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Tonsils and adenoids - Feedback

31 replies

Wavesand26 · 24/09/2023 21:17

Hello all
I used Mumsnet a lot when I was researching the benefits of having my son's tonsils and adenoids removed and since he had his operation a couple of months ago now I thought it might be helpful to come back and write about our experience in case it helps others.

Our son is nearly three and we went to our initial consultation with the ENT consultant due to noticing that our son would pause breathing when sleeping (diagnosed in the consultation as obstructive sleep apnoea). He had also snored since being a tiny baby which we'd always found endearing until we found out that it really isn't healthy for a child to be snoring to such an extent. I will list the other general concerns we had about our son:

  • recurrent tonsillitis, colds, sore throats. It started to seem like antibiotics weren't having an effect anymore. Everyone would tell us "oh it's normal to pick up constant bugs at nursery", but this was literally non stop, it felt like he was never free from a cold.
  • constant runny nose - never had a break from it
  • always tired, low energy, grumbly
  • pale complexion and tired looking
  • delayed speech and nasal sounding speech
  • Poor behaviour; hitting, scratching

During our first appointment with the ENT consultant and surgeon we were advised to have our son's adenoids and tonsils removed and were told that there would be no benefit to waiting and seeing if things just improved for him naturally. We were nervous but we went ahead and booked him in for his surgery two months later.
At this point I should mention that we did have to go down the private route. The NHS route would have taken months/years and it might still not have been approved anyway due to their strict criteria. For anyone who is interested to know, the whole procedure cost us £3500 and they offer payment plans. We know that we are extremely fortunate to be able to go this route, but I would strongly advise anyone to look into it if they are concerned about their child because the payment plans are really flexible and, honestly, this decision has been LIFE CHANGING for our son.

We had read from other parents' experience that their child was totally different (for the better) post surgery. We hoped that this would be the case for our son and that he'd feel noticeably better but we didn't want to get our hopes up. But wow, the difference is incredible. This is why I have written this post.

I'll list the things we have noticed in our son:

  • No longer snores AT ALL
  • Has no runny nose at all
  • Has tons more energy
  • Is generally much happier and the low-level grumbling has just completely stopped, presumably because he feels better in himself!
  • His speech has exploded!!! His pronunciation has drastically improved and he is picking up new words and phrases all the time
  • Behaviour has improved. He is no longer lashing out all the time, he still does it occasionally but much less

Sorry for the long post, but having seen what an amazing difference this operation has made to my son's life, I feel so passionately about making other people aware who might not realise how much of an impact these horrible tonsils and enlarged adenoids can have on our children. I am so relieved and grateful that we went through with it, because he is 100% a happier child because of it, and it makes me feel so sad to think about how uncomfortable he must have been before he had it done.

I am more than happy to answer any questions here or privately.

Thank you for reading.

OP posts:
Are your children’s vaccines up to date?
Wavesand26 · 30/04/2024 13:47

Don’t give it a seconds thought I’m sure he’ll be absolutely fine and going ahead with the surgery will change his life for the better. Focus on that.
My other child had a 6 hour surgery at 2 weeks old which made the prospect of my 3 year old having a 30 minute surgery much less daunting. Only telling you this as might help you gain a bit of perspective like it did for me when I was starting to worry too.
Youll be so glad you did it once it’s over!

OP posts:
AlwaysConfused198 · 30/04/2024 13:50

Wavesand26 · 30/04/2024 13:47

Don’t give it a seconds thought I’m sure he’ll be absolutely fine and going ahead with the surgery will change his life for the better. Focus on that.
My other child had a 6 hour surgery at 2 weeks old which made the prospect of my 3 year old having a 30 minute surgery much less daunting. Only telling you this as might help you gain a bit of perspective like it did for me when I was starting to worry too.
Youll be so glad you did it once it’s over!

That gives me so much perspective! Thank you .

He did say we will likely have a different child! I was really shocked when he checked his nose breathing ability and showed us the restrictions currently being caused !

This thread has just been so useful and I'm feeling so thankful I added him to my work policy in Covid on a whim

IAlwaysTellTheTruthEvenWhenILie · 17/06/2024 21:55

This thread has been very helpful. I hope all your children are doing well.

My nearly 4 year old has been suffering with ear infections (8 in total, 6 since February), breathing difficulties at night, and deafness in one ear. He's pale, dark circles under his eyes, constantly wipes his nose with his hand although it's not even running, gasps for air during the night. We've had a rough time of it with operations planned, then cancelled. But we finally saw an amazing ent today who has ds booked in for September. He told us his tonsils are grade 4.

Ds has been complaining (not long before the ear infections started in February) that his feet hurt and he can't walk (usually at the end of the day). I'm now realising it's likely all linked to the awful sleep / ear infections etc. poor kid. I used to think he just couldn't be bothered walking.

This thread has been very reassuring and I can't wait for it to come around for my son.

Wavesand26 · 18/06/2024 07:05

Starlight19 · 03/03/2024 00:07

@Wavesand26 @abbs1 brilliant to read these updates! My 3 year old is for this surgery in a couple of weeks. Hoping it solves A LOT of problems 🙏

How is your little one doing now Starlight19?

OP posts:
Wavesand26 · 18/06/2024 07:06

IAlwaysTellTheTruthEvenWhenILie · 17/06/2024 21:55

This thread has been very helpful. I hope all your children are doing well.

My nearly 4 year old has been suffering with ear infections (8 in total, 6 since February), breathing difficulties at night, and deafness in one ear. He's pale, dark circles under his eyes, constantly wipes his nose with his hand although it's not even running, gasps for air during the night. We've had a rough time of it with operations planned, then cancelled. But we finally saw an amazing ent today who has ds booked in for September. He told us his tonsils are grade 4.

Ds has been complaining (not long before the ear infections started in February) that his feet hurt and he can't walk (usually at the end of the day). I'm now realising it's likely all linked to the awful sleep / ear infections etc. poor kid. I used to think he just couldn't be bothered walking.

This thread has been very reassuring and I can't wait for it to come around for my son.

That's great news that you have been given a date. I hope everything goes well for you, I'm sure it will and you'll be so happy once it's done!

OP posts:
Slanketblanket · 18/06/2024 15:00

Just to add my dc had their adenoidectomy recently and within 3 weeks was sleeping through the night after waking every hour. Must have had apnea we hadn't realized. Waiting on a hearing test to follow up to see if glue ear has also resolved.

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