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IVF - can anyone tell me what it entails?

43 replies

CountessDracula · 01/03/2006 11:27

Am considering for No 2....

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elliott · 01/03/2006 12:34

I'm not sure that you do HAVE to be referred by the GP but it would probably be the msot straightforward way.
My most recent treatment cost about £2800 but that is provincial prices (!). Drug costs vary depending on whether you go for the most expensive new drugs (I didn't).

elliott · 01/03/2006 12:37

Well, yes, I woudl agree that it is v stressful. And I haven't ever had to deal with a failed treatment. If I'd had lots of failures before ds1 I might well not have tried again.

uwila · 01/03/2006 13:00

My goodness, CD. There's a lot going on in your life now, isn't there. Are you staying in West London then? Or are you still moving to the country?

I have no experience with fertility problems, just wanted to wish you luck. Wink

katierocket · 01/03/2006 13:08

Ah ok Elliott, I only said that as all of the clinics I've spoken to said that they would only accept you if referred by GP. which is actually a bit odd when you think about it since they are supposed to be the fertility experts.

CountessDracula · 01/03/2006 13:54

thanks uwila - yes we are staying yippeee¬!

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uwila · 01/03/2006 14:23

Oh yippee! I'm so happy for you. That sounds so stupid since we've never met. But I really felt bad for you. So glad you are staying. Grin

Regarding the refereal, I think the importance of a referral is that your insurance needs the referral for you to be covered. But, if your private insurance doesn't cover fertility treatment, then I don't think it would matter.

My SIL has been trying to get IVF on the NHS, but has been told no because her partner has children from a previous marriage. So it does sound like having one child will disqualify you on the NHS. But, it's probably worth having a chat with your GP just to see what the options are.

uwila · 01/03/2006 14:35

Does this help? \link{http://www.britishfertilitysociety.org.uk/public/factsheets/keyfacts.html\The British Fertility Society}

There's a link to the nice guidelines.

jenkel · 01/03/2006 14:58

We started our treatment with one clinic which we had a referal from our GP for, we then went to another clinic which we had no GP referal for, we just had to arrange to get my notes moved from one to the other. I am in Hertfordshire and they dont fund any IVF treatment at all.

FrayedKnot · 01/03/2006 15:14

CD, not all clinics need GP referrals.

Check out the HFEA website as they have details of all clinics (they are the body that clinics have to registered with).

Ring them and they will send you info pack with price lists & explanations of different types of treatment.

Off the top of my head, The Lister, Bridge Centre, & ARGC are three of the main ones in London.

Good luck with whatever you decide.

\link{http://www.hfea.gov.uk/Home\here}

FrayedKnot · 01/03/2006 15:15

I meant ring the clinics, not the HFEA, btw, sorry.

Pruni · 03/03/2006 20:56

CD I had typed out a big post the other day but something went awry.
I wanted to say, esp with the contacts you have, see if you can do a bit of digging into the backgrounds of the clinic owners.
I only say this because I post on an IVF message board which is related to a clinic chain (though not in London). It's becoming clear that this chain is ripping people off in quite subtle ways I think -and I did a very cursory internet search on the owners and one of them comes up with an interesting financial past.

And watch out where you buy your drugs: there was a report in the papers a year or two ago about how clinics mark up fertility drugs by ludicrous amounts and people get so into trusting their clinic that they don't shop around.

Good luck. It's not easy but a lot depends on individual reactions to the drugs - I found it not too bad, really. The three-week menopause is quite a shock though. Wink

DelGirl · 03/03/2006 22:38

good point pruni. I rang the suppliers direct for cost of menopur/merional/synarel etc

Earlybird · 03/03/2006 22:56

Hi CD - what a big decision/exciting! if you have time, do a search on IVF clinics, or scan subject lines for previous discussions. There have been quite a few threads on fertility clinics in London, and people's various experiences.

IIRC - top marks were given to Sam Abdullah (sp?) at the Lister in a fairly recent thread. Would that be a convenient location for you?

A couple of random thoughts - do you think you could give yourself shots? Or allow dh to do it? THat's a signigicant part of the IVF process. I'm fairly needle-phobic, but gritted my teeth and got on with it.

