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Behaviour/development

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Child with autism or just slow ?

47 replies

Graceymayx · 16/02/2019 00:22

I have a nearly 18 month old who was born at 37 +4 he says daaaaaa that’s like the only thing he says use to say maaaaa and nnnnn but that’s gone, he dosent point to anything either, and isn’t walking but started crawling at about 6/7 months ! Please if anyone can help would be greatly appreciated ! Also sits for ages playing with trains if this helps ?

OP posts:
JiltedJohnsJulie · 09/03/2019 06:52

Sorry Grace. I can't remember if you've done the Talking Point 18 months progress checker now that he's reached that age?

The signing classes sound like a nice idea Smile

Graceymayx · 20/03/2019 11:33

So we’re going to be having a hearing test, but hv coming back for further assessment to see how he plays !

OP posts:
Graceymayx · 21/03/2019 05:10

Also hv watching his behaviour as he plays laying down on a side and moves objects up and down like trains or cars etc ! I will update you more when hv comes out on 11th !

OP posts:
thebabysmellsofpooagain · 21/03/2019 07:16

@Graceymayx my LO does all these things too, the spinning on one foot has slowed down slightly, I'm hoping it's just DC learning to play x

May95 · 07/08/2019 18:15

Right so after many concerns and fighting for be listened to we had a SOGS assesment to which he scored quiet low he’s speach and language was of a 6 months old and are early support hub accepted at the panel now just waiting for appointments etc ! We also changed childminder who have noticed things and been so helpful

Mummy0ftwo12 · 07/08/2019 21:18

That sounds good OP, he is nearly two now?

May95 · 07/08/2019 21:50

Yes yes ! I’ve had to literally shout and jump to get this though ! He still dosent point or talk in any way which to me has just got the norm he will be starting nursery September so they will get some funding to help him which I’m happy about and have even allowed him to eat what he likes which is good as he ain’t gonna say it like normal sandwiches over the moon yesterday,

Mummy0ftwo12 · 08/08/2019 00:10

My DS didn't point until 2.4 and no single words until he was 3 and his understanding was equally delayed, and he scored highly on the m-chat, he doesn't have autism though.

Its good that your DS is getting extra funding in nursery but also look into speech therapy with someone who specialises in pre-schoolers that really helped us, even if you pay privately for them to go into nursery once a month to help the staff with communication goals. Oh and the teachmetotalk website is brilliant, it has a list of pre-verbal skills a toddler needs to develop before words come so you can see how many your DS has and what you need to work on.

Does he lead you by the hand towards what he wants? or try and use your hand as a tool e.g. push your hand towards a door knob if he wants it opened?

May95 · 08/08/2019 07:05

We’re being referred to speach and language also he starts nursery in September, and his eating is the same only eating what he wants will starve him self as I have tried the whole eat what I eat but he didn’t eat in 4 days so that was concerning aswell they’ve just told me to eat what he wants and add something new onto the plate each meal

MyHeartIsInCornwall · 09/08/2019 20:28

Hi. As others have said, usually at 18 months they would leave them anyway as all children develop at different rates and even if you suspect autism, they won’t do anything until age 2-3.

We have had concerns about our DS3 from around 18 months - 2 years of age. He started falling behind with milestones. Mainly we noticed this with his speech and general communication. He is now 3 years and 10 months and I would say his speech for the amount of words he can say is about a 2 year old (literally just 2) but his ability to use and put words together is less than this. He can sometimes speak in 3-4 word sentences, but More often it’s 1-2. I though he just had a speech delay initially. At 30 months, the HV said she had no concerns. Doesn’t answer to his name, doesn’t make eye contact with anyone but me, won’t point or look at things pointed out to him.

He started pre-school shortly after his 3rd birthday and after 3 months I asked them what they thought about his speech. He had progressed and did talk much more there than he does at home but they had concerns. Next thing the HV is visiting me and within 3 minutes of sitting down she told me they were querying autism. Could have knocked me down with a feather! At first I was completely adamant they’d got it wrong. But as time has gone on, and I have educated myself on the signs of autism as a spectrum, I think he is. He is on the assessment pathway now and started with SALTS on a 1-2-1 basis (did group sessions initially but didn’t work for him as too much noise and distractions), had initial report from paediatrician, had hearing and eye tests (both normal), podiatry for balance as he trips a lot and sways when running, (has heel cups) and portage for support at pre-school. It’s not a bad thing to make yourself aware of what the signs can be and what you can do as you are then well prepared to help your DC.

