Orri - anyone with experience of them?

[explainthistomeplease]

DD 25 is thinking of using the people at Orri to help her with her stubborn ED. Any views is or experienced? Thanks

Or (hopeful bump) the Priory for EDs.

Hi - Orri - my experience - the good bits

• The meal support
• The food is high quality
• The intensive day care it offers

The things to watch out for/bear in mind

• Cost - be prepared to need a number of blocks of treatment particularly if you’re not committed to recovery when you start.
• Make sure you speak to your key contacts at the start of the treatment to jointly agree goals etc and make sure all sessions are set up.

I wish you all the best with whatever you decide.

Thanks @NoSpots
So did you do inpatient? I hadn't clocked it was inpatient.
Am happy to be bored with any details you have.
How long were you / your loved one under their care?

It's not impatient. You go home at night but you are expected to be there every day Monday to Friday. They offer full day (with or without breakfast) or evening only. But the evening is still 3 hours.
It is very expensive.

All private treatment for EDs seems ruinous. Trying to sift what's most effective. I've read some bad things about Priory inpatient for instance.

Thank you both for your insight x

I’ve done daypatient Orri. It is by far the best treatment option I’ve had.
can be in person in London or totally online or a combination.
Treatment is MUCH more individual and personalised than anything within the NHS but is expensive. You get psychiatrist, dietitian, OT, nursing, individual and group therapy, meal support, liaison with any other professionals involved if you want it.
I agree that most people do 2-3 blocks of treatment but it depends on your specific needs. You can also outpatient but starting with daypatient is a good way to kick start the recovery process.
I really recommend it.
sending hugs to your dd.

That's sounds pretty positive. And, if I may ask, @RedPanda2022 , how are you doing now?

And everyone else thank you for your comments. I did call them and were reassured by the answers I got to my questions.

DD just has to make contact now. Tho she has had a horrible busy week at work so I hope that might happen next week.

I’m doing much better but it isn’t perfection! I have a very long term illness though and your dd is much younger. Orri are kinder, more empathic and more based around self compassion and looking at your whole life than just a behavioural approach.
it is very expensive but not more so than other private treatment.
the online option is much more flexible than face to face in London - you can do half days (9.30-2 or 1-5.30), full days (9.30-5.30, there are a lot of breaks) or combine with some in London and some online.
I would definitely try Orri before other private options. Very tough to get much on the NHS at present unless your dd is on deaths door. Sad but true.

@RedPanda2022 glad to hear things are moving in the right direction. It's just so debilitating isn't it? DD has achieved so much and frankly I don't k is how. Almost every waking moment her head is in a game of chess against her ED, with both sides trying to work out the next calorie move.
Thank you for sharing your experiences xx

Well, DD starts her a Orri journey next week. She's terrified. And i am too tbh.

@explainthistomeplease how did it go?

She's midway through her six weeks - five before Xmas and one after. But we're not naive enough to think this stint will fix it. We think she'll need a hybridised tailing off once the six weeks are done.
How is it going? Hard to say. Some successes. The proof will be though if they actually stick!

I’m thinking of Orri for my daughter (aged 18) who’s been plagued by anorexia and autism for 3 years. The NHS doesn’t seem to be able to offer any help and - although it’s so very expensive - we’re desperate. There seems to be very little help available anywhere and I’m out of ideas, tools and energy. I see your daughter is working with them - would you recommend their treatment? We’re looking at online daycare as we live up north. Thanks for any advice.

I think it's to early for me to recommend - though i wouldn't not recommend if you see what i mean.
There are online clients. My DD isnt one of them bc she works in London so is there 10-6.30 every day for an initial 6 weeks. I can see that turning into one or two days a week once that period has ended.
You are doing the right thing to be thinking of treatment. It took us too long - tho I do think it can only succeed when the sufferer is good and ready. My DD basically booked herself in
I will update sometime after xmas once we have all gathered out thoughts x

@explainthistomeplease sending both of you love and light.

Just wondering how Christmas went for you? Also looking at orri for my DD

It was easier in that we now know the rules much better. But harder in that we can see that 5 or 6 weeks treatment isnt going to fix it. We've signed up for another six week round. And thereafter will tail off with occasional sessions I think. And even then I can't see her being fixed.
Overall she seemed to actually enjoy food more rather than viewing it all with suspicion.
We are lucky that she works not far from Orri so when she does tail off it will be easier for her to drop in.

It's been so helpful reading these posts. Spent night awake and worrying about dd. We should be away celebrating her birthday but had to cancel everything because of her ED and anxiety over being out of routine. Orri looks good. Is there any help for mamas to help them not put feet in it - i try to support but her but invariably say the wrong thing!!

Yes @Fuerte60 there is support.
Online family therapy. Also group zoom sessions with other parents and carers. It helps to know you're not alone.
I will say this though - do not expect a quick fix; it's a long process, and things may get worse before they get better. And it's hellish expensive.
But generally, so far, I'd recommend Orri.

Thanks @explainthistomeplease the cost is eyewatering but dd has some inheritance funds and she wants to get well - she found Orri herself. I know it will be a long haul and I can't fix it for her but - am lone parent - feel a bit isolated and unsure best way to support - will see if I can find online group. I did look at Beat.

Beat runs online supporr groups/courses for parents which are excellent.

@Fuerte60 it's good your DD sought out help herself. That's a good sign. But there are patients who've been at orri (on varying hours and schedules) for a year or more. So brace yourself. My DD started at the end of November and was 5 days a week til the end of January. She is now two days a week for the foreseeable. But she reports there are others who bounce in and out and have been there a long time. I can see DD moving on to one day a week and maybe then a couple of remote sessions a month - if things continue to go well. But I'm constantly braced for backwards steps.
It's also vital to go in with a mature attitude. There are girls and young women there who need moving to different groups because they are disruptive and occasionally treat it all as a game. My DD has the phrase 'It's all kicking off at Orri again'. But this is common I believe. And frankly the treatment plans elsewhere sound terrifying.
We are very fortunate that we can afford the fees.

thankyou @Roseau18 I actually know the guy who set up Beat so I was hoping to hear positive tjings! I will join. Thankyou - feels good to be taking action have been so worried!

Really wise words @explainthistomeplease you have obviously lived with it for a while. I have felt useless tbh but better for signing up here and seeking advice. My dd looking for online support as she will allow nothing get in way of her studies. She has a mix of eds and been hard to find anything til now.

@explainthistomeplease and back at you! Feel
better for coming on here - should have joined ages sgo!