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Bereavement

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I need to weep and wail...

47 replies

PictureThis · 24/10/2009 11:41

Yesterday afternoon, my beautiful, wonderful, invincible Mum told me she has been diagnosed with terminal cancer. She was being investigated for gall stones and it was during the ultra sound scan, shadows were noted on her liver. Further tests have shown she has multiple metastises (secondary tumours) on her liver which are inoperable. She is going to have a colonoscopy next thursday as the general feeling is she has got a primary tumour in her bowel. Palliative treatment has been discussed but she is very clear that this will not cure her of the cancer. She is such a brave woman. She has managed to keep all this to herself until now. She hasn't wanted to worry any of the family. She has even kept it from my Dad and they are such a close team.
We are all utterly utterly devastated. She is only 61 and I can't bear the thought of losing her. I'm now a MW but worked as an RN many moons ago and I know potentially how little time she has left. She hasn't gone into the realms of life expectancy with her consultant yet and I'm certainly not going to tell her.
My DH and my Dad have been away and only came back this morning. My poor Dad crumpled when Mum told him...I've never seen him cry before. Never in a million years did I think that either of my parents would be going this soon and that I would have the need to write anything on this thread.

My parents haven't told my brother or my two sisters yet but I have promised Mum that I will be strong and support them and be what ever she needs me to be.

Of course we are going to make the most of the time we have left but I keep getting side swiped by grief. I have a photo of me, Mum and Dad in a frame on the landing and yesterday when I glanced at it, it suddenly hit home that in a few months this is all we're going to have left.

I apologise for the long ramble

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maggie61 · 24/10/2009 19:12

so sorry to hear about your mum,just wanted to give you a little glimmer of hope, my aunt was diagnosed nov 2007 with bowel ptimary and liver mets, she had bowel surgery and chemo, she now has bone mets and things are not looking good , they doctors have said a few weeks for her prognosis, she is 63.

just thought it may give you a bit of a guide.

PictureThis · 24/10/2009 20:06

Maggie, you have made my heart leap in a funny kind of way. I will hold onto that for now. Thank you. I am so sorry for your Aunt, you and your family. 63 is no age at all. She would have been diagnosed at the same age my Mum is now.

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Vidanueva · 24/10/2009 20:23

It is too soon, isn´t it? My Mum has small cell lung cancer and I am watching the possible lasts like a hawk. Last Christmas? Last birthday? On a bad day, I just want to grieve but realistically, it isn´t time yet. This is what I have got and the only option is to make the most of it.

On a very practical note, in the UK system, at least, your little sister could put off her finals for a year. My brother had to do this when our older brother died. Everyone grieves in a different way, your sister may well throw herself into work but if she can´t, there should be options that mean her degree will be safe.

Enjoy the US, as much as you can and just go with the bad moments. Take care.

Frrrightattendant · 24/10/2009 20:36

Picture, I am really sorry, you poor thing

Fwiw I had a boyfriend who had bowel cancer after we broke up...he had liver mets, this was about 6 years ago and he is still travelling the world and doing fine.

Nobody can say how long she may have, but I hope it does give her enough time to feel as 'ready' as she can be and make some good memories with you all.

Thinking of you x

PictureThis · 27/01/2010 16:22

So - here's an update.

We went to Florida. Mum told my youngest sister just before we left. She took it surprisingly well. In fact I'm the one who fell to pieces. We had a wonderful holiday, a real memory keeper.
Just a week after we got back Mum was admitted to hospital with a bowel obstruction which the doctors managed to resolve and then went on to have a right hemi colectomy. Unfortunately her consultant couldn't remove all of the primary bowel tumour because it had too good a blood supply to it - what a blow. In addition to that he said there was a lot of activity going on in her liver. Obviously this wasn't the best news but I said to mum it could have been worse. She came home from hospital just in time for Christmas. We had a fairly good Christmas, the only thing was my brother didn't come, his girlfriend and I had had words the Christmas before and despite my best efforts she point blank refuses to speak to me. So my brother chose to spend Christmas with her and her son instead. Mum and Dad pretended they didn't mind but it has upset them hugely and I am finding it very difficult to understand his reasons.
Mum started chemo last week. The day before she started it she insisted on painting the hall, porch and dining room. I told her she was using up her nervous energy, Dad said "long may it continue" .
One week on she still looks well but is starting to feel the effects of the drugs. Her energy levels are lower and she was admitted to hospital over the weekend suffering from chest pain. The doctors have decided she now has angina - something she refutes - "how can I possibly have developed angina within a week darling?" I think 'when did my mum start getting old?'
She started a diary which she insisted I read. It's lovely reading it because I can hear her narrating it. Heartbreakingly an entry reads ' PictureThis thinks I am burning up my nervous energy before chemo starts tomorrow, I think I am nesting but in the reverse.' DD and I went to see her today, I popped in to drop some lunch off for her. Unfortunately DD has a cold so no seeing Mormor for her. Instead, they just waved through the window to each other and blew each other lots of kisses.

