I want to thank you all for ......................

[Louise1970]

helping me over the past few months will all my ds1 & dd2 behaviour problems & food problems, etc. Also helping me with my various problems with myself. Many of you know i have crohns disease and have been fighting with doctors, hv, mw, consultants, pead, dieticieans.

Yestuday i saw the top of top pead consultant. He was lovely. He confirmed what i had been saying to all the medical professions that i visited (there were many) that both my children and i are allergic to dairy. We had cut out 90% of dairy but the other 10% was still affecting us. I am so releived that finally someone listerned to me etc. Apart from mr dp we are all going to be eating the same food from now on, a dairy free one. I feel very low though today as i keep blaming myself for giving my children the problem. The consultant did say that it was connected to the family history, and that can only mean me as i am the only ill one.

My last request to you all is, i now need recipes for cakes biscuits, and normal food that are dairy free. i also need to know some dairy free ranges of food, where can you buy them. Are there any online. How do you make dairy free ice cream? Can i buy chocolate? Is there any thing i should avoid when looking at labels. Went to asda last night. Couldn't believe how so much stuff had milk or cheeses in it. Anyone know an alternative to yoghurts apart from alpro. My list is endless.

I will post a copy of this on the food and allergy section too.

Luise, it may be worth thinking about going private, we are taking DS abroad to see a paediatrician especialised in digestive problems and a paediatric allergist, as not even with a a long list of intolerances and allergies including an allergy to peanuts, we have been able to get an appointment in the short term. Dietitian appointment is going to take about 6-7 months, going private may speed up the things (though we have tried that route without luck, luck that's why we are going aboroad).
From my experience, many GPs and paediatricians tend to think that all this thing about food intolerances is a products of an overworried mum's imagination.

Chandra, that a good valid point. I will look into this.
DP and i had a really bad argument last night, we have just moved from 20 miles away from where we lived for the past 15 years as we found everything too expensive and houses were just too small to start a family. It looks as though with all the additional help and expensive food and my time away from the kids, i do not think it was a good idea to move here. We should have moved further out of london, cheaper still more room, bigger kitchen etc. That probably sounds really greedy but he has never raised a finger to help anywhere in the house, garden, builders, extensions paying bills shopping etc. When i worked as many hours he still never helped. Now if we stay here the bills will have to go up again and he will be working even more. He currently is away from home 15 hours a day and works non stop for the 1st 21 days of the month then has a week off. (this is a rough guide). His pattern is also days and nights. I use to work the same amount of hours but just days, and the idea was to be together when we moved.
(suppose i should have put this message on the depression site)

Was on a website this morning that told me to watch out for whey powder and casein. I then went to my cupboards and threw another load of food away.

The list i am now avoiding is
Whey powder, casein, lactose, milk, powders milk, butter, milk chocolate, some chocolates, cream, cheese, yoghurt.

Can anyone avise me of anything else??

Still can't find the ice cream

Sainsbury & tesco told me to look on the website as they do not have a list of dairy free only pointed me in the direction of there free from isle. Looked on the site and the site does not hold all the dairy free. I found more by going around the shop, but just took ages.

I am really grateful for all your help and ideas. As you can see i am doing most of them, but am not getting very far. ANy one want to cook our dinner for us tonight!

Just found a fantastic book in the back of my cupboard from years ago when i first thought that i may have a sensitivity. Its called FOOOD ALLERGIES by Tanya Wright. It has suggestions of different makes of alternative diary free stuff. Its really good, but now i need to go on the website to find out where to buy. oh i hope they do mail order....

oh!! isbn is 1-85959-039-x

Yippee...

At the back of the book it tells you where to buy the food from. Hope they have not run out
Do they deliver

I don't wish to worry you further, but most bread does have milk in. They use it to improve the texture of it. When my DS was on a dairy and soya free diet I couldn't buy any bread at all, not even from the bakery counters at the supermarket. We borrowed my mums bread maker and used baby formula which I got on prescription for him in it. We all ate it and it was fine. If you can't get this buy soya formula and use it in place of milk powder
You can get dairy free spread. Use vegetable oil or stork hard margerine in cooking as they are dairy free instead of butter in cake and biscuit recipies. Plain chocolate is usually dairy free
Careful with things like processed ham as it often has whey powder in it or lactose.Some doesn't but you have to read the labels. Often they do say dairy free on them.
GO to the doctors. Now that the children have been diagnosed, the paed should write to the doctor and you may be able to get stuff on prescription. We did. If you get it for the kids its free, otherwise if you can only get it for you then buy a prepaid thing for the year and get as much as you can for yourself.
Some of the biscuits in Sainsburys are made with vegetable oil instead of milk so are OK. They actually tend to be the cheaper ones.
Do you need to take calcium suplements? They do tend to worry about this too.

Hey thanks alison, i will do that. The pead did mention calcium supplyments but then told me this storey and left it up to me.

Storey was, that when consultants were investigating cows milk and the posible effects it has on people they, they visited china, japan etc. They noticed that they never had milk and no suppliments either, they did eat the pulses but not oftern becuase of the rain fall etc. But what they did notice was that where we all drive everywhere and sat on our bums all the time along with no sport, had takeaway dinners etc. They use to walk everywhere excerise by harvesting there crops etc. They did drink plenty of rice milk though.
The moral of the storey was to get off our bums and excercise so that we do not get osteoprobotics (cant spell it). It's on the WHO website somewhere.