As far as telling at work - if it won't compromise your situation, I'd tell your immediate superior. If you embark on IVF, you will need to go to the clinic regularly, and sometimes on short notice (according to what's happening with your cycle/treatment). The last thing you need is to be stressed about how long/frequently you're away from the office....

Best of luck, and let us know how you progress...

OldieMum · 03/03/2006 23:18

Sounds like you have had most of your questions answered. I have a retroverted uterus. I have been through IVF nine times altogether. Having a retroverted uterus does no affect your chances of a successful pregnancy with IVF (my clinic assured me of this). However, it can make the final stage (embryo transfer) more difficult and the staff may need to do it using ultrasound to guide them. You should make sure they know about this (rather than practically putting their knees on my chest, as they had to the first time with me).

Pruni · 04/03/2006 09:06

Re time off etc, I found it useful, once I'd got my protocol, to take the two weeks around embryo transfer off - it's at this point that things get unpredictable, and the stress of sorting out time off without letting colleagues know that something's going on is much higher than you might imagine - don't forget the drugs will make you less able to cope with minor upsets etc.

ladymuck · 06/03/2006 11:51

CD- sorry to come to this so late - I've been in far Eastern Russia for a week. I've never experienced a 10 hour domestic flight before, especially on a Russain airline...

You know the mechanics of IVF from the thread. In terms of practicalities:-

Phone and get brochures from the main clinics:

\link{http://www.argc.co.uk\ARGC}, 13 Upper Wimpole Street, London, W1G 6LP, 0207 486 1230

\link{http://www.ivf.org.uk\Lister}, The Lister Hospital, Chelsea Bridge Road, London, SW1W 8RH, 020 7730 3417

The Bridge Centre and IVF Hammersmith are also good, but these are the top 2 in London for women in your age group. Have a look at the \link{http://www.hfea.gov.uk/Home\HFEA site} for more info - they break down the stats by age. However when you speak to the clinics ensure that you get their latest stats, as results do change over time.

Get any test results that you have from your GP and arrange a consultation with whichever one you like the look of, or both. Should set you back £200ish). Best money I've ever spent, especially after wasting 3 years on the NHS...

The consult will give you a lot more information and advise. It doesn't propel you into IVF automatically (though I suspect given your age they will put it on the agenda). You will come out very well informed as to what options you have. Most of the information can be worked out from websites etc, but if you have the cash I would pay for the consult.

Once you've had a consult then you can think and have counselling over what you want to do. You will just be very well informed as to what could happen.

If you do proceed with treatment there is a lot of going backwards and forwards for scans etc. And you'll need to be able to inject yourself with the drugs or otherwise find someone to do that and factor it in timewise. Choosing a location on the basis of ease of getting there is a good idea. I had one cycle where I had a 3-4 hour round trip every other day for scans. Not easy to hide that!

I went with Lister and found them to be very good. I fitted in all my scans at either 8:30 or lunchtime. From a work perspective the main issue is that you cannot be certain once you start a cycle as to when it will end, and you need to put aside a day for egg collection and a morning for them to put back the embryo (or 2). It is hard to keep your work diary that flexible, but you can feign illness! My workplace was very supportive and my boss knew, so covered for me when necessary.

Without being alarmist, every month counts, and there is a huge difference in the success results for 38-39 yos and 40-42 yos. I think for Lister it is a 25% success rate for the former and 15% for the latter. Of course the fact that you've got dd probably means that your personal rates are higher than these averages, but the age factor is a huge one.

I've had 4 IVFs at the Lister, and am very positive about them. It is a little bit of a factory approach (they have 7-12 egg collections each day, so along with ARGC are one of the busiest clinics), but the whole team were very good (and it is very much a team approach).

I think that the only other thing I would add is that it is hard not to get obsessive about the whole process. you will end up knowing more about your reproductive cycle than you woudl ever want to. It seemed very odd to be trackig numbers and sizes and follicles and hormone levels all the time.

Good luck with your decision

CountessDracula · 09/03/2006 14:10

Thanks ladymuck that's very helpful and comprehensive

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Lilysec · 29/03/2006 21:44

Went to the Bridge Centre in London, brilliant place, lovely staff. Had ICSI, now mum to beautiful baby girl.

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