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I have cut out dairy from my diet yet baby still has symptoms?

46 replies

flyingbeet · 13/11/2024 18:22

I have cut out dairy from my diet. It's been four weeks and there is an improvement. Baby doesn't vomit as much anymore or cry as much. But she still is very fussy and irritable, we still get green mucousy poo with blood sometimes. Does anyone know what this could mean. Health visitor advised me to start hypoallergenic formula. I'm on the fence and would love to continue breastfeeding but don't want her to be in pain

OP posts:
Are your children’s vaccines up to date?
fashionqueen0123 · 14/11/2024 14:02

flyingbeet · 14/11/2024 12:23

@Superscientist That must have been so tough to find out all the allergens and then excluding them from your diet. Good on you for staying resilient. I struggle cutting out dairy sometimes 😫.

After cutting out a particular food from your diet how long does it take for symptoms to go away. I've been told it takes a whole month. So if I cut out soya I will need to wait and see. Then if it's something else too i'll need to wait another month? I don't know if that's how it works but I can't bare to wait so long to see my baby feel better. She always seems as if she is in pain.

Some babies see a much quicker improvement so fingers crossed yours does

teatoast8 · 14/11/2024 14:09

fashionqueen0123 · 14/11/2024 14:00

Lactose free milk is dairy and contains cow milk proteins . Maybe she doesn’t have cmpa anymore? Some kids grow out of it.

Breastmilk also contains lactose so it would be pointless for the OP to cut it out in her diet.

She does have it still. And yes I've cut it out as I'd rather not have a screaming in pain baby Confused

teatoast8 · 14/11/2024 14:10

fashionqueen0123 · 14/11/2024 14:00

Lactose free milk is dairy and contains cow milk proteins . Maybe she doesn’t have cmpa anymore? Some kids grow out of it.

Breastmilk also contains lactose so it would be pointless for the OP to cut it out in her diet.

And they've been broken right down.

teatoast8 · 14/11/2024 14:11

Aptamil Pepti 1 From Birth is a formula made with 100% whey protein, which is ideal for babies with an allergy to cow's milk. @fashionqueen0123

teatoast8 · 14/11/2024 14:14

lactose in breast milk does not affect babies with cow's milk protein allergy (CMPA):





Lactose: Human milk is full of lactose, which most babies and toddlers can digest.



CMPA: CMPA is an allergy to the proteins in cow's milk, not lactose. The amount of milk proteins in breast milk is much lower than in cow's milk.

Lactose in breastmilk doesn't affect cmpa babies. So yes best to cut it out.

fashionqueen0123 · 14/11/2024 15:48

teatoast8 · 14/11/2024 14:09

She does have it still. And yes I've cut it out as I'd rather not have a screaming in pain baby Confused

Cut out what? You must mean dairy and not lactose then. You also said on another post it was neocate, when someone else pointed this out to you. That’s not a lactose free milk.

Cutting out lactose doesn’t help a baby with cmpa. Breastmilk contains lactose. Which is what you’ve posted yourself below from what looks like a copy and paste from some ingredients?

It says we’ve said- that lactose and cmpa are two different things and lactose in breastmilk is not effecting a baby with cmpa.

It sounds like you had a milk for babies with cmpa- with the milk proteins broken down. That is completely different to a lactose free milk which we’d buy for children or adults to drink.

teatoast8 · 14/11/2024 16:02

fashionqueen0123 · 14/11/2024 15:48

Cut out what? You must mean dairy and not lactose then. You also said on another post it was neocate, when someone else pointed this out to you. That’s not a lactose free milk.

Cutting out lactose doesn’t help a baby with cmpa. Breastmilk contains lactose. Which is what you’ve posted yourself below from what looks like a copy and paste from some ingredients?

It says we’ve said- that lactose and cmpa are two different things and lactose in breastmilk is not effecting a baby with cmpa.

