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AIBU?

could I be ASD???

95 replies

samesamebutdifferent · 03/04/2012 11:35

another thread in AIBU triggered a possible light-bulb moment for me yesterday

I am 39 years old and always felt a bit 'different'; socially awkward and I always seem to have an alternative view on a given subject, than the majority.

Ive done a few of the online 'tests' and have come back as not ASD/ autistic. I have always had friends and I dont lack empathy; I have more empathy than others usually and can always see 'the other point of view', often too a fault. This is more apparent with people/situations that I am not close to e.g. news items. With personal relationships, although I am empathetic, I have less symapthy and patience.

My mind is very logical but I dont obsess about details

I remember discussing a subject with my parents one time and my mum got irrate and said, that I was just like my father-why did we always have to be different to everyone else? At the same time, we both replied in rather distressed tones that we didnt WANT to be different to everyone else. That conversation has always stuck in my head and bothered me slightly.

Im posting here rather than the SN section as I want to hear from adults that have ASD/ autism and what their experiences are; not necessarily from the parents perspective

Im ignorant of ASD/ autism/ aspergers so please excuse me if I use inappropriate terms etc

I have name changed for this

OP posts:
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lovebunny · 07/06/2012 23:25

tonight's test results ... the bpd one was conclusive, i'm a nut-job! 8 out of 10; anxiety 15, depression 17 - again, nut-job; eq 20 puts me in aspie/asd, surprise surprise; and isfj, which i didn't bother to read because it was long and i read it years ago.

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cocolepew · 07/06/2012 23:39

Iscored 11 onthe AQ test doing for DD i calculated she woud get 43 which high.
I work with children with Autism and have always suspected DD has Aspergers or highly functioning autism.

Ive never took her for a DX because i dont see what difference it would make to her.

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cocolepew · 07/06/2012 23:50

If you are an adult and you suspect you are on the AS would you have liked to have a DX? ive told my DD she is but dont have medical proof so to speak.

She has a medical DX for NF1 and i tie up her austistic traits in that. But doing the test she has more than traits!

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lovebunny · 07/06/2012 23:53

yes, a diagnosis would be useful to me now. but having it done privately is too expensive.

when i found out, i was delighted. it explained so much about my life and i could stop criticising myself for not being sociable! daughter doesn't mind being aspie either, but her friend who is diagnosed cried all day when she was told...

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WhirlyByrd · 07/06/2012 23:57

AQ 33, Eq 38 so borderline, but I knew that! I get how DS feels as I can remember feeling the same as a kid. I have sensory issues, too.

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cocolepew · 08/06/2012 00:01

I was going to go ahead and have her tested when she was 11 but at that time she had just had a mental breakdown and i refused because i though it was too much for her.

Shes 14 now i might ask her if she would like to be tested.

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WhirlyByrd · 08/06/2012 00:02

lovebunny I know you are being facetious but please don't say you are a nut job because of your scores. I don't think DS is a nut job because he has autism and it perpetuates many of the myths surrounding mental illness to say this, even in jest. I don't mean to sound pompous, just a gentle reminder that a lot of people will be offended by that. We're all on the spectrum somewhere!

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littlelegsmum · 08/06/2012 08:40

I feel a diagnosis would help me. I feel lost most of the time and it would really help my family understand me.

I have sensory issues too. I am always squinting as everything seems too bright for me. I sometimes cringe when kids or dh touch or cuddle me in a certain way and I always hear things nobody else does.

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TroublesomeEx · 08/06/2012 10:29

Kladdkaka (suspect you have NC recently - apols if not!) only just seen your post directed at me - oops!

I've always found that problem with friends. I have a few acquaintances and maintain a facade of 'friendship'. I know to ask people how they are and to listen to the answers but I find it almost impossible to progress a conversation and my friendships never progress.

And yes, I do find that friendships seem to be going find and then I just get dropped for no reason - I'm going through that at the moment actually. I'm wracking my brains to work out what I've said or done. And I just can't figure it out but I've definitely been dropped.

This friend was the first proper friend I've had since my son was born 13 years ago. That's how long it is since I tried to have one. In fact, I've been dropped by all my friends and didn't really have many at school.

I suspect it's because I'm a shit friend!

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wigglybeezer · 08/06/2012 11:27

I have just done the EQ, it came out as 24, which isn't very good, and more autistic than I thought. Mind you I have an aversion to ticking the "strongly agree/ disagree " boxes, don 't like making unequivocal statements (that's probably not a good sign either).

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littlelegsmum · 08/06/2012 12:29

Folkgirl I feel just the same as you. I don't and have never had a close/best friend - I don't know if I shy away or they find me too distant or in your face to keep me as a friend.

