joint funding package

[bewilderedhedgehog]

Hi - hoping someone has experience here. We had a CHC assessment meeting for my father, who has a PEG and has carers come 4x a day to sort his food and medication. The conclusion was to recommend a joint funding package. I cannot see online whether this means that we have to contribute or whether costs are picked up by NHS/local authority jointly?
welcome advice and experience please
Many thanks

Thank you - yes I have requested all documentation relating to the decision, but we have not yet received. The assessment was last Friday, so I don't think the delay is unreasonable at the moment. My understanding from the discussion at the assessment (I was present for this) is that he is not eligible for CHC but a joint funding package is recommended. I haven't chased as yet partly because tomorrow will only be a week, and secondly because we have already had a 999 call, UTI and leg ulcer issues this week. My mother is coping very well but becoming anxious about the mounting issues. Our biggest issue (aside from the assessment) is trying to access primary care. The practice will not do home visits, but my father is unable to leave the house so we are in a Catch 22 situation. My parents are reluctant for me to phone the practice to talk about this, but it is not OK. We finally got morphine patches today to manage the pain (my father cannot take painkillers due to the PEG). Amidst all of this I am really sad about their quality of life. And I don't live nearby either! Thank you to everyone who has contributed to this thread - the advice is very welcome, and I do feel less at sea!

Perhaps your mum had large costly adaptations done and DFG contributed a lot . Perhaps she contributed towards it quite a bit and didn't tell you that bit. Perhaps - & hopefully not- she didn't declare all her saving accounts. It's difficult to know bc people/ relatives can be private about finances, even with their relatives no that isn't happened as I've dealt with it all. Any the point being OP question EVERYTHING as you never know what is available.

As I understand it carers are able to alert medical peeps when necessary which might be a quicker route. Has the practice actually said they won't do home visits because my dad's GP was happy to visit last year as he couldn't get to the surgery, he'd initially had a phone appt but he needed checking out in person?

** Anyway ,the point being

District nurses are possibly the quickest route to primary care in your dad's situation.

Anything to do with UTIs and leg ulcers etc the district nurses can deal with/ dip urine etc so go via the district nurses for that sort of thing.

Remember as well that the CHC decision isn't finite. People can fall in and out of CHC eligibility so if things don't improve it's always worth checking in with district nurses if they can do a checklist again in 3 months time.

Good news - subject to formal confirmation. The recommendation is that the PEG visits (4 times a day) are funded by the NHS. Anything above that is social care and would be means tested by social services. So this seems very reasonable to me given my father's needs. They have also suggested (as some posters have above) that we should approach social services re the house adaptations to understand assessments for that. A very positive end to the week!