nappyaddict on Wed 06-May-09 01:00:43
"Out of interest cory, emkana and any other mums with children who have disabilities, does the phrase actually offend you, as you didn't end up with completely healthy babies and it could imply that an unhealthy baby wouldn't be wanted? "
No, I actually think the phrase is about right for me. All that did matter to me was a healthy baby. I would have been prepared to have paid for that with a very high price of pain.
But I realise my attitude might be because of the nature of dcs disabilities and that this is not the same for everyone.
Their problem is not learning difficulties or seeing the world in a different way, as you do if you're on the autistic spectrum: it's chronic pain (in dd's case severe chronic pain).
So it is difficult for me to say, 'oh, but I think my baby is perfect as she is, her disability is just part of who she is, I wouldn't want her different'.
This can't be compared to what it would have been like for me to live for a year or two with the afterpain of infected stitches or whatever (I did that too actually).
Dd is 12, she's been in pain since she was 7, it is quite likely that her whole life will be like this.
Even if I had died in childbirth, I would still have had 30 odd years free of pain and fear: it's unlikely that dd will ever know what that feels like.
After all, if it was me coming home crying with pain and exhaustion at 3.30 every afternoon and going straight to bed, then crying with pain and fear the next morning when I had to get up- I wouldn't want my family to say, 'oh, but that is just part of who Cory is, we wouldn't want her different, we think she's perfect as she is'.
Ending up with a baby wasn't all that mattered to me, because 12 years later I still have to watch that baby in pain.
So no, I don't mind if someone says something to the effect that dd's body isn't perfect. That idea had occurred.
Sorry to be so miserable and negative, but on Friday I go to have my second baby diagnosed. He is the same age as dd was when it started, his pains are starting now and he knows what they mean .
I do realise that I'm on the wrong thread and the last thing I would want is to trivialise anyone's experience of PND or birth trauma. I do wish there was more support for mothers after giving birth, easier access to debriefing etc. It should be possible to provide that and adequate support for the parents of disabled children.