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14yr old severe throat/tummy pain for 11 months. Thinking of killing himself.

31 replies

Joco34 · 26/11/2025 18:04

Back in January my DS had a stomach bug that made him vomit. Only lasted a few days but since then he has had stomach pain most days and in the last 3 months he has had severe throat pain.
Initial bloods and stools showed inflammation until July time then stools are clear. GPs quite dismissive but DS has become incredibly anxious because of this and had thoughts of killing himself because of the pain he is in.
Demanded a referral so he saw a paediatrician who felt his tummy and did an ultrasound. This came back clear.
Prescribed Mucogel, Omeprazole and Buscapan. Been on these for months and nothing helps.
She hasn't referred him on to Gastroenterology like she said she would. Gp's have chased this up as have I and still nothing. I've rang the secretary who says she'll enquire and still no update.
He has missed so much school because of the pain and the anxiety around the pain. School can only put him on the end of a long waiting list for outside help. He has seen an NHS trainee counsellor who spoke AT him. She declared he has high anxiety (because of the pain) so referred for CBT but says the wait is long!
Anxiety is now a major issue too because he is so worried about what the pain is. The anxiety is BECAUSE of the pain but I think the GPs and Consultant think it's all anxiety related and not taking the pain seriously.
We are now paying for private counselling for the anxiety but obviously the stomach pain needs addressing.
Last night he was crying saying he had thoughts of killing himself because he can't go on like this with no answers. Im ringing the GP again tomorrow and demanding an urgent referral.
Im so concerned about what this could be. The throat pain feels like knives he said. Don't believe it's reflux, plus the meds he's on should have sorted that.
Im advocating for him so hard but it's been 11 months and we aren't getting anywhere. I feel so sad for him. He doesn't go out anymore. The tests showed he isn't depressed and he says he doesn't feel that way either.

OP posts:
Are your children’s vaccines up to date?
Ratbag7 · 26/11/2025 18:49

This is awful, your poor son and you. I would accelerate it up to senior individual at your surgery or, at the worse, take him to A and e and refuse to move til you have answers?

nocoolnamesleft · 26/11/2025 18:59

Phone up the consultant’s secretary, tell them your son is getting suicidal over his symptoms. And if possible cry on the phone. If the secretary feels sorry for you, she will lean on the consultant to either review soon or refer on. Most sensible consultants keep their secretaries happy.

Glennponder · 26/11/2025 19:42

Phone 111
Option 2
He has disclosed suicidal ideation

Orangetoecat · 26/11/2025 21:23

Not reading and running. Take him up a&e every single time then dr after. Keep pushing and telling them the pain is real. I had severe gallbladder attacks pushed off as post natal depression and health anxiety, bloods at a&e didn't show gallbladder issues blah blah blah. I went up a&e during every attack and dr the morning after. Finally got an ultrasound and emergency surgery. Keep pushing, keep fighting for him. Tell him one day he will look back and realise this is all a memory. Wishing you all the best x

Orangetoecat · 26/11/2025 21:26

Also just thinking he probably needs an endoscopy. It could be a hiatal hernia brought on by vomiting.

momager22 · 26/11/2025 21:33

I can’t believe they haven’t done an endoscopy. Will be unpleasant but worth it.
Can you make a complaint via pals?

SpookyQ · 26/11/2025 21:36

This is awful!

Can you write exactly what you have here to an MP? In my experience all NHS staff jump when challenged by an MP.

MuteDS · 27/11/2025 16:48

Orangetoecat · 26/11/2025 21:26

Also just thinking he probably needs an endoscopy. It could be a hiatal hernia brought on by vomiting.

You cannot get hiatal hernia from few episodes of vomiting. It has to be repeattive episodes !

Orangetoecat · 28/11/2025 16:11

MuteDS · 27/11/2025 16:48

You cannot get hiatal hernia from few episodes of vomiting. It has to be repeattive episodes !

Why are you commenting on my response? Bored?
My dad would beg to differ as he had a severe vomiting episode that the doctors think caused his hernia. He may have had a little one and then it became worse.

Londonnight · 28/11/2025 16:33

Phone the consultant secretary and tell them what is going on. Let them know that you will take a cancellation at short notice. Hopefully your son will get seen ASAP. Also keep on at your GP.

If he does have scopes, these are always done under a GA on children. The bowel prep is the worst part.

Good luck, I hope you get sorted soon. My now adult son has crohns and it took two years of going back and forward to finally get a diagnoses when he was a child.

Hallywally · 28/11/2025 16:33

Can you afford to pay for him to go private? I know you shouldn’t have to, but it would massively speed things along.

PammieDooveOrangeJoof · 28/11/2025 16:34

I am so sorry to read this. I would suggest an endoscopy under sedation.
I have a hiatus hernia that as far as I am aware was not brought on my vomiting?!

they could take a biopsy and check for eosinophils oesophagitis.allergic inflammation in throat.

PammieDooveOrangeJoof · 28/11/2025 16:53

In this disease, white blood cells (eosinophils) collect in your esophagus and cause inflammation. Without treatment, this inflammation can lead to scar tissue and narrowing in your esophagus, so you have difficulty swallowing. For example, when you take a bite of food, that bite can’t easily move through your esophagus to your stomach. You may feel like something is stuck or moving slowly through your esophagus.
Eosinophilic esophagitis may cause heartburn, chest discomfort and regurgitation (spit up of food). Other less common symptoms are abdominal pain, nausea and vomiting.
It’s a chronic (long-term) disease. There’s no cure for it, but there are treatments that help address the inflammation and manage your symptoms. Most people with eosinophilic esophagitis will need treatment for the rest of their lives.

