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Conception

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Subfertility: how did you get a referral?

45 replies

LunarSea · 20/06/2005 12:10

A few quick questions for those who've had referrals/treatment for subfertility (particularly secondary subfertility when you'd already had one child and/or conceived previously).

How long did it take you to get a referral?
How long did you have to be trying without success first?
And what was the attitude of your GP's towards it?

I initally discussed investigation with GP after not conceiving (#1) for about 15 months - told it would have to be 2 years before they'd do anything. Finally conceived after 18 months, but m/c at 6 weeks.

Then took 30 months to conceive ds (now 3 3/4) - but in between times told that as I had conceived in the past there was "obviously no problem", so it was now 3 years before they'd look into it.

Since then 32 months ttc #2, resulting in m/c at 11 weeks - am now told that having conceived 3 times there will not be any referal, ever.

GP kept quoting statistics that even with perfectly normal fertility only 85% would conceive in 18 months, so it's "probably just totally random and down to bad luck". Am so annoyed about that, since I know enough about statistics to be well aware that the probabilty of being in that 15% who don't 3 times in a row is only 9 in 8000 (or 0.1125%). And that's without considering that for us 2 out of three times have been significantly longer than 18 months, and that I'd done all I could by way of opk's and charting to swing the odds in our favour. So even that probability is probably an overestimate. Actually the figures here do seem to suggest it's less than that given that 2 out of 3 have taken over 2 years.

I'd have thought that those odds are a pretty good indicator that just perhaps we're not in that "perfectly normal fertility" population he's assuming. Yet there seems to be nothing I can do or say to persuade him otherwise.

I'm pretty sure that at least part of the problem is down to having very irregular cycles - mostly short (as low as 15 days, typically only about 22) but about one in six 40+ days. All he was prepared to suggest for that was the pill (grrr). Not helpful in the circumstances. No suggestion that there might be some underlying cause for it, or anything that could be done about it - yet I'm sure I remember people posting here who've had treatment related to luteul phase defects and the like.

And he even suggested that there wasn't any point in testing dh because, even if sperm counts are low, there's nothing that can be done about it. Now I know from things that have posted on mumsnet before that there's good evidence that zinc supplements can help so he's definately wrong on that. (As it happens I've got dh taking them anyway, but GP didn't know that).

I'm just so angry/frustrated at this, as it seems that not only are they being unhelpful, but the length of time we've had to fail seems to be double what it is elsewhere - I keep reading that people are getting referrals after just one year of not conceiving.

I don't really know where to go now - any suggestions? Or if anyone has any other statistics, references, etc which might help the argument I'd be grateful for those too.

OP posts:
jane313 · 05/08/2005 12:13

Can I ask what a post luteal phase is?

Littlefish · 05/08/2005 12:17

It's the time after you ovulate and before your peroid comes. It's sometimes called the two week wait (2ww) because in a lot of people it is around that!

jane313 · 05/08/2005 12:23

thanks littlefish

your gp sounds so horrible lunarsea, good luck in finding a new one

ionaming · 05/08/2005 14:10

Thanks Katierocket. It is weird how it was SO easy to conceive 1st time & not 2nd. Remember feeling really surprised when the same thing happened to a friend....only for it to then happen to me! At the time of conceiving dd1, I DID really appreciate the fact that I got preg 1st time..... glad I did now. Will let you know how it goes at the doc on Tues.... Iona x

Twiglett · 05/08/2005 14:14

Iona .. my consultant said that being pregnant throws your hormones up in the air .. and when they settle back to normal after birth they settle any old way

HTH

LunarSea · 05/08/2005 14:49

ionming - your gp and mine must be twins! I'm been looking to try and change GP in the hope that we have more luck with a different one. But it turns out that GPs have catchment areas, and you can't register with one if you're not in their area. As there's only one whose area we are in, we atuck with the one we've got.