I am struggling girls. God knows how my mum and dad are coping but I feel like I am so tightly strung at times I could snap. I have a heavy feeling in my chest all the time and I'm crying as I write this but in funny kind of way it's therapeutic. Swings and roundabouts...
I know she's not at death's door yet but I can't stop thinking about her dying. Is this normal or am I slighty deranged?
Thanks for listening.

OP posts:
Comewhinewithme · 27/01/2010 16:25

Keep posting we are all here for you.
I am sobbing at the nesting in reverse.

ajandjjmum · 27/01/2010 16:38

PictureThis
It's so hard to find anything to say that might comfort you - other than how lucky are you to have such a wonderful Mum - and she must be for you to care so deeply.
Also, you know you have limited time and will not waste one second with her. You have time to talk to her and tell her the things that matter.

drivinmecrazy · 27/01/2010 16:38

My Dad bravely fought colon, liver and lung cancer for four years. It was like being on a roller coaster, unable to get off. The tremendous highs when treatment was going well, and the hellish lows when we thought the end was beginning.
But through it all he was there, making memories for my DDs, treasured times which we all take comfort from now nearly 2 years later.
I believe that the quality of the last years were a gift. We knew our time together was limited and we appreciated every day he was with us in a way we never would have other wise.
I would swing from a state of denial to sheer panic and grief on a daily basis, and looking back now really don't understand how we all lived through such stress, but we did.
As my Dad helpfully said once 'We all have to carry on living til the last otherwise all we are doing is waiting to die'. That is what he did, he lived until he could live no more but left us with our precious memories (and a develish impish streak in my DD2 which I believe my Dad is still nurturing and encouraging [happy] )
And don't forget, it's the journey not the final destination that really counts and is remembered.

PictureThis · 27/01/2010 16:39

thank you

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FabIsGoingToBeFabIn2010 · 27/01/2010 16:47

I am so so sorry for you and also really that someone is losing their mum who is well loved and will be missed.

OrmRenewed · 27/01/2010 16:49

How sad. I am so sorry picture this

RollBaubleUnderTree · 27/01/2010 16:50

You are experiencing anticipatory grief which is completly normal and very healthy. It may well mean that when the worst happens you will find is easier to deal with. That was the case for me. Still hurt like hell when my Mum died but the pain had been spread over a few months. When my Dad died last year very suddenly I felt I had been hit with a truck.

I really admire the openess and honesty you and your parents share. It is so much better to be open and honest with your feelings and the prognosis. My parents covered it all up to 'protect' us and I am still trying to deal with my feelings about that nearly 6 years later.

Your Mum sounds lovely. I am so sorry.

Hassled · 27/01/2010 16:56

I'm so sorry. She sounds like a wonderful woman - I'm so glad Florida went well.

You mentioned hearing her read your DD a story - could you record her the next time? I miss the sound of my parents' voices more than anything - I always wish I'd recorded them. And find out everything about her family tree, childhood memories, her parents etc. - get it all preserved because even if you don't feel you need it, your DD might one day. The diary is a wonderful idea. I will be thinking of you - I went through this many years ago and it is a hideous sort of limbo to be in.

PictureThis · 27/01/2010 17:11

Hassled, that is a really good idea recording her telling DD a story. When we were in Florida I have some lovely footage on camcorder of Mum teaching DD to swim. I know that I am going to treasure this piece of film. Just after she was diagnosed I bought Mum a book called 'dear Grandma' and it's a journal of my Mums life. In it she is asked to write down things like her favourite childhood memory, how she and Dad met, what their wedding was like, what I was like when I was little, how she felt when she saw DD for the first time (she was there when DD was born) etc so it will be a fabulous record for DD. We've already got a recipe journal that mum has written all her recipes and tips in and will give to me to add to.

