To think unless you've an autoimmune problem you don't understand?

[HCantThinkOfAUsername]

Willing to be told IABU.
I've SLE and a few other things going on.
I feel so incredibly lonely and my friends and family just seem to be fed up of my constant medical dramas. I HATE being like this.
Dp goes through stages where he is understanding and supportive then back to being fustrated at how much life has changed for us.
Is it just one of these things that you don't understand unless you have?
Anyone know how I can explain it to people?
Tried spoon theory already.

Ollivander84 you sound like my daughter! She is unique according to her immunologist. Interesting you have mono lateral vitiligo, my DD has bilateral (which I think is more common). The only patches on one side only are the ones which have resulted from injuries. They're also the first to re-pigment in sun or with Nuvb but they always lose it again.

We have such a long list of allergies and auto-immune diseases in our family that it would self indulgent to list them all. Sometimes I feel guilty that DH and I have passed in such a time bomb to our DC. But we were perfectly healthy when we had them!

I only have it on the back of my hand it stops at my knuckles. So strange! Nobody in our family has it either, started when I was about 28 and hasn't spread anywhere else. Apparently it's not very common in redheads either

Ooh vitiligo is very uncommon in red heads! I know two people who have had that unspreading vitiligo and both have remained static. Have you a thyroid problem or not?

It's hard for people and sometimes even family, to understand. Especially as autoimmunity is invisible illness. I'm sure even my gp's think I'm a hypocondriact!!!
I thankfully have finally met some people, who go through the same things, and I try to meet up with them, when we have a good day. I hope you find the support you need from your dh. Does he know enough about it?