He did mention that soya and rice milk and bottled water has added calcium written on the containers.

hiya,
Swedish glace ice cream is definetly available on line at tesco as i have done my shopping just now also on my list that are dairy free are:
pure margarine(sunflower)there are other kinds but this is the one we all prefer.
Tesco Free From Double Chocolate Cake Bars 4pk
Tesco 12 Pack Part Baked Petit Pains (please double check these as i don't have any in the cupboard at the moment- and we generally only have them once a month with homemade soup so let dd have one)
Swedish Glace Non-Dairy Vanilla Dessert 750ml
(that's the official name)
Alpro Yofu Peach & Strawberry 4 Pack 500g
Tesco Fresh Sweetened Soya Milk 1 Litre
also we have found St Helens Goats Cheese is nice and dd does not react to it
Tesco pizza base mix(in a green box-just add water) ideal so dd does not feel left out and is yummy with the above mentioned cheese.
Holland and Barrett do a "mozzerella style cheese slice" pack of 8 i think that aren't that bad on homemade burgers!!, they used to have a mini milk style dairy free ice lolly but i haven't looked for them this year, also OY milkshake dd likes the chocolate and strawberry but not the banana.
that's all i can think of for now- hope it helps but feel free to post or cat me if you wish
good luck

thanks so much chatee. These items are what i am looking for along with other thanks will note them. I thought i remember reading oy was dairy? Can't have goats cheese wither. My ds was on nanny goat formula milk and was told to stop. Need to go now for the rest of the evening will be spent on line - dairy freeing

I seem to recall that I think its DS foods do a dairy free sweet bread rolls ( I often cater for dairy/wheat etc free people) you can get them from most coops/tescos and sainsburys. A friend of mine was diagnosed wheat intolerant a few years ago and then our local shops had nothing in stock what so ever, but boy did she go on a crusade and now they all stock a full Gluten/Dairy free range, so although its a pain to you, badger all of the shop managers, explain your prediciment and take it further up the chain if need be, and be assured, your weekly shopping will get easier!

Jacobs Fig Rolls are dairy free for a treat.

Pure dairy spread is dairy free.

After Eights (chocolates) are dairy free for you.

i wish to thank you all for all your help tips and advice. I took copies of all the message boards and emails received and drove 30 miles away to a big Holladnd and Barratt and a large Tescos.

I found everything you all told me. I bought it all too. I gave away my whole kitchen cupboards to friends that had also helped. I brought many other products too. So now we need to eat them all and see what we prefer.

Now that i am stocked up, i can relax a little and work out away of cooking it all from scratch. as beleive me my children will only let me out of the room for very limited time. It was already a nightmare before the days of dairy free. Most things that i have read, seen etc will take alot longer than just regular cooking and working out alternative ways to put things together, when before you could just use the run of the mill stuff.

But most importantly i will have to find a way to get my children to eat these new flavours. So far it is not working. Charts do not work on every child at 21 months. Him understanding that he will not get anything else too is hard. The list is endless..

But anyway thankuou all

I will be posting messages of how to cook certain dairy free things, later in the week in the recipe section. If you don't mind helping.
I will need scrumptious short recipes though

I should have turned on the light when typing my previous message. I could have seen the keyboard a bit better.

DS was allergic to dairy for two years so I used to try and find alternative foods all the time. Here are some things/links to the things I bought

Alpro soya puddings, normally kept with rice pudding & custard in the supermarket.

goodies lots of things.

fruit pots used to buy these from Waitrose

Sausages from sainsburys

Rich tea biscuits from Sainsburys

Quite a few things from the Peter Rabbit food range at Waitrose and possibly other supermarkets.

I don't know what milk your baby is on but DS was on Nutramigen and they sent me lots of recipe cards when I called them.

I've never managed to find the swedish glace ice-cream is any stores here.

Glad things are better, louise1970. We don't rely on exercise to avoid osteoporosis since discovering it has to be the right type of exercise. I'm wary of soya because of the possible link to nut allergy and - for boys - the oestrogen effect.

I've forgotten if your problem is milk protein or lactose? We've been trying a dairy free probiotic and yesterday risked some milk (in food) after taking lactase. At fist it seemed to be working so he had a little more milk and was then ill again. However it is something we'll try again in a few days as it seems the combination may allow him to tolerate small amounts of milk in food.

Message withdrawn

All receipes will be most appreciated.

I am going to invest in a bread machine. I will cook bread over night on a timer and a smoke alarm.....

Can you make all breads & cakes in a bread machine.

Dd and Ds both have allergies and I remember well the transition from familiar foods to dairy free yeast free, it was hard and took a long time for them to aquire a taste for the new foodstuffs.

Its a long hard slog to get them to take the dairy free, we are 5 years on now and it does become easy - ds loves Oy Banana and dd loves Oy Vanilla milkshakes! Also the Alpro soya custard is luverly! I also do Soy custard with Birds custard powder

Good luck and keep