Just be prepared for them to say, they will see how he is in 6 months or so.

My nephew didn’t walk until he was 23 months and had to be massively encouraged even then. The paediatrician said he had really flexible ligaments. He also used to wrings his hands when excited and still does to this day (15!) but he isn’t autistic.

Bottom line is, all kids are different and you’re not wrong to be concerned and be proactive in this. Hope you make some progress with pushing forward with this.

May95 · 09/08/2019 21:54

Thank you MyHeartIsInCornwall
My sons changed childminder and is now one who knows about things and spots more in 6 weeks than my other one he had been going 5 times a week 4 hours a day sometimes more he’s now hand flapping and doing many more other autistic behaviours we have starts early support so salt team and peadtrition which is amazing compared to nothing is wrong with you child had to fight so hard for this as no one ever thought anything was wrong but infect looking at the SOGS assesment he is at least 6 months behind on peers and has 6 month communication skills

hennythe100footbird · 08/11/2019 18:11

@JiltedJohnsJulie @AladdinMum

So, you guys asked for an update when I had one, so here it is.

DC started preschool in September. I got called in to the office and they asked that I saw the GP to ask for a referral to the community paediatrician as they are outwardly displaying signs of Autism. Fast forward 2 weeks (and a lot of agro!) and we have got our referral! Obviously, this is not the end but we have a start.

And I have a sense of relief in the knowledge that I'm not going mental that I can see these things, I was right and the HV was in the wrong to fob me off so many times (the doctor even apologised profusely for the lack of support from the HV!) HV has tried to cover her back by sending the referral even though I told her I didn't want her involved and I would wait and see the GP (she's been hounding me since she found out I wanted to see the GP and what I wanted to see him for!)

Like I said, not an end but a definite start which is better than nothing! I may finally start to get somewhere because after all this time, DC is still exactly where they was the last time we discussed this, still eating the same things, still not sleeping, still hand flapping and spinning.........

Mummy0ftwo12 · 09/11/2019 13:49

Ah - know where you're coming from re the HV, luckily mine dropped all involvement once the GP referred to us to the Paed. I found that the Paed even without a diagnosis put extra help into place with nursery via the LEA and the LEA went into nursery every couple of terms to check that the extra support was being effective.

Your local council's website should have something called a SEND offer which describes the help available.

hennythe100footbird · 09/11/2019 14:36

@Mummy0ftwo12 thanks for that, I'll take a look and see what I can find.

It's just bloody mind boggling! I'm not sure whether to laugh or cry 😂😢

Mummy0ftwo12 · 09/11/2019 20:02

its scary i know, has he pointed yet?

hennythe100footbird · 09/11/2019 20:47

@Mummy0ftwo12 nope 😢

anthemsinger2019 · 18/11/2019 11:15

i remember being so worried about my little boy at that age.. up until his second birthday he was saying very little, mainly just noises, daddy and mammam... that was it.... i think i read every article i could find on autism, speech delay, development etc...
by the time his second birthday rolled around, he'd started trying to say words... and yesterday at 2 years and five months old he said:
"daddy, where did my blue holiday hat go? it's so nice!"
.. that's how quickly it comes.. try not to worry too much

hennythe100footbird · 18/11/2019 15:11

@anthemsinger2019 I'm so hoping that's what happens but I don't think it will 😢 there's lots of gabbling but no actual words. Although, MIL says that DC's uncle didn't speak until he was 2 and a half, then he just came out with full sentences!

We've got a paed's referral so we'll see how that goes 🤞

hennythe100footbird · 24/02/2020 15:02

@JiltedJohnsJulie @AladdinMum

More update for you.

Confirmed DC is autistic. Have just been awarded DLA.

AladdinMum · 24/02/2020 17:17

Many thanks for the update. The lack of pointing was concerning and lack of after 18M tends to normally be indicative of something else going on. However I am very glad that you were able to find the answers that you were looking for and you are receiving some support.

Sabu1234 · 24/03/2021 19:47

Hi @hennythe100footbird how is your dc doing, how is progressing? My dd is just like your ds when you started this thread. Would love to hear from you

Yas1362 · 31/07/2025 18:26

@Graceymayx Hi. How is your child doing now?

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