Out of my mind with worry part 2

[YourRubyMaker]

for anyone who was on the original thread sorry it’s been a hectic few days . Intensive care was horrific he kept trying to wake up and pull his ventilator out his bp was unreal so they kept having to sedate him ,. Managed to get back onto the ward on Tuesday, weds a blur but yesterday was really positive he got his own wheelchair and managed some light physio,. Today we’ll back to shit really we had planned to leave the ward for the first time and have dinner in the onsite canteen he’s since been sick and his heads swollen,. Waiting to see if he’s gonna get an emergency scan or not , just feel like it’s a rollercoaster and as soon as you think you’re getting somewhere you don’t . Still waiting on biopsy results which won’t be until next week , toddler is so unsettled won’t leave dh alone which is making life really hard as I can’t leave ds but need to go do washing etc , it’s a nightmare

I’m really struggling looking after the kids aswell , dh is great in the evenings and weekends but not here in the days or mornings , they’ve prescribed sleeping tablets but I’m too scared to take them and I’ve seen they come with a warning with the antibiotics so not sure what to do , scared to stop the antibiotics and scared to carry on ! I’ve seen so many doctors and nurses in the last 3 weeks if I go back i think they’ll think I’m mad

I'm sorry you didn't take to the motion sickness tablets well. There are a few different types so it may be worth asking a pharmacist?
You poor thing, it really is the pits isn't it?

I know the not sleeping is the worst but it's so worth carrying on and getting it gone! Or trying even over the counter sleep aids to help.

From what I remembered I had mine a couple weeks (and assumed it was viral so waited it out). Once I got antibiotics at that point, I had another week of feeling rough and then it resolved.

I promise you it will go. It feels like it'll last forever but it won't. You'll feel human again soon.

I understand the difficulty with the kids too. Can your DH make a little box of gifts with some new toys? Try and reduce expectations as much as you can. Sometimes we just can't be who we want to be!

Get yourself on the sofa with a blanket and give them some new things to play with and access to all the snacks and hopefully you'll be back on top soon.

Mine lived off a TV and cheerio diet when I first came down with hyperemesis! Gotta just get through.

I do sympathise, but you need to crack on and take the treatment. You will survive insomnia, you need the anti emetics if you are as ill as you say.

Being ill is hard. Sometimes the treatment is hard. Choose your hard. You can't just keep crying about how ill you are and not make some sacrifice towards getting better.

Wow.

As I said, I sympathise. I know what it’s like to struggle when ill. It’s tough. But it’s even tougher if you don’t have the treatment and you suffer for longer. I want her to get better, and get past this.

Tough love, yes. Unkindness - no, not at all and definitely not my style.

The epley manoeuvre is for benign posterior vestibular issues where your ear crystals have gone into the wrong place... labyrinthitis is different and due to an inner ear infection. Although people do seem to use the term for BPPV if it is true labyrinthitis the epley won't make any difference.

I'd recommend seeing a vestibular audiologist if it doesn't get better soon as they can work out which side / what's going on and give exercises to help.

@SilverBlue56 I've asked for my post to be removed. I'm sure you're right. My DH had the issue with ear crystals and the manoeuvre was amazing but he probably didn't have labyrinthitis even though that was mentioned when he saw the doctor. I wouldn't want anyone to use the manoeuvre wrongly. Thanks.

Agree, GPs tend to throw out all the possibilities at once as they don't really know which it is until a specialist works it out tbh! Glad the epley worked though - quick fix if that is the problem. The difference is the BPPV only happens in certain head positions not all the time like labyrinthitis (which comes with hearing loss on one side) or vestibular neuritis (no hearing loss)

@YourRubyMaker I completely empathise with the panic attacks. I had around eight months worth of them many years ago after a period of great stress (although nothing as bad as what you are going through AT ALL).

I found the following things helped:

Recognising that they are panic attacks and the sensations WILL pass

Not fighting them. If I felt my heart start to race, I told myself okay - you are going to start feeling hot and nauseous in a moment and 'other worldy' - like you are watching the scene from within a dream... You have felt this before and you know it will stop. Just go with it.

