88 year old DM had a catastrophic stroke a few months ago which has left her completely unable to move independently and doubly incontinent. She cannot swallow so is now fed via a PEG tube, which leaves her at risk of aspiration pneumonia (which has already hospitalised her since the tube was inserted), and has stroke-induced dementia, with visual hallucinations. Most of the time she has no idea where she is or what's going on around her.
She was admitted to a nursing home around 6 weeks after the stroke as she now needs 24-hour care, and will do for the rest of her life. Despite all this we've just had CHC funding refused as she doesn't apparently meet the threshold. We're now faced with selling everything she owns in order to pay for the care home fees which, minus the pitiful nursing contribution paid by the LA, will be about £1800 per week. To say we're extremely stressed about this would be a massive understatement.
Has anyone successfully appealed a CHC funding decision based on circumstances like DM's? We're going ahead with this but have no idea where to start - the whole care/funding system seems designed to wear you down physically and emotionally and I'm so tired of fighting one battle after another 😔. TIA.