Eosinophils: Function, Range & Related Disorders

Eosinophils are a type of white blood cell that defends your body from parasites and allergens. Eosinophils make up less than 5% of all white blood cells.

https://my.clevelandclinic.org/health/body/23402-eosinophils

PammieDooveOrangeJoof · 28/11/2025 16:54

Just a thought. Good luck OP.

Joco34 · 28/11/2025 19:28

Thank you all for taking the time to reply.

OP posts:
Maddyjo · 28/11/2025 19:42

I had severe stomach pains loads of tests it was gallstones keyhole surgery done in a day. Could it be ibs that causes pain.

Frolie · 29/11/2025 23:14

he needs an urgent gastroscopy. He could have stomach ulcers and or gastritis or oesophagitis. If you can it’s worth paying to see a Gastro Consultant. Unfortunately my son was ‘urgently referred’ by the NHS to see a paediatric gastro - the appointment came through last month ,.. 2 years later. (This is after my chasing) If I hadn’t paid to see a consultant then my son would have missed two years of school. He was so unwell. Please feel free to DM me,

SummerFeverVenice · 29/11/2025 23:17

MuteDS · 27/11/2025 16:48

You cannot get hiatal hernia from few episodes of vomiting. It has to be repeattive episodes !

My DH has one and there is NO vomiting. The acid erosion and pain can happen below the part of the throat that has the gag reflex.

selfishex · 29/11/2025 23:20

Really feeling for your son. And you!
It's definitely time to make a big fuss.

muggart · 29/11/2025 23:27

sore throat can be associated with ME/ chronic fatigue syndrome and other autoimmune diseases.

i wonder if there could be some sort of food sensitivity behind this too. i would keep a food diary and be conscious of tracking how he feels after eating the top 9 allergens.

Anoninsomniac · 29/11/2025 23:38

Have you had him tested for H. Pylori?? I had lots of gastric issues from 9-18 years old. They eventually discovered the bacteria after I saw a different gp. Antibiotics were not fun, but sorted out alot of my symptoms…..

HoneyButterPopcorn · 29/11/2025 23:38

It really does sound like reflux! I’ve had it for a few years now - tried to ignore it until it flared up so badly I couldn’t eat.

The ozemprole doesn’t always work (it did the first time I took it but it took about 3 weeks for any effect). It doesn’t work on me these days. When I get bad flare ups even a mouthful of water makes me feel like someone is stabbing me in the stomach. Throat pain/discomfort is also part of the reflux thing (I had a throat ultrasound to check it out, and stool samples taken to make sure there wasn’t anything nasty in the gut, plus blood samples galore). First doctor diagnosed it as ‘it’s your age’ 🙄

DS has started to get similar symptoms too. Part of it is definately stress (he’s in final year). We sit and compare ‘food no-no’s’!

We have found that combination of FODMAP and GERD diet seems to work as not everyone has the same trigger foods. Flare ups do happen and these can mean eating mashed potato every meal for a few days. When I started to take it seriously I kept a food diary for two weeks (times and any symptoms) and that did help identify triggers.

Good posture helps - lots of moving around and exercise. Walking after meals (not slouching on the sofa). Not having empty stomach (small meals more frequently) or having too full a stomach.

Avoid trigger foods as much as you can - I can’t ever have rosemary, cinnamon, very dark chocolate, mint (yes MINT!!) - whereas some foods build up, so I know I can’t eat tomatoes or sugar every day, or have too much fatty cheese (but lactose free ones work fine for me). Sometimes I’ll eat something I’ve had before - and it feels like I’ve swallowed molten lead.

It’s absolutely miserable - it really is. People say ‘oh it’s just a bit of indigestion’ but it really can feel like a knife in the guts. It like your throat has been cut. Or that you have a golf ball wedged in your throat (and can’t breathe). You are almost too scared to eat - and too scared to have an empty stomach which can be just as painful. My sister has it too and she says she vomits most nights and has had to have the top of her bed elevated. She is on a lot of heavy medication which is her trigger but she can’t stop taking that.

I saw a dietician who gave me good advice (it’s mostly online) but she did write to my GP to request a load of tests to rule nasties out (so that would have helped with any stress). But yes, stress is a factor. DS says a warm bath help.

Get the doctors to do full bloods and stools - get things crossed off the list. Keep going back - if you aren’t satisfied, go back again or ask to see another doctor (my first doctor misdiagnosed this and an autoimmune issue - and recommended I drink herbal tea and spoke to a therapist because of was obviously just a bit of wind and ‘age’).

They won’t refer you these days (apparently) unless they think it’s cancer (so my doctor told me - this seems to be a recent thing). So get as many checks done so you can tick off the obvious things. It’s so worth spending money to speak to someone who specialises in the gut and digestion. Reflux can lead to some nasties if it’s not controlled - and it can be controlled.

Shakethedisease · 30/11/2025 00:09

I am so sorry you've not been taken seriously. Good suggestions here. I don't know much about gastro type problems but I would second writing to your MP. I would also write with a formal complaint to the chief exec of the hospital where they paediatrician saw you - don't even bother with PALS, just go round them - that you have not had the gastro referral you were promised even after repeated enquiries. Has he been prescribed any painkillers for his throat pain? Ask to see the pain team. Best of luck to you both. They make it so hard to push, but mums can do extreme things for their kids in moments of extreme need - you can do this. 💐

Nearly50omg · 30/11/2025 01:09

classic GORD and no not all the meds work for it it’s very complex and often linked to other things like food allergies/intolerances/coeliac disease etc. have you tried getting him to eat lemons or drink lemon juice in water to help? It neutralises the acid in the stomach. Cheaper versions of nexium don’t work on me it has to be the brand name one or I’m in absolute agony

YourTruthorMine · 30/11/2025 20:56

H. Pylori? my sister had agonising stomach pains for years, until she was treated

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