Please someone help me with my daughters skin

[storypushers]

We have tried so many creams and we are getting nowhere. This is how she's woken up so no cream on yet. GP has referred us to dermatologist but that appointment isn't until June. My daughter (6) isn't wanting to go to school. And refuses to have her arms and legs out at all. Her face is so so dry. Please does anyone have any ideas?

We've tried these but can try them again if anyone thinks there're a miracle cure.
Zero base
Diprobase
Epiderm
E45
Lanisoh
Vaseline
Coconut oil
Aveeno

Poor thing. Rather than spending more money on creams that may or may not work can you afford to see a dermatologist privately? For £150-£200 you could have an initial consultation.

Poor kid! I think you need to seek a referral to a dermatologist and ask if they think she might have icthyosis.

I'd be willing to try. Do you know where I'd be best looking for a private dermatologist? It's new to me.

Try some hydrocortisone , might help until you see the dermatologist

Have you tried allergy testing?

I would Google and then look at their reviews and specialities. Have you got a private hospital near you?

My husband saw a dermatologist privately and now his GP is happy to prescribe the treatment on the NHS. For DH it was well worth it to finally have an effective treatment after years of going back and forth to the GP.

If you live anywhere needs Leeds, then I would recommend this private dermatologist. I took my son to see him. Two appointments and he was a different child. Expensive but worth it.

https://www.drfaheemlatheef.com/

Poir thing. Looks sore. Go back to gp and ask for urgent referral pathway (2 week) and to camhs for psych support play therapy etc as is causing anxiety
And they recommend private dermatologist and write letter to refer
Might be the nhs paed dermatologist does private then easy to transfer backto nhs

DS washes with Dermol and nothing else. You could add unperfumed epsom or Himalayan salt to any bathwater to soften it if in a hard water area and add Oilatum maybe?

But I agree with a PP about looking into allergies as well as getting a paed dermatologist consultation. DS2 had really sore dermatitis which turned out to be an allergy from something he was eating almost every day. When we took it out of his diet his skin improved.

Does she have any allergies??

My daughter was like this but she suffers from eczema and some allergies its not a good mix.
Although unconventional we were told by people to experiment avoiding one allergen at a time and see how she is.

We avoided dairy(she loves yer milk cheese and yogurt so eats a lot). Since stopping dairy we have not seen a flare up. She reacted to boiled egg once and some pure wheat bread. Since we realised and reduced exposure her skin is much better. We did go to paediatric dermatology and they upgraded her steroid plus hydrocortisone (only for flare ups) and now we are able to manage her skin with normal moisturiser.

For us the allergen avoidance was a game changer.
Good luck xx i feel your pain

We're about 90 minutes away, I've sent an enquiry. Thank you!

Thanks everyone. We're in the north east and I just can't find anywhere to go. At this point I'd pay whatever it takes. I'll keep looking.

I would suggest washing with QV gentle wash and using QV cream at least twice daily.
Avoid soap and any thing perfumed.
I agree that hydrocortisone ointment or cream once daily at night for 7 days then reduce to alternate days and then twice weekly is likely to help. It will not thin her skin. GPs and pharmacists worry but dermatology don’t and usually use stronger such as eumovate.

Daft question but how does she feel - is she very itchy or sore? Good indicator is that she doesn't appear to be scratching.
Have you done allergy testing?
A nice topical treatment is pure Cocoa Butter - solid soap like slivers that you buy by weight - not the jar stuff. Perhaps incorporate into post bath routine as something completely normal. It melts on contact with skin and smells nice too!
I knew someone who had cystic acne; it was horribly painful let alone appearance issue for a sensitive girl and it worked wonders!

Have a look at the Childs Farm range for her skin - has rave reviews for this sort of thing.

What do you use to wash her hair, face, body etc? What do you use in the washing machine? Does she do things like swimming?

Please don’t put hydrocortisone on her face unless advised by a Dr.

This is a really good face cream for my eczema…
https://www.boots.com/eucerin-atocontrol-face-care-cream-50ml-10165019
they make a body cream and bath/shower oil too, but haven’t tried those, so can’t comment.

Dexeryl is a great all over cream.

As others say, if you can afford to see a dermatologist privately, then I would take that option. I feel so frustrated as someone who works in the nhs saying that, but things just take forever these days😔

Hope you get it improving soon op.

Yes buy dermol lotion from pharmacy £12 or so for big bottle for washing with
Gp can prescribe it

Any dermatologist working from your local private hospital, or private clinic at your local NHS hospital, could probably fix this in their sleep. Unfortunately NHS access to dermatology is dire.

Google BUPA and Spire and see what's near you.

In the mean time I would go with washing with Dermol 500, avoiding any fragranced products of any kind.

Not clear if you have used products labelled 'cream' or 'ointment' but basically creams are a lot less hydrating than ointments. Whatever you use, you need to use masses - like a big tub every week.

My daughter had bad exzema and someone on here suggested that a lot of skin problems are caused by gut health (don't know if thats true!) and to try giving her kefir to drink. She now drinks a little kefir thing (like an actimel) every day and Ive seen a fast improvement.

How is her diet? Just in case there is something in the gut health theory

Hear my out, this could be allergy related. Dairy related possible. Also avoid storied creams. if you have any pets I'm sorry to say they'll be making this worse xx

My daughter also had bad eczema and we also started giving her a yakult every day to see if an improvement in gut health helped - have done so for the past 2 months and have also seen an improvement in skin. We also did other basic things, and like you I don't know whether there's anything in it. But I figured it wouldn't do any harm.

My daughter has quite dry skin and I use Weleda on her face. It seems to have really helped.

Cetraben is the only thing that works for me, twice a day

She needs ointment not creams.

50:50 ointment worked best for us.

Call the dermatologist and tell them you'd accept a cancellation at short notice .

My friends daughter had some sort of skin condition over winter last year and nothing worked. Eventually she came across tropic tamanu balm. No idea if it would help your child but maybe worth a try. It is fairly expensive though.