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If not autism, then what could it be? Struggling to understand my child!

57 replies

AbbyDx · 27/09/2024 20:28

Hi, I posted a thread the other day concerning my son. He has just turned 2 a few weeks ago and has just started a morning nursery 5 days a week which is going good so far. He is a happy loving little boy, but I am struggling to understand what could be wrong with him. I’ve suspected autism but the more I think about it & how he is just doesn’t sit right with him having autism. He can’t talk, says maybe 2/3 words, and you can’t really understand them. Doesn’t use them in conversation just will randomly say them. He makes noises all the time, more screeching and grunting he will walk around going ‘ughhh’ in a deep tone most of the time or if he tries to talk he can’t but his way of doing so is almost like a ‘eeeee eee ee’ (hard to describe without hearing it) the sounds are sometimes unbearable to hear when you have it alllll day. And makes him look kinda odd because he is a big boy for his age (bless him!) he doesn’t really know how to follow instructions, he understands like ‘come on, let’s go’ . But in most situations he just really hasn’t got a clue and just does his own thing he really needs prompting and shown to do stuff and even then he doesn’t sometimes and gets bored very quickly . The things that worry me are his lack or understanding but also the things he likes so he likes to bang everything if he finds a post he will just hit it with his hand and this makes him smile if there is a bin in the park and he walks past he likes to go up to it and touch it and look inside, and also likes to hit and splash the water with his hands, if he has a bottle or a cup he has to hit it against his high chair or turn it upside down and spill the juice all over himself. Also, little holes in things in outdoor objects he likes to put his finger in the hole. Likes to empty stuff and chuck it all over the floor and just make a mess. Shakes his head sometimes just randomly. The older he is getting I can see how different he is to children his own age and how behind he is. He is under a pediatrician ect, has anyone else had a child similar to what I’ve described? He doesn’t have any autistic traits that you would initally think of. I know there could be something wrong but he just doesn’t seem to fit the boxes of being autistic. I’m going out of my mind daily trying to help him and i feel like I’m fighting a losing battle, it’s just all so hard and frustrating! Sorry for long post. x

OP posts:
WiserOlderElf · 28/09/2024 23:06

He sounds very very similar to my autistic 5 year old.

Magiccarpetforsale · 28/09/2024 23:13

planAplanB · 28/09/2024 23:01

"He is a happy loving little boy, but I am struggling to understand what could be wrong with him. I’ve suspected autism."

Having AUTISM doesn't mean something is WRONG WITH YOU.

Oh come on, you know what the OP means. She doesn’t know what is causing her DS to develop differently to other children his age and is asking for ideas. A language delay to the extent that the OP has mentioned is a reasonable sign that something is wrong!

Nowordsformethanks · 28/09/2024 23:43

He's only 2. He's being a little kid. He's exploring with sounds - banging, mouth sounds, etc. He'll still talk - we all develop at different speed.

Let him be a kid and allow him his own time to grow and develop in his own way before thinking "something is wrong with him" doing normal things as the individual he is. Every 'different' thing shouldn't be pathologised.

GildedRage · 28/09/2024 23:53

referral to the pediatrician and maybe genetic sequencing? there are umpteen genetic issues that affect brain development.

AbbyDx · 29/09/2024 08:25

Most of these responses are great and give me a better understanding hearing everyone’s experiences and advice, thanks so much!!
it’s all very daunting and I do just want to let him be a kid he’s a little quirky but that’s what makes him so funny and just who he is!
there is definitely something stopping him from being able to pronounce his words it’s like there is a barrier blocking anything from coming out. Since being in nursery he has tried to copy words he is coming home saying little things so pointing at the telly going ‘that’ so he is using them in context but very rarely. And when I say something wrong I don’t mean it in a horrible way. He’s my kid, I wouldn’t ever be so mean about him or any other child struggling. He had bloods for genetics but they can take a year to come back, a year!!! Madness.

OP posts:
Lougle · 29/09/2024 08:53

@AbbyDx put genetics to the back of your mind, if you can. DD1 had bloods taken for genetics 14 years ago. They still haven't found anything despite the geneticist being sure that her condition is genetic.

autienotnaughty · 29/09/2024 09:26

Alot of what you are describing sounds similar to my ds at that age who has asd.
Although he also had massive meltdowns, watched same tv shows over and over , did head shaking, tip toeing , echolalia and lining up toys.

I'm a big believer in early intervention, is nursery supporting? Does paediatrician have a plan? Ideally if it is asd it's easier if they go on the pathway before school (shorter wait list and not reliant on school leading)

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