It sounds like you had a milk for babies with cmpa- with the milk proteins broken down. That is completely different to a lactose free milk which we’d buy for children or adults to drink.

We are talking about cmpa here not lactose intolerance

fashionqueen0123 · 14/11/2024 18:09

teatoast8 · 14/11/2024 16:02

We are talking about cmpa here not lactose intolerance

I know that. That’s what I’ve been trying to explain.

You said ‘My daughter is fine on lactose free milk. She has cmpa’

FlingThatCarrot · 15/11/2024 07:32

Soy free products- m&s plant kitchen cookies!
Booja booja chocolates
Bread actually quite hard to find soy free- jacksons brand is soy free or some aldi own brands
Ocado is really good for lots of options. You can get some decent vegan pastries too.

Oatly cream works well for cooking. I liked momo barista stuff for hot drinks. Judes df custard is good. I hated all vegan cheeses unless wanting very artificial burger type cheese flavour so I wouldn't bother with them again.

puffylovett1 · 15/11/2024 07:36

My CMPA baby was also allergic to sesame, soy and eggs, discovered at 6 months when weaning him. Soon as I cut those from my diet his symptoms started to improve.
allergy babies can often have more than one allergy.

Superscientist · 15/11/2024 09:32

FlingThatCarrot · 15/11/2024 07:32

Soy free products- m&s plant kitchen cookies!
Booja booja chocolates
Bread actually quite hard to find soy free- jacksons brand is soy free or some aldi own brands
Ocado is really good for lots of options. You can get some decent vegan pastries too.

Oatly cream works well for cooking. I liked momo barista stuff for hot drinks. Judes df custard is good. I hated all vegan cheeses unless wanting very artificial burger type cheese flavour so I wouldn't bother with them again.

For bread -
Tesco, Aldi or co-op own brands typically are soya free. Bakery bread like tiger loaves and baguettes are usually ok. Part baked baguettes, crumpets, bagel, pittas and wraps generally are soya free. Avoid Sainsbury's and Morrisons they very rarely have soya free bread. Not sure about Asda there isn't one local to me.

FlingThatCarrot · 15/11/2024 09:49

Superscientist · 15/11/2024 09:32

For bread -
Tesco, Aldi or co-op own brands typically are soya free. Bakery bread like tiger loaves and baguettes are usually ok. Part baked baguettes, crumpets, bagel, pittas and wraps generally are soya free. Avoid Sainsbury's and Morrisons they very rarely have soya free bread. Not sure about Asda there isn't one local to me.

We don't have a Tesco near us so I didn't know about those. Asda is hit and miss, some of their fresh stuff is ok. You're right sainsburys is awful, I think even their superstore often had nothing soya free expect maybe their fresh giraffe bread. M&S surprisingly bad, a lot of soy in their sliced loaves.

I was so surprised about the bread though, you'd never expect soya flour to be so common- all the big brands Warburton, Kingsmill, hovis are full of it. Sourdough is normally free of it. I found it so odd I still avoid it in bread even though my DD can now eat soy. The allergies really made me aware of some of the odd ingredients in stuff.

Op just watch some of the dairy replacements- if they're organic then they mostly won't have any of the added vitamins/ calcium. And some are full of gums/ stabilisers which I wasn't comfortable feeding DD when weaning until she was older.

Superscientist · 15/11/2024 10:18

@FlingThatCarrot I get my main shop from Sainsbury's as I prefer their veg but go to Tesco for bread and meat. My daughter is so sensitive to soya that she can't have meat from soya fed poultry. In Sainsbury's it's only their corn fed/ organic/ taste the difference ranges that's specifies feed. In Tesco their standard range is "grain fed" and she's fine with that.

It definitely opens up your mind to food. 50 years ago my daughters allergy list would be much shorter as the foods she reacts to probably wouldn't have been part of her diet - soya, pea protein (fine with peas) and tapioca spring to mind.

