any other parents of hearing impaired children out there?

[2under2]

We've just found out that both our daughters (3.5 yrs, 22 months) have a moderate hearing loss due to glue ear. Thankfully our eldest should be able to get it sorted out with grommets, but the little one's placement of grommets was unsuccessful because her ear canals are just minute. The ENT surgeon is pretty certain that grommets won't be an option for several years and also that the glue won't just go away, so now we're looking into hearing aids. I was wondering if there's anyone else here who has a child with hearing aids?

moan away mabs- I spend my entire life moaning! Finally finally I got through to the consultant's secretary- haven't got the results yet though.......

Also had a letter this morning from the LEA about statementing. They included a sheet for ds1 to fill in saying what he would like. They have already receievd reports saying that his language development is at an 18 month level!!!!! I know it's a standard letter, but really would it be so difficult to remove the sheet for really obvious cases or do they enjoy rubbing our noses in it! Aaaggghhhh My friend said I should get ds1 to scribble on it and send that in.

I agree with your friend jimjams. Let your son express his wishes on the form and attach a note saying that it represented your son's wishes. That way they have no comeback wither way - you have asked ds1 to say what he would like - you have also enclosed evidence regarding his ability. What more could they want.

Hi all, our DD1, 2.9. has supected Progressive Deafness, She has been refered to the hospital where she will see the specialist. When she went to the hearing clinic, they told me that it was either fuild on the ears, which they tested there and it wasn't that, or high frequency hearing lost due to being premature. I then read the letter that she sent the specialist and it mentioned that she felt that DD had progressive deafness. I have no idea what this means for my daughter's future and what will happen next. I am hoping that they will give her hearing aids to help with her speech.
Anyones child got this form of deafness???

Oh.........and the letter said that her right ear drum was dull and thicken but her left looked healthy

Hello, this is my first post. This is one of my pet topics! We had the same thing with our youngest (who also happens to have Downs Syndrome). We were told all the same things as you, but eventually, did manage to find a surgeon in Bristol who fitted a set of mini-tubes when he was just 4. They have made a huge difference, have caused no problems and I now wish I'd pushed harder to have them fitted sooner. This operation is far more common in the States, they normally do it when the child is under 1, however small the ear drums are, but for various reasons, it seems to have gone out of fashion here.

While we were waiting for grommets, F did have hearing aids which did help, but no where near as dramatically as the grommets - at least it meant that we got his hearing checked more often!

Do email me off list if you want any more info.