Oh, really?
Medium rate DLA is £300 odd a month. Higher rate (for kids who never fucking sleep) is less than £600. I am really, really grateful for that money, and grateful to live in a country that pays it, but it does not touch the sides in terms of the actual costs of their needs.
I can't be in paid employment as my children's needs are too high.
My son's school trauma is so huge, and CAMHS so useless, we are presently funding £110 a week for private psychology EMDR sessions.
My daughter has severe hypermobility and is in orthotic shoes, and the hospital advice is that she needs private 1:1 dance lessons, so that's £36 a week.
They can't wear standard clothing - have to wear specific materials and they have to be made a specific way. Hugely expensive. No H&M and Primark for my son, especially.
They have to have long showers every night as the sensory side relaxes them and helps them to get at least some sleep. That carries costs.
They have very restricted diets and we have to cook three separate meals every night - also have to ensure supplements they can actually accept (so, they can't swallow iron - has to be Spatone in juice, which isn't available on the NHS).
Both are in glasses that aren't covered by NHS costs - my son's are so thick, they don't fit in normal lenses. My daughter needs myopia control lenses which aren't NHS covered but may spare her the 40% risk of permanent blindness in later life myopia on her brother's scale carries - that's £45 a month. Nor can they cope with the cheap local optician; we have to use the smaller, quieter private service just to get them through the doors.
They have specific needs that constantly throw up random costs - my son can't cope with NHS dental x rays so we have to pay for the touch-free, 360 machines instead.
That's before the £100,000 we've spent across the last six years proving their needs and taking the LA to Tribunal - which you can only win if the LA broke the law to begin with. Four in, we always win. And their educational provision reflects this. But we don't run a car, don't go on holidays, and my own clothes very much do come from Primark and H&M - or Vinted. We are very, very substantially in debt.
But hey, the EHCP pays the school fees, so no VAT for us. Winning!
You have absolutely no clue. And for the record, I spend a lot of my time helping parents who have no funds and no way to get EHCPs, and who don't understand the system, to get their kids sorted. I don't take a penny and never would - any money they do have should go on expert reports to prove the needs. A lot of people in here are bleating about social justice and showing zero knowledge or compassion for the families affected. I spend a lot of my life supporting low income families in getting their kids the EHCPs and the support they need - some into private schools, with LA paid fees.
Again, I don't give a toss about VAT for parents whose kids don't have these needs. But saying those who do should be broken in state mainstreams alongside peers whose parents have no options... why? Who benefits if even MORE kids are badly harmed? Not even the tax payer - failing SEN kids this much is costing the state billions, long term. Every child protected is a gain for every one of us. And try asking the LA if they think this will go well for their SEN budgets, too. It won't.
We need an exemption for kids on DLA.