It's relatively easy to accommodate my daughters allergies if we stick to whole foods and minimise things in packaging we do ok. It's a generally healthier way to be too

Remmy123 · 15/11/2024 12:39

How do they know it's allergy related and not bowel issues?

teatoast8 · 15/11/2024 13:05

Remmy123 · 15/11/2024 12:39

How do they know it's allergy related and not bowel issues?

My baby is a totally different baby when she doesn't have dairy, soya and blueberries

flyingbeet · 15/11/2024 13:23

@minipie I was always so confused thinking about whether she has reflux or CMPA because I think the symptoms can be similar. She does get blood in her stools sometimes so I'm certain it's CMPA but also think it's caused reflux. She's not on any medication. My GP is not a very good one because they won't give her any medication even though I have requested the exact ones you have named. They say she's too young. I'm thinking of changing GP. Health visitor suggested to trial hypoallergenic formula. I have a very strong feeling I won't be successful since she rejects bottle and breastfeeds for comfort and to sleep. So I think best option is to keep a food diary and trial foods to see what upsets her.

@Superscientist I hope you and your daughter are doing better now. I've noticed my baby has good days and then sometimes bad days so just like how you kept a food dairy and were able to predict what food wasn't suiting her in around a week I'll try and do the same. Thanks!

OP posts:
flyingbeet · 15/11/2024 13:30

Thanks for everyone who suggested alternative foods!! It makes it so much easier to change my diet when I know what to shop for and what to avoid since soya can be found in a lot of foods.

Also has anyone had their baby do a skin prick test for allergies? When my daughter will be 5 months she has an appointment to see how things are going since she was in the neonatal unit for some time. On the letter they have stated that they will be able to do a skin prick test if we suspect she is allergic to something.

OP posts:
ArminTamzerian · 15/11/2024 13:41

flyingbeet · 14/11/2024 08:59

@CelticPromise @Lifeglowup Yeah I've had her checked for tongue tie and been to lactation consultant several times so I don't think there are any problems with the breastfeeding aspect.

My GP told me that I could get lactose free milk but I thought it had milk in it and is not suitable for CMPA. Does anyone know? Otherwise I don't mind getting oat milk.

Lactose free milk is milk. It doesn't sound.kuxh contain milk as is literally just milk.

Use oat milk, or pea. There are endless options now.

ArminTamzerian · 15/11/2024 13:43

teatoast8 · 14/11/2024 12:58

My daughter is fine on lactose free milk. She has cmpa

No. That's not at all how that works.

Superscientist · 15/11/2024 13:43

@flyingbeet bear in mind with delayed allergies, those that give gut symptoms are often delayed allergies, have a 2-72h time frame between you eating a food and seeing symptoms. I did see some quicker than this but they usually peaked between 24 and 48h.
Include everything in the food diary ingredients not just headline foods. The hardest foods to identify were onions and garlic! Include behaviours not just sick and nappy output. We start to realise that my daughter was harder to keep occupied when I had eaten something she reacted too (she was about 6 months at this point) and she had feeding aversions as the first sign. This actually started when she was days old but it took a very long time to attribute it to allergies.

My daughter hasn't had any skin pricks. These only pick up immediate allergies and hers are delayed. They are also unreliable in babies and give false negatives so symptoms and food diaries in babies with allergies trump a negative skin prick.

Try a different GP. We had a harder time with reflux treatment as our GP was only increasing her omperazole dose with weight and not moving her to higher doses when it wasn't working that well. She also categorical said it couldn't be a reaction to my breastmilk as she would be in hospital. This is more true of lactose intolerance than cmpa. I'm not sure she knew the difference. I wish we had tried a different GP.

Do you have the 6-8 week check booked in? When's that?

teatoast8 · 15/11/2024 17:11

ArminTamzerian · 15/11/2024 13:43

No. That's not at all how that works.

Well she does have cmpa.

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