Can I get a copy of a record of an ambulance call out?

[elliejjtiny]

Not sure where it would be or even if such a thing exists. Ds is 17. I'm doing his PIP form and struggling to find enough evidence to send with it. In February he tripped over during a park run. I wasn't there (his grandad was good by the finish line) but several people came up to him and asked if he was ok. He went into shut down so an ambulance was called. His heart rate and blood pressure was really high , although that's normal for him when he is stressed. The paramedic talked to me on the phone and asked me if I wanted them to take him to hospital and I said no.

I'm assuming the paramedics would have had to fill in a form or something. Would it have been sent to the GP? Or somewhere else?

That isn't how the mobility descriptor works.
It isn't just the actual ability to walk.

You will get an assessment.

so for each descriptor you need to explain how his conditions affect him to carry those out.

for example cooking. Does he need supervision because he’s likely to cut himself due to hyper mobility and then not ask for help? Can he cut? Lift a saucepan full of water etc? If not state that. For example “DS has hyper mobility and this means his grip is weak and his wrists and arm are weak. He is unable to xxxxxxx due to this weakness. Therefore when cooking he needs xxxxxxx support”

my son has loads of medical evidence of his neurological condition and an autism diagnosis but despite having a file an inch thick none specifically mention everyday tasks - rather the diagnosis and medical descriptors of his limbs.

Thank you. He can make himself a sandwich but he would have a meltdown if we had run out of bread or if he couldn't eat lunch at 12:30 precisely. He wouldn't tell us if he cut himself so he would need supervision. Not sure about a saucepan of water, he only ever makes sandwiches so I don't know if he could lift a saucepan of water or not.

He wouldn't brush his teeth if I didn't prompt him twice and then hand him the brush. He will shower and wash his hair by himself though. Most of his problems are with communication though. I can't leave him on his own for very long because he won't ask for help if he needs it or answer the phone if I call him to check if he is ok.

Does he have selective mutism? It sounds like he does.
I successfully claimed for my DC who has autism and SM; the SM in particular is very life limiting as my DC can't advocate for themself or do anything independently. My DC has one friend who comes round and I did say this, but my DC only goes out when this friend takes them and never initiates or reciprocates.

DC gets high level care and mobility, mobility because they go nowhere alone and can't follow a route or problem solve if something goes wrong on their journey, they can't call us (won't carry a phone) or tell anyone around what is wrong. They now have a PA twice a week and she takes DC out for a walk or bike ride.

Not officially, although trying to get that sorted, but I'm pretty sure he does. There are so many things that he can't do because he doesn't speak. My mum was suggesting that he could get a part time job and I had to explain to her that I didn't think there was a job he could do without speaking. I can just imagine someone asking him a question if he was working in a shop and him shrugging and saying "urgh-er". We went to his school presentation evening a few months ago and I asked him where he wanted to sit. He was greeted enthusiastically by a girl who persuaded him to sit with her. He then ignored her for the entire evening.

Maybe a communication board would help him express himself non verbally. You don’t need diagnoses per se, PIP is based on how well or not he can manage day to day living including how much input and prompting is required to fulfil basic needs and keep him safe. Any evidence from hcp or assessments is useful.

A communication board only works if the barrier is speaking. For a lot of people with SM and autism, the barrier is communicating. So AAC doesn't work as their communication has shut down.

OP it might be helpful to join the SMiRA Facebook page and ask what people do on there in similar situations. They can possibly recommend resources, helpful professionals, links etc

Which is all well and good when such services exist and a nightmare when they don't.

Have you considered applying for an EHCP for college op?

Thank you. He can't use a communication board/aac device or PECS because he will literally curl himself into a ball and not engage at all, it's not just about speaking.

He was seen by camhs and a support worker from school briefly but he couldn't speak to them so they stopped seeing him. I have the discharge paperwork from camhs. I also have a report from my other child's social worker which says that he is unable to communicate his needs so I can send that in as well. I have been asking about an ehcp since it was called a statement, before he started school. He went to a special needs preschool, then he was on school action. Then when it changed he was on the SEN register. I asked about an ehcp to the senco and both primary and secondary sencos said that he wouldn't get it, that we would be welcome to apply for one ourselves but it would be a waste of time as he wouldn't qualify. My other son has an ehcp but his needs are much more severe than his brother and we had to go to mediation to get one.

A lot of people don't understand that the criteria change as youngsters get older. At year 7 and beyond, schools should consider independence and life skills development as well as academics, and at 14+ these are equally important as criteria that schools should consider. So he almost certainly would get EHCP now around independence and life skills related to communication and interaction. There are 4 areas : good health, education and employment, community participation and independent living.

He might then be able to look at a supported internship, for example, which would give him the chance of working without needing to pass an interview.

https://www.kids.org.uk/wp-content/uploads/2023/09/Preparing_for_Adulthood_with_SEN.pdf

https://irp-cdn.multiscreensite.com/28303aa1/files/uploaded/Post%2014%20personal%20development%20programme%20final%20%281%29.pdf

You may have to appeal, but it is possible to get an EHCP for the needs you describe. Sadly, some schools incorrectly tell parents their DC wouldn’t get or doesn’t need an EHCP.

Yes it’s saying g everything he needs prompting with.

for example today my ds who actually works as a software developer but has autism had an online physio apt at 3pm.

This is not part of his routine. So I supervised him out f it in his calender and setting reminders etc. put a prompt in my calender to remind him. Rang him earlier and no answer on his phone because as usual his phone is on silent in his room and he’s in the lounge. We’ve had the conversation about mobile being mobile for a reason and about hearing it 1000’s of times!

Because I got called away at work I couldn't ring to remind him and so at 3.20pm I rang him to check he’s on call - no he forgot.

It’s those things. Unless I teach it as a routine and it’s routine everything put in place is not fail safe because he doesn’t change habits (such as phone on silent) because he’s so stuck in a routine.

so translate that and it means he needs physical prompting for every apt and everything that’s not routine and therefore a FT carer always there to support him.