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PictureThis · 17/11/2010 17:55

Update number 2:

We are still here over a year on from the intial diagnosis. We have had the most wonderful year building memories, enjoying time together making that time together matter.

We saw the Oncologist on Monday and the news is we have now reached the end of the road. Tumours are springing up all over the place internally and there is nothing more they can do. 2-3 months is what we're looking at now. I was almost convinced they had the wrong CT results because Mum looks and feels so well at the moment. She's not even lost any of her hair from the chemo. I keep saying she's just a complete fraud Smile. I know we thought we had less than six months a year ago, so in many respects we've been blessed with another 6-9months but it's still not enough. I don't suppose it ever will be.
Mum has done her Christmas shopping. We've been on a silver jewellery workshop together and made some Christmas gifts. Mum has made DD a beautiful silver charm for a bracelet she bought for her when she was christened. Every Christmas and Birthday DD has received a charm for the bracelet. She's only 3 so still far too young to wear this most precious gift but when she grows up she will understand the importance of it. Mum made my sister a pendant. It has an imprint of her ring fingerprint on it and on the back it reads 'with you always X' . My brother has got a set of cufflinks with her thumbprints on them and on the back the simple message 'Love You'. It was incredibly emotional for both of us picking her gifts this Christmas because they mean so much.

Mum convinced Dad they needed their bedroom redecorating which is now nearly done and I helped her hang her curtains yesterday. While I was doing it her wardrobe door was ajar and for a split second I thought about life when she's gone and her clothes smelling of her and that's what we'll have left. Later Dad told me that he won't be decorating the bedroom again 'because your mother is in every part of it'. It made me cry until my chest hurt.
I heard a song by Josh Groban the other day called 'To where you are'. It had me in floods of tears which was unfortunate as I was driving at the time.

DH, DD and I are booked to go to Lanzarote in January and I'm going to cancel it. How can we possibly go away with so much uncertainty. Simple tasks are proving challenging at the moment because my mind is running at 100mph. However whenever it gets too much I just have to look at my darling Mum who is a constant source of inspiration to me. She's is the bravest and most courageous woman I have ever met and I'm very proud to call her Mum.

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bumpybecky · 17/11/2010 18:06

PictureThis, I just read your thread for the first time, I saw it was started in October, but didn't realise it was last year. How fantastic that you've had this time with your wonderful Mum :)

I'm so sorry about her diagnosis. She sounds like a fantastic woman xxx

onlyjoking9329 · 18/11/2010 18:17

Sorry to hear that the latest news is not good.
Sounds like you have made lots of memories along the way, it's entirely normal to feel all sorts of feelings whilst in this limbo phase, be kind to yourselves.
Can you get your mum to record a message for your Dd to go inside a Teddy bear?

PictureThis · 18/11/2010 22:43

Do you know, I read one of your posts about you wanting Steve to do it for the children and I thought what a wonderful idea so OJ that is on my to do list for this weekend. Thank you for the idea.....fabulous.

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spilttheteaagain · 20/11/2010 20:15

PictureThis I am so sorry you're facing such a terrible loss. You and your mum sound amazing and like you have such a special relationship.

You were so kind to me a few weeks ago when I lost my baby and I'm just so sorry you also have to face grief. Thank you for sharing the "What makes a mother" poem, I've read it many times over the last weeks.

I hope you are able to share one more special Christmas with your mother.

Wishing you and your family all the love and strength you need to bear this xx

PictureThis · 21/11/2010 14:39

Thank you so much for your kind words and wishes. I'm making the most of every day and take DD to see Mum as often as possible. We will make the most of this christmas for definite, photos, video the works. How are you feeling? I'm glad you like the poem and I'm especially pleased that it has brought you some comfort. Keep taking care of yourself lovely. xx

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ComingDownTheChimmley · 21/11/2010 15:24

bless you, Picture

I am sending love and strength x x x

spilttheteaagain · 28/11/2010 10:28

Thanks Picture, I'm surviving, sometimes ok and sometimes barely. It's a hard and crappy path. I hope you've had a good week, keep going you are doing great xx

PS To where you are is such a beautiful song

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