Surgery to correct mega prepuce

[zigzag1977]

Hi everyone, I needed some advice from any mothers out there whose sons have been through the same thing..

My 12-month old son has been diagnosed with congenital mega prepuce (essentually too much skin around his prepuce meaning when he pees it gets 'stuck' in his skin and gives the appearance of a balloon).

It doesn't cause him any discomfort, and I really didn't want him to go through an operation unless he had no choice, not least as it's under general anesthesia, but according to two pediatric urologists, I am told he will need to have this done, which I am gutted and terrified about!

It's quite a rare condition, and I haven't found much on the internet about the surgical procedure to rectify it, post-recovery and cosmetic appearance following this, so I wondered if anyone out there had experience of their child having this procedure and could tell me a little bit about how it went for them?

I appreciate any reply - thanks!

Hey,

I’ve seen your messge! my son is also ten now!

Hi all! Trying my luck here, although not posted in for a while this thread is still the best I can find on the topic..

My son has been diagnosed with megaprepuce at 2.5 yrs old. The paediatric urologist we are seeing has reccommended a staged approach to surgical treatment, meaning an initial surgery now to release the tight phimotic ring which will allow urination without ballooning (which has for him only ever been very mild/hardly noticeable anyway) and the foreskin to retract over the head of the glans.

The initial surgery will not remove any of the excess inner prepuce or deglove or reconstruct any of the shaft. His foreskin will remain intact. Although the appearance after this stage will still be very similar to what it is now the urologist suggests that in time (a few years) the penis may grow/remodel itself to the point that he may not need the more in-depth reconstructive surgery.

Curious as to whether anyone has experience with this approach? Most literature and anecdotal evidence in this thread is a single stage approach that recommends the reconstrction be done as early as possible to minimise psychological harm or distress, with the result of a penis with a normal circumsised appearance.

The urologist we are seeing says he has recently worked with experts in this field and specifically the megaprepuce condition in the UK (we are in Australia) and that this is the approach they favour.

Obviously the less invasive and intense a necessary surgery the better, but is this just prolonging the inevitable and at the cost of possible psychological issues as he becomes older?

Would love to hear anyone's opinion /thoughts or expereince with this!

Best wishes to all xx

Hi, my son had it pretty much from birth and was ballooning severely. It took six months trying to find out what was the matter.

i’m not entirely sure why this didn’t post properly. I’ve just noticed.
Anyway, I managed to get surgery for him at eight months old and they did a full circumcision

He’s is and there is no indication of any issues and it appears to be functioning normally no pain no discomfort, et cetera
He’s eight now, so maybe the stage approach is new in treating this condition

Happy to chat off here if you want me know