Left to become malnurished in hospital as doctor bullies vulnerable disabled adult

[Lola0401]

Am i being unreasonable to expect to not be bullied and intimidated whilst in hospital care by their staff? My body getting weaker as days go on through lack of nutition?
I am a disabled, vulnerable adult with complex needs. I have been bedbound for 12 months and have 24/7 care.
I am due to have my left leg amputated in 3 weeks time.
I have had no nutrition for 15 days now, and am on IV fluids on and off, due to worsening underlying conditions. I have battled this for over 3 years with varying ways of keeping me nourished when these episodes (lasting weeks on end) happen including feeding tubes.
I have been in hospital for 1 week now and with no evidence (as the dr stated) the drs are happy to dischatged me without any fluids or nutritients that my body desperately needs.
As a teenager i had an eating disorder. Today when i told the dr i have lost a stone in weight since last week he responded "to be honest you look like you could do with loosing a bit anyway." Upon hearing this i got very upset and requested he leaves (i just wanted to run away but being bedbound i cant). He stood at the bottom of my bed, arms folded, glaring silently at me, refusing to move for over 10 minutes despite many further requests from both me and my mum.
My mum stood up and requested he leaves, he continued to stand glaring at me. I felt very vulnerable and intimidated and was getting more and more distressed.
I have spent 12 years in and out of different hospitals. Different treatments and surgeries. We could write a book about my healtg and hospital stays but this incident really does bring it home to me how vulnerable and defenseless I am in a place where i should feel the most safe.

Where are mn hq?

How do you feel that your friend has outed you?

Thanks for flagging this thread to us everyone.

We're not aware of anything that indicates the OP is not genuine.

That being said, we advise all of our members to be aware that not everyone on t'internet is who they say they are. We're awed daily by the astonishing support that our members give each other through life's trickier twists and turns, however, we'd always caution anyone never to give more of themselves to another poster (emotionally or financially), than they can afford to spare.

OP, we're so sorry to hear you are going through this right now.

Very best wishes from all at MNHQ, OP

aKatherineMumsnet I don't think any of us who reported the thread think that OP is trolling, rather that the thread reveals her RL identity.

Do you really think it's appropriate to leave it up?

Do you really think it's appropriate to leave it up?

The OP did give her identity away by stating she was having an amputation that the NHS refused to fund knowing full well this story has been in several media outlets already...

How are you doing today op?

The problem with the thread is that the op is vulnerable, just not in the way she thinks she is, and this makes that more acute.

bluepenguin My point still remains that there is limited advice we can give as it sounds like there is a massive backstory. Lola needs someone who knows her in real life - either a relative, friend or advocate.

Hope some advice here helps Lola

As PP's have commented, morphine causes nausea. Has your dose recently been increased or other medication changed? The answer to managing this isn't tube-feeding or IV fluids (I don't understand why NGs have been used in the past as they're still going into your stomach & adjusting to feeds is Rough As even working up from a very low volume) it's about managing your oral medications. They'll be reluctant to give IV or IM anti-emetics as you're not vomiting. It's concerning your weight isn't being monitored if you're refusing food & oral fluids though - have you asked to be weighed?

Morphine for 6 years isn't ideal - what have your pain team said to you about opiate rotation? It's particularly important for younger people apparently as there's a chance of you needing to cycle back through things & it may mitigate against some of the scarier side-effects like premature menopause & elevated risk of cancer. (Well, so the opiate clinic's clinical lead was cheerily telling me at the end of last year, anyway...). Tolerance is a massive issue & after 6 years you'll be addicted, even if "only" physically.

It sounds as if there are a lot of complicated issues at play here - tbh I'm not entirely clear on why you're currently in hospital - were you admitted due to dehydration & resultant electrolyte imbalance or something else?

I felt sick literally my entire life up until the summer of 2015 when I had an NJ tube put in because "random episodes of vomiting" had become so frequent my epilepsy had destabilised & my weight (already low) was plummeting. Oral antiemetics hadn't worked but ondansetron through my NJ worked. At the end of the year my tube came out (yay! less yay for fact it had somehow KNOTTED & thus HURT coming out...) & I was moved onto patches my awesome gastro consultant had to massively fight to get (special meeting & everything) as they're only to be given to people during chemo sessions. I've had the occasional vomiting episode since being on the patches & sometimes still feel sick. So you sip fluids rather than trying to take in big volumes. You eat small amounts of plain/simple foods & seek to make them as nutritionally dense as possible. If you're able to have things like fortisip, you drink that. Is that not prescribed for you regularly if you're known to have problems maintaining adequate nutrition?

What is it you want your team to do? Have you asked them to do it? If so & they've declined to, what were their reasons, and what are the alternatives they've suggested?

Totally agree with WayfaringStranger that help here, given the clear complexity of the situation (including the backstory) needs to come from someone who is there & able to advocate for the OP. If she's a vulnerable adult is her social worker not able to help?