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Possible dyslexia - not sure what to do next

29 replies

CoffeeAndCakeBringMeJoy · 13/02/2024 18:17

Hi,

I’m a first-time poster but long-time lurker. We have a nine year-old DD (year four in a mainstream state primary school) who is showing some dyslexic traits, particularly with spelling. She is bright - very articulate, plays two musical instruments and reads music well, and her maths is at least meeting, if not exceeding, age-related expectations. She’s also very sporty.

A few weeks ago I contacted school, as her spelling difficulties seem to be getting worse, and she does show other signs of mild dyslexia, such as poor phonological awareness and word attack skills. However, she reads with fluency, although it isn’t her pastime of choice despite having been showered with books and read to daily, from birth. The SENCO replied and said that they would observe her, speak to her teacher, do some work with her, and then invite DH and myself in for a meeting after half term to look at next steps. We have heard nothing since, and according to DD the SENCO hasn’t spoken to her or been in her classroom recently. We’re doing lots at home to try to help, and we’re doing our best to keep it lighthearted and fun in order to build up her confidence.

I work in education, so I’m highly aware of the pressures schools are under, and know that DD’s needs are not as high as others’. I’m not trying to make this bigger than it is; it’s a very real challenge for DD, who is starting to struggle with confidence as she feels she isn’t making progress, but fully recognise the pressure staff are under and that there are only so many hours in a day. However, I am concerned that she is going to slip under the radar, particularly as she is incredibly well-behaved and does everything she’s asked to do, making the most of all of the opportunities school offers.

I don't want to make a nuisance of myself with her school, but equally want to ensure she is able to access additional support, including self-help through additional resources (she’s currently trying using overlays which we have bought for her to use, and she says this does help). The weeks are rolling by, and transfer to secondary is on the horizon although not imminent. She doesn’t cope well in noisy classrooms, and can’t bear it when other children don’t follow the rules and listen when they’re asked to do so. She loves to learn.

I really don’t know whether to contact the school again; continue working through the extra resources we have bought to use at home (CGP guides mainly); arrange for her to have additional tuition; or start to consider other schools (this has been building for a while). She would be sad to leave her current school, which is warm and nurturing but not always wonderfully organised, but in the long term may benefit from the smaller class sizes and additional support in an independent school, which we could consider if needed. I just feel she’s slipping through the net in the tragically overstretched and underfunded SEND system, where those with milder SpLD, if that’s what this is, often can’t receive any additional support because neither the time nor the money is available, so they simply need to find their own coping mechanisms. I fully recognise that there are children with much more severe needs than hers, but am also very aware that something isn’t quite right.

Thank-you so much for reading and for your thoughts and ideas.

OP posts:
pinksavannah · 18/02/2024 09:21

I was 20 and at Uni when I was diagnosed, don't wait for the school go private

Sailawaygirl · 18/02/2024 09:22

I'm dyslexic. If you can afford go for a private diagnosis and specialist private follow up. Schools and sen have very broad understanding of dyslexia and support needs to be tailored to her. My spelling is terrible ( it always will be) but specilaists along the way have given me confidence and strategies which teachers just couldn't. She needs to learn to fully understand her strengths and weaknesses at her own pace with support. And that way she can tell ppl what support she needs and also be independent in putting support strategies in place.
But the association that I am ' lazy' because I can't spell still haunts me and professionally I do have the odd person who refuses to expect my expert opinion because of a spelling or grama error. But I've learnt that's ok.
And with reading, I was a great reader but I compensated massively by speed reading and using the context to guess the correct word. Also with dyslexia there is a big gap between reading in head and reading out loud or single word reading.

Sailawaygirl · 18/02/2024 09:34

Ps . I have a spelling age of 10 and I am an speech therapist! did a level math athlough always got the end answer wrong due to making a silly errors with opposites or 4s and 7s.
The more people who can succeed with dyslexia the more ppl there are to help the less fortunate kids and adult's.

Scarletttulips · 18/02/2024 09:46

and as evidence for any exam access arrangements which might need to be in place

Schools do not accept EP reports for extra exam time they have to do their own assessments and it’s based on the child’s normal way of working, like using an iPad or typing.

For spelling

Tey a free touch tying program - helps the fingers learn to spell, takes pressure of her working memory.

Organisation skills are key - she needs to practice this.

Nessy is worth paying for - they do some free programs

Oxfordowl app reads to children, but I would also recommend audio books. Use them yourself so it becomes normal to listen to books.

display spellings on walls and doors and use them as a password - adds an element of fun is consistent and easier to remember

Buy word games or word game apps - these really help with spelling.

Schools dyslexia assessments are 20 mins and should take weeks.

Also, you’ll now see that the bottom 6 get all the support so your daughter won’t be in that section - and get very little help - it’s worth asking your DD how many low achievers there are in the class - I’ve seen 50% plus special needs which means other kids lose out. Teachers aren’t mirical workers.

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