Desperate with pain stopping sleep and wondering who can helpp

Thanks Statonaryace, glad the palitive care team could help with pain. I hope pain is not the reason you are up at the moment. I also hope you are getting good treatment for your cancer.

I agree palliative care sounds scary but it makes sense that they would know the most about making people comfortable to live the best life possible.

I do not think I have exausted the GP as all I have been offered is cocodamol and naproxcin so feel there are more options accessible to a GP which could be tried.

I have still not mannaged to fall asleep I tried a mindfullness meditation but only really rested and as soon as I fell asleep seemed to move and jolt myself awake. I then tried listening to a podcast with a heat pad as felt I would be comfortable and relaxed but did not mannage to get back to sleep. I have now done ssome stretches and think I may need to resign myself to having to work without being able to get more than a couple of hours sleep, but then do not know how I can keep awake all day. At least the weekend is coming and I should be able to arrange things to get some sleep when feeling more comfortable which is really pad for sleep cycles but I think needs must. It is just so loanly to be up in pain and it really helps to both write things down and know that others are awake.

Thanks the GP prescribed naproxcin for endometriosis without a PPI. Two weeks ago I had really bad pain after taking it for a couple of days. I then spoke to 111 who put me throgh to the OOH who got me assessed in A&E as they were concerned that I was also getting diarhea. A&E were happy that there was no gastric bleed and gave me omeprozole to take with the naproxcin.

However, taking omeprozole and naproxcin regularly as recommended by a nurse in my GP has resulted in a really intense noring pain in my upper stomach and being really bloated. I have had one looseish bowel movement but not diarrhea and have also just been a little bit sick but more just some water that I had drunk.

My concerns are that my stomach seems incredibly irritated and without being able to physically get to my GP I do not know how to get assessed over the weekend. I also worry that the nurse still said to take the naproxcin despite these side-affects and seems to think I have to do this to diagnose the pain but do not want to risk a gastric bleed.

I do not have a bath in the hotel I am staying in but a very hot shower does bring some relief / relax me. I feel a bath with epson salts would be good but have to go on a train for 2.5 hours later before I can get this. I had been finding a heatpad to be better than a hot water bottle , possibly because its easier to moldaround the pain.

The combination of fibro andother pain sounds horrible. Yes I will try a pharmacy in the morning to see if there is anything better I can take.

I am able to get ostio throgh my insurance so will try if the physieo does not work. So far I feel my first session has helped. A bit and the problem is much more stomach pain and then a pain from naproxcin.

That pigeon pose looks good.

I am not taking all I can in terms of painkillers. I have stopped taking the MNSAIDs as do not want to risk a gastric bleed with the pain I am in, but worry that this will mean that the GP will think I have not followed their advice and won’t treat me.

In the day the pain is not too bad and I have managed mostly without painkillers. However, it is night when things get this intense. I would like to have codeine without paracetamol as in the day would prefer not to take things which are sidating if having to work without enough sleep, to the extent I am sleeping inthe toilets at work. I would then like something to help me to sleep at night as feel if I had a couple of days sleep I would be much better able to mannage the pain.

I worry about calling 111 as do not want to inconvinience people when it is only pain and I have a GP appointment next week.

Thanks happyhedgehog, do you think the it would be a sensible use of resources to go to the walkin for this?

Stationary glad you are not in pain but its annoying to be woken by a wierd noise. I hope you enjoyed your breakfast.

Zoflorabore Thanks you have just made me cry as all the support on here is so much better than the understanding shown by any medical professional over the last 5 weeks. Once they ruled out an appendicitis I felt that no-one was interested in the pain.

I told the nurse when I went for an appointment with the GP that I was being woken from sleep and am feeling exausted to the point of falling asleep in the day and she just said that is quite common with bad pain and the lack of sleep was probably causing the daytime sleepiness. I fully appreciate this but I do not understand how they expect me to work when all I want to do is close my eyes.

I have been relluctant to take paracetamol in the day because I then can’t take the cocodamol if things get worse due to paracetamol dosing. I feel sepparate codeine would give me the option to take paracetamol and then codeine if a top-up was needed leaving a codeine for night. I also assume that I could say take a cocodamol at bed-time and then take another codeine after 4 hours if still struggling, as at the moment I do get about 1.5 to 2 hours sleep after taking cocodamol.

Thanks Sachh sorry to hear you are in pain. I do have a TENS machine at home. I am not sure where to put it for this pain thogh as it is an intence pulling pain in my stomach which is intermittant but intense and then milder but more constant pain in the leg and back.

I like a chamomile tea, it is very relaxing and I do find drinking warm water has a soothing affect from the inside.

Thanks Sachh this makes sense and thinking about it both the abdo pain and back pain probably share a simmilar x.

Crimson I believe this has been caused by endometriosis or post surgical adhesions. Over a month ago I had a verry intense stomach lower left sided pelvic pain which I fainted from. Since then I have had waves of very seveer pulling paon the left handside of my pelvis. This has been investigated with a internal scan and x-ray but both were clear. Given the intensity of pain the GP thought it would be appendicitis or another cause requiring surrgery but this was ruled out by the hospital.

Throughout I have had pain in my leg / hip but we have not known if I have done something by falling, or it is referred pain from the stomach. The physieo feels that what has now happened is I have tensed muscles with pain and the spasoming is causing irritation to thenurve.

I am therefore unsure if I should be pushing for more painrelief to help everything rebalnce with physieo stretches,
Being seen by the gynae surgeon who did my opperation
Other investigations, particularly bowel ones for the stomach pain
Or seeing people for the sciatica type pain.

I wish things were more simple and it was obvious where to spend money to help it.

Thanks all feeling much better now. I only have the stomach pain and pelvic pain which feels more bearable now it is light. Just had a meeting and trying to decide how long to keep on my everything is fine mask before giving in and remote working.

Zoflorabore Oit sounds like you have a good plan for handling things. Your dr is right about regaining control as its verry individual what sideaffects you will put up for what level of functioning.