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Children's health

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Immunosuppressed child - any extra precautions to keep safe in school?

31 replies

FletchingStraight · 03/11/2023 18:16

My yr9 DD has just been put on immunosuppressants to manage a health condition. Thing is she caught Covid within days of returning to school in September & has been floored, had a huge flare up & been off school since. We're hoping this will calm her health condition with the aim of her returning slowly to school.

Does anyone have any experience of a clinically vulnerable child in a school setting & what extra precautions are they or school taking? We really don't want her to catch Covid again, she'll be immunised again once she's more stable.

We're already thinking of sitting in the best ventilated area of the classroom, lots of hand sanitiser & even considering masks although we'd like to avoid that if possible. We can tell her friends' parents to be mindful but tbh it's going to be (is) already rife in classrooms.

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drawingmaps · 08/11/2023 18:45

FletchingStraight · 08/11/2023 17:33

@drawingmaps thanks DH & I use these when we're out & about, she doesn't like them - very sensitive to smells & touch on her skin. Glad you're keeping the bugs at bay there are so many things around

Ah very fair. I would say that the FFP2 masks I find much less uncomfortable than cloth masks because they stick out (am autistic and it was a struggle at first), so it might be worth trying a few different kinds

Postapocalypticcowgirl · 08/11/2023 18:50

FletchingStraight · 06/11/2023 15:34

More really useful comments thank you all.

She's been ill for a while so is on a reduced timetable already so somethings we wont need to consider for a little while longer. Also DD won't want to be 'the special one' so when she's ready to start going back in I think we'll ask school to give a talk about virus hygiene, hand washing, coughing into elbow & not over your friends etc! I'll ask her friends parents to explain to their kids as they sit together in class so are the closest contacts (at least one of them caught Covid at the same time, possibly more but they didn't test). Will also ask about back of class/best ventilated area. Don't think they'll be keen to open windows with the weather changing so actually a portable HEPA filter is a great idea (thanks @Paupersgrave)

@helpmum2003 sorry your DC is also on this medication but it's really heartening to hear they're living normally.

@Lifechoicesinhindsight I'm not sure school will let me know about anything going around - I know previously during Covid it was considered a GDPR issue. She is up to date with vaccinations but hasn't ever had chickenpox. They don't want to immunise atm for this as it was more important to get this treatment started, I'll inform school of the importance of this. At least in theory most children have had it at this stage so risk should be a lot lower than if in primary.

@RoseAndRose thank you. unfortunately very few people are testing for Covid now. The only reason we knew previously was her friend whose parent works in Healthcare so needs to test did one & another has a long Covid parent. She actually tested negative for days on lfts it's only because her consultant checked via bloods that we know for sure she had it so it must've been a low viral load but it knocked her sideways. She'll get the latest vaccination once she stabilises a bit.

School should let you know about chickenpox, it's not a gdpr issue. They won't give the student's name but they should let you know of any cases in school.

I'm a teacher and every school I've worked in have let staff and students know of chickenpox and shingles cases.

blondieminx · 08/11/2023 19:07

Absolutely this, and what RoseAndRose said.

it needs to be understood that covid is airborne. We must open the windows and use HEPA. High grade masks ideally too.

a wisp of silk and some hand sanitizer are sadly not effective measures

also consider using the boots dual defence nasal spray and CPC mouthwash morning & night.

FletchingStraight · 08/11/2023 19:35

@blondieminx thankfully she'll be vaccinated before she returns so will have some additional protection. We managed to avoid Covid until March this year using cloth masks with a filter & she wore hers long after everyone else stopped. We'll try her again with the FFP3 but her skin irritates easily & something will be better than nothing

Thanks @Postapocalypticcowgirl it seems school want to do as little as possible & acknowledge her issues even less. I'll asked her immunologist to put it in a letter so they can't ignore it. I find it's also a timing issue, when Strep A was going around last year her friend contracted it but they didn't tell anyone because they were waiting to have confirmation from the swab which of course takes days we were then into Christmas hols! Guess what....she caught that too! Chickenpox is a slightly different affair though.

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TeamLoganHuntzberger · 09/11/2023 21:49

My DS has leukaemia and has remained in school during treatment. The only requirements from his team of specialists are for us to be informed of cases of chicken pox, measles and shingles. The school tend to ring about anything out of the usual
colds etc and let us know of notable outbreaks of sickness etc in his and his sisters class and let us make a decision. All that was required from the hospital (major UK paeds cancer base) was a letter to parents regarding letting the school know if children are off with CP shingles or measles, and for the school to pass that on. He’s under no restrictions whilst in school related to his cancer, but a few due to having a Hickman line.

FletchingStraight · 10/11/2023 09:29

@TeamLoganHuntzberger I'm so sorry your DS is dealing with leukaemia, I wish him all the very best for his treatment, as well as you & any family going through this with him. Thank you for the info.
DD has a rare disease so school haven't really understood her health needs to date.

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