@FinallyHere it's frustrating not just the nhs either.
Doesn't help when hcps aren't up to date with latest research does it?
@Destiny123 please don't presume I don't know what I am talking about with regard to my own disability that I've had almost 20 years. I can't do the exercise on prescription I've been referred to that here before. The supposed expert gym person did more harm than good that time, because they are not hcps. The exercises are not suitable for me plus I cannot commit to eg Tuesday every week because if I'm having a bad day I can't move!
Yes I know what I can't do, I know what I can do too. On fair to good days I can do my physio, maybe a walk on good days I can do yoga and on best days swimming but it isn't predictable or guaranteed. I also have lots of other things to juggle health wise.
My frustration with hcps is so often they don't listen to patients, think they are saying they can't do x y z just to be awkward or because they're defeatist or a wuss or narrow minded or whatever. When most of the time patients do know their own bodies, minds and what they realistically can and can't manage. Instead of getting annoyed at us when we say we cannot do x perhaps instead listen to us and work with us?
I've recently had this happen with a dental issue, I was referred to a dental specialist for completely the wrong reason it was a waste of an appointment for me and the specialist. If the original person referring had listened, it wouldn't have been the case.
The last thing I want is throwing drugs at the problem! I actively avoid medication where possible, certainly for minor ailments, and would much rather take a natural approach. Sometimes meds are crucial (as in asthma) but I think generally best avoided where possible.
In the last several years I've started to have real issues with meds, developing full on allergies to ones I took no problem at all most of my life, others stopped working and others the side effects were horrific. I was in discussion as to why with another mner some years back but when I took the theory to my gp guess what? Didn't listen, totally dismissed MY concerns and now I am loathe to change meds or try new ones because of this.
I already take vit d, my calcium has been on low side for about 7 years, again with primary care doing zero to help, I have taken otc calcium supplements and they made no difference to my levels, my diet is pretty rich in calcium too,
There are 2 rare conditions that there is a family history of, one would at least explain the low calcium, the other the ALP and I've suspected may be present for about 5 years... again can't get primary care to test for it!
It's not just patients that are stubborn!
@Ladyofthesea yes that's all I can think to do at the moment keep carbs as low as poss. That's asda delivered and put away, I've reorganised my cupboards so that the very sweet treats are top of cupboard where it's hard for me to reach, hate waste so won't throw out but they'll do for guests (biscuits etc) & perhaps my student daughter next time she visits. So now I'm stocked up on low carb, high protein and some high fat items (the advice on whether to have low or high fat is very confusing!)
Not a big drinker and I'm fine forgoing that for now, doesn't bother me. The problem I have is I don't usually drink fizzy drinks when out as can upset stomach. Fruit juices are out can't abide plain water so where does that leave me?
Perhaps Mh will improve, not holding my breath as it's mainly ocd which I've had all my life albeit not dx until I was in my 30's because I hid it.
See earlier comments on this post re exercise, some I can do but depends on how I am that day etc.
I do tend to be an all or nothing person so yes I do need to watch that. I think Fri/sat I panicked and went too low carb for now initially. Need to do it gradually.