I have never been able to judge how close my friendship is with someone and I know I'm the odd one out. I've also often referred to myself as a shit friend.

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OldGreyWiffleTest · 08/06/2012 12:31

cocolepew - the difference it makes is a lightbulb moment, as my son says, in knowing that there is a REASON he is different and not just because he felt he was 'thick and stupid' and 'not liked by others'. It all dropped into place in his head and made a LOT of difference to his attitude.

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cocolepew · 08/06/2012 12:40

Thanks for your replies Smile

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TroublesomeEx · 08/06/2012 14:30

littlelegsmum we'll have to form a 'Shit Friends Club'!

I'll make the membership cards...

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littlelegsmum · 09/06/2012 10:48

Grin Count me in!

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bakerbakerfairycaker · 11/07/2012 16:05

So...

I posted on this thread back on 3rd April. It was a bit of a curiosity moment for me and I went off and researched and researched and researched (like a aspie would apparently) the more I read the more I thought it could be possible. Then I got onto Asperger's in females and BAM! It's like reading all about me. Including the IBS and Dyspraxia link. I was stunned. I was so convinced and growing ever more convinced with the more I read that I am ASD that I booked and appointment with the my GP.

He agreed with me and gave me a verbal diagnosis straight away and said he'd suspected it for a while (I have been in with other issues throughout the years) he referred me without question and my first appointment is in September.

My GP is an amazing doctor and actually stated that if they try to fob me off with depression or bipolar to go back and see him.

Since all this has happened my home life has improved immensely, my family have all read books and everything seems so much easier and calmer.

I just wanted to say thank you to Mumsnet, this wouldn't have happened if you hadn't have become my latest obsession :D

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TroublesomeEx · 11/07/2012 16:14

Well done you!

Congratulations for going and congratulations on having a GP who took you seriously.

I'm thinking of going to the GP too. Can I ask you what you actually said?

Did you feel a bit 'silly' or nervous broaching it?

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fuzzpig · 11/07/2012 16:27

Hello OP and everyone else. I have not read the thread properly yet as I'm on a break at work. But I just wanted to shamelessly plug the Adults on the Autistic Spectrum support thread - it's gone a tad quiet for a while :o but there is lots to read which some of you might find helpful. I am only beginning my 'journey' but just talking to other people who are like me has helped massively.

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fuzzpig · 11/07/2012 16:28

Ooops didn't realise this was an old thread. Still, the link still stands. And well done baker that's excellent news! :)

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bakerbakerfairycaker · 12/07/2012 12:05

FolkGirl - YES! Extremely silly. I honestly thought I would get brushed off or considered a time waster. My appointment was booked about 3 weeks in advance, so I had plenty of time to start compiling notes... I mainly just wrote down keywords as I thought of stuff just to jog my memory once I got in there.

By the time of my appointment my notes were an unreadable crumpled mess due to me clutching them during the 30 minute delay in the waiting room (it was thin paper and my hands were dripping, oops).

The only thing left I could read was 'how does it make me feel' which was in reference to the ease and calm I had felt since discovering all this information, and also the bit that said 'home'. In reference to me got feeling comfortable unless I am at home.

I went in and he asked me what he could do for me, I said I didn't know where to start and I had notes, he said, ok, just start by reading them to me. I tried to explain that I couldn't, it was all a bit of a ramble. I tried to start from the beginning, obviously my doctor knows about my past issues so it was easy to have a starting point IYSWIM. It took me about 5 minutes to actually get out what I wanted to and once I said the word 'aspergers' I must admit I cried a little.

He agreed with me straight away and then I calmed down and was able to have a proper discussion about it, as I say, I am fortunate enough to have a good GP who knows me quite well.

He had suspected it and said he was glad that I was brave enough to approach him as now he can help. I assume this was to mean that if I didn't already know it may not have been in my best interests to tell me but who knows.

My referral appointment is on the 3rd of September, I'll keep you posted.

To be honest, the formal diagnosis is just a formality now for me. Since my GP's agreement with my diagnosis my parents and DP have read books and are also in agreement. My aunty who is a Psych Nurse also admitted that she had suspected for years but thought it was rude to bring it up with my parents. Things are so much happier and easier and things now, very hard to explain. If the professionals try to say there isn't thing wrong with me I think the people who matter will know it's bullshit just as much as I do and that quite frankly is all that matters.

I have just realised I mention my parents as if I'm a child Grin. I'm not actually a child. My parents moved to France when I was 19 and I lived in their empty house. They came back 18 months ago and me and DP have lived with them since. I'm 29.

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