but trying to keep a brave face. I know it sounds so bloody shallow but the thing that is really really pissing me off is the fact that I will lose my hair. I know, it's something really superficial in the grand scheme of things and I probably won't give a toss when coping with all the other side effects but it is just SHIT!

Right, need to leave my pity party and be positive. Any hints or tips for coping with the chemo will be gratefully received. Not sure what chemo but BCN mentioned FEC-T. Bit scared to Google as no doubt will bring up stuff I really don't need to read.

Cookiepuss · 16/11/2016 13:51

Chewing - hope you are feeling better and your spots have cleared up now.

Dora - hope you got through yesterday OK.

Flippy - sounds like a positive chat. I was sure my consultant would sigh when I pulled out my notebook with all my questions but he was very patient and those he hadn't answered he went through very carefully with me. We even managed a bit of a laugh, who would have thought!

Leslie - I agree with hibernating; just put me in a comfy warm bed, do what treatment you need to and leave me to sleep it all off.

Electric blanket is a definite must - I get really cold feet which seems to permeate through the rest of me so I've had one for years.

rocket74 · 16/11/2016 15:47

Cookie puss I'm sorry you have to stay x
I am two cycles into chemotherapy on FEC-T.
I totally understand about the hair thing - have they discussed cold cap with you?
I know I have been on here moaning about it - it is very cold and painful and uncomfortable but it's working so far. It has thinned a lot but think worth it so far.
I've attached pic of back of my head I hope!

Lacies, elephants, potato-based snacks... Whatever we are, this is our 57th CANCER SUPPORT THREAD