OP posts:
katierocket · 05/08/2005 17:44

good luck on tues ionaming

Twig - that's very interesting, so maybe it's all just gone a bit out of sync or something.

katierocket · 05/08/2005 17:44

good luck on tues ionaming

Twig - that's very interesting, so maybe it's all just gone a bit out of sync or something.

ionaming · 05/08/2005 19:11

Hi Lunarsea, I've had probs with this doctor's surgery in the past.....actually, I try never to see my own doctor and always ask for another one, but just my luck, the one I saw last month was worse than my own one. I've never seen the one I'm seeing on Tuesday before, so you never know. He can't be any worse! I asked about changing doctors surgeries as we have 3 in our town, but was told this wasn't possible. I also tried to change doctor but within the same surgery, but this is against their rules. As a last resort I'm considering using a friend's address in a neighbouring town & re-registering at a better surgery! Nightmare. Why do doctors go into the profession if they don't care about their patients' feelings? I know I should be grateful for the lovely girl I've already got, but I just want to give her a sibling...... she can't understand why she can't have a brother or sister like everyone else . I'm getting really scared that I won't be able to be successfully treated & I know I can't have any fertility tests on the NHS as we already have dd. Can't afford to go private unfortunately. It's really getting me down - beginning to think I'll never hold another baby in my arms . Sorry for the ramble...Iona x

katierocket · 05/08/2005 19:17

that's bad news lunar, is there nothing you can do?
ionaming, hang in there, I know exactly what you mean and how you feel. My DS is always asking about sisters and brothers and "when is the baby going to grow in your tummy?" It's quite hard to deal with sometimes.
It'll be your turn soon.

ionaming · 05/08/2005 19:39

Thanks Katierocket. Good luck with your clomid - fingers crossed it works for you 1st cycle. BTW, a silly question, but how do you pronounce clomid? Is it "clo" rhyming with "flow" and "mid" rhyming with "lid" or something else? Just don't want to sound silly when talking to the doctor about clomid or progesterone treatment

Lunarsea - I think you sound like you have the worst GP in the world. Is there somebody elses address you can pretend you've moved to so you can re-register elsewhere? They don't ask for any proof, so should be possible.

katierocket · 05/08/2005 22:53

ionaming, yes I think it is 'flowlid', I love that BTW The consultant I saw called it Clopheine (or whatever it's proper title is).

MrLSG · 06/08/2005 09:54

The NHS has a FAQ on changing doctors . They say you don't have to give a reason for changing doctors, and they do say that one reason you might want to change it that there is a problem with your relationship with your current doctor.

ionaming · 06/08/2005 11:28

Thanks MRLSG. Makes it sounds so straightforward, but our individual surgeries seem to have their own rules which they impose

LunarSea · 09/08/2005 15:50

iona - when are you seeing the other doctor?

OP posts:
ionaming · 09/08/2005 16:18

Hi Lunarsea, thanks for thinking of me. Been to see other doctor today - he's a locum, so not seen him before. Quite young, pretty friendly. Was determined not to leave without getting some sort of action. Anyway, he didn't seem to be that knowledgeable about secondary infertility or a luteal phase defect, just seemed to take my word for it really. Wouldn't prescribe progesteron or clomid without further investigation. So am down to have a 21 day blood test in 2 weeks to check my progesterone levels (also, glucose, though not sure why). And also another blood test at the beginning of my next cycle to check whether my hormones are kickstarting ovulation (I think). So, it's a start. Have you got any further after your nightmare doctor appointment? I would definitely seek a 2nd opinion. I certainly got more joy out of today's doctor than the one I saw last month. Fingers crossed for you.....look forward to hearing some better news....
Love Iona x

LunarSea · 09/08/2005 18:31

Sounds positive iona. No guarantees yet, but am following up a few things and it seems may be able to see a gynae/fertility consultant privately even without a GP referal - will keep you posted. Not sure if I go down that route and discover something can be done but it needs tests/scans/whatever if I'd then have to pay for all those too, if it could then go back to GP's and they'd have to go forwards with it?

OP posts:
ionaming · 09/08/2005 18:42

Hi Lunarsea, I still think you should be able to see another GP anyway? Is there only one GP at your practice? A friend of mine went private for the initial tests - she had suffered 2 miscarriages, but doc wouldn't refer her until she'd had a 3rd. Great huh?. She couldn't bear to go through all that again, so decided to pay - I think it was something like £150 for an initial consultation & tests. Not sure where she's up to with it now. Really sorry that you haven't had any success so far...... your own doctor sounds like the worst ever

Twiglett · 09/08/2005 18:54

Iona .. positive first step .. you do need to have those tests .. but be warned you could still be ovulating and have a short post-luteal phase which would still make it impossible for you to conceive naturally .. so don't let them tell you to just go away .. and keep charting (and take charts in with you next time)

good luck

ionaming · 09/08/2005 19:37

thanks Twiglett, I know I definitely have got a short luteal phase (8 days), so hopefully the tests won't turn up anything else wrong & they can start treating it.

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