4 YEAR old had plagiocephally (wonky head) - what can we do

[noseynoonoo]

My DS has had a wonky head since he was about 2 months old. The NHS gave us incorrect advice at the time and there are times now when I could cry at the wonkiness of my son's head. When you look at his head face-on his right side is very much wider than his left.

Can someone help?

One of our DTs had it quite severely; we/our concerns were laughed at by GP et al, however, we were fortunate to be able to go private. Got the helmet and in 5 months the asymmetry was corrected. The NHS is living in the bloody stone age , it's absolutely criminal the way they belittle serious concerns parents have regards to such traumatic issue.
Do check out the Spanish clinics, I believe there's a surgical option...

Oh, sorry. It seemed to really help us... maybe it was the Jumperoo then?! He did spend ages boinging away in that. The treatment sounds good; hope everything goes well for you.

I can warmly recommend Dr Stephen Sandler at the Portland to get an objective view on what can be achieved. Yes, Portland sounds expensive but I had a one off consultation (£75) and he found out which osteopath in my area can provide treatment. HV (useless) and GP (sweet but ignorant) were no help at all. It was a thread on mumsnet that made me look into my DS's head shape and I am glad I did.

Don't let anyone fob you off. Best wishes to all of you.

Just found this post after searching the net trying to find support or suggestions around my sons misshaped head..... he is now 7 and I know I could have done so much more to help him!
Im in NZ and noticed his head at a couple months old, he grew so fast and was a beautiful baby boy. NHS are not the only ones that dismiss this, I was dismissed with - his hair will grow in NZ. I’m so angry this was never highlighted to me by midwife, plunket and doctors! Makes me feel so dumb! My sisters friend is a physio and suggested a few exercises I could do which def helped.
I recently cut his hair short and one ear is further forward than the other and the other is really prominent, one cheek bone is also slighty further forward.
It’s all consuming, I’m constantly looking at children’s and adults heads I feel like I have completely failed our first born. I have had many tears.
Reading the above comments has helped ease my mind that I am not the only one out there, I know this is a really old post but wondering how everyone is going a few years on..... do you still see the wonky ness, do your children notice it? I will never mention it to our son as don’t want him to have a complex as he doesn’t notice it yet..... just so grateful that he is an awesome little man otherwise. And I really want to focus on him rather than his head!
Thank you for letting me rant even if no one sees this it has made me feel a little better. Love from NZ xx

My daughter is almost 4 years old and she has flattening on her left side which has pushed her ear foward and caused the left side of her cheek to appear more prominent and narrower that the right side. The description of your sons head sounded similar so I was wondering did his look the same when he was 3 or 4 as it does now or did it get more noricable as he got older? I'm just so worried and I don't know what to expect.

Hi noseynoonoo?can you please tell me how your son’s head and face now,my 2and 1/2 yrs old has plagoicephally that killing me now,what can I do for her anybody advise me???

Hi Chislemum,
My 2and 1/2 daughter has plagoicephally,What do you think ?Can Dr Stephen Sandler help me please, I get lots of stress for that

My son is 12 and I was also fobbed off, it's noticeable when he's had a hair cut especially. I feel so sorry for him.

This may or may not be helpful but think about how many adults you encounter and how uncommon it is to be thinking about the shapes of their heads compared with other physical features.

Mine is a bit wonky but I didn't realise at all until I shaved it age 18 (and at this point it wasn't my biggest problem looks-wise).

Hi @noseynoonoo my daughter is 3.5 years old and is facing the same problem as your son. could you please tell me if it has improved in the last 5-6 years or you feel ts still the same?

Hi, will you please update us. I hope he is much better.

Did he ever notice that ?
Or anyone ? I hope he is much better now

Hi, I wonder if you see any improvement ?

Did you see any improvement?

Hi, did you notice any improvement ?

He's definitely still got a wonky head at 12 years old. I can only hope he doesnt go bald!

I'd also say how unimpressed I ended up being with the Children's Centre. I raised another issue with them (which I cant detail as it would be very outing) and they totally misdiagnosed it and actually suggest actions that did more harm than good- so I wouldnt recommend it if it still exists.

Did he notice himself ? How is he now ? Did you see more improvement?

Hi, I know this is very very long after and your son may be 15 now @noseynoonoo but was just hoping that you would see this and respond? Did you ever do anything further with your son’s head, how is he now?

My son is 4 now and I constantly feel so sad because of exactly the same reasons you and other posters mentioned. Dr & paediatrician told me hair will make it fine as he grows older and he will grow into it etc and as a new mum I knew no better! I feel awful I didn’t look into private options.

Hello, my son is 17 now.
Unfortunately nothing we can do now.
We think he will lose his hair - at least hair transplants are acceptable these days!

I have regrets but we can't change things.