And once I accepted they were happening, rationalised what they were and acknowledged that it will end when it ends, I would focus on the sensations that I was feeling in an objective way. "Oh, I feel this" and "now I feel that". By being clinical in my thoughts, it took the panic element away a bit.

Slow breathing

Keeping busy even when they were happening. Distract yourself and go about tasks - especially ones you have to concentrate on.

Drinking a sugary drink

Telling your DH what's happening. "I'm okay, but I'm having a panic attack and feel strange, just so you know..."

And above all, tell yourself that there is a completely logical reason for what's happening. You are going through the most stressful time of your life. It's understandable and it WILL stop.

Of course, i can't help with the labrythitis, but if the panic attacks are happening on top of that, i hope this might help

I’ve had labyrinthitis - I remember walking to my kitchen in the middle of the night for a glass of water & just toppling down on the tiles. I had to crawl back to bed. Even when the worst of it subsided I would still feel dizzy when I shifted my head in a particular direction. I think these kind of viruses hit you when you’re already vulnerable from so much pressure. I wasn’t given any medication and it did eventually pass, but definitely take all that’s offered to you. Look into the head manipulation treatment - I didn’t have it but it can be helpful. Sending hugs & support. Keep going.

Thinking of you and your dc, @YourRubyMaker - hope you're feeling better

I’m still ill and they don’t know what’s wrong with me awaiting results and some refferals . Ds isn’t coping well at all and is now awaiting refferals for depression etc , it’s just a shit show tbh our whole world seems to have imploded and we’re just stuck here alone 😞 not sure how much more we can all take

But thanks for the nice message

Has anyone considered vestibular migraine? I had a friend with the same symptoms as you and they struggled for a diagnosis and eventually concluded it was likely this. Hope you have a little improvement soon x

Nobody’s suggesting anything they have taken 3 months to just refer me it’s ridiculous ,they think it might be etd now , feels like I’m walking on a cloud or falling constantly it’s horrible and affecting my life so much , I have seen about them online but everyone I see tells me I don’t have the typical symptoms of anything it’s so frustrating and I have the odd day where I think it’s improving and then now it’s the worst it’s been in months 😫 weirdly gets better on antibiotics but there’s no symptoms of infection so they won’t prescribe anything else

Op your sons story is a bit like mine. Blue lighted into resus with suspected stroke. Had a CT within minutes. But when I got a clear CT I was stuck on the ward for a week while I had lumber puncture and mri booked, cancelled and rebooted at every change over. Still not sure what it was years later.

Went in with a score one below the highest for risk of inament death. It was like this is serious. There's a real risk your about to die. Ah CT is clear I will forget about you whilst not agreeing to discharge either.

I developed sever vertigo overnight in my early 40s -lasted for 3 years. Was treated for menieres, then labyrinthitis then panic attacks. Kept a diary of when symptoms were worst. Mine turned out to be peri menopause. Have been on hrt since but if I try to stop patches the vertigo returns within 2 weeks. Keep a diary - it is horrible and nobody seems able to really help so I wish you a speedy recovery and at the very least a diagnosis xx

Can I pm you please

Can I pm you

This exact thing happened to me too. Was 42, fit and healthy and perfectly normal. Went to bed one night and woke up the next morning with severe vertigo. I was treated and tested for menieres and labyrinthitis also which helped a little but it was debilitating. Then I saw a different GP for a follow up and they suggested it may be perimenopause related and prescribed HRT. And it went away!!! I stayed on HRT for several years and came off it 2 years ago. Fortunately no vertigo since.

But I agree, its awful. I was in so much distress with it. it completely changed my life and affected every aspect of it. I was so miserable and desperate and totally thankful to the Dr who suggested trying the HRT.

Sorry I didn’t see this - have replied - hope it helps. You will get through this, although at the time, it feels like you won’t! It’s a process to get to the cause but you will get there. Rely on friends and family for help and support wherever you can.

Another one who has had all sorts of diagnosis for the reeling dizziness, finally decided it was vestibular migraines, but I think the vertigo comes back every time my HRT levels drop - or the vestibular migraine reappear. I had spells of it post birth as well so likely that was all hormonal. Feck knows how I will cope if they remove my HRT in the future...

Maybe the stress of your DS' illness was a trigger for this OP. It sounds like you've had some good advice here. I hope you start to feel better soon.