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Allergies and intolerances

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Wysoy on prescription or fancy goats formula?!

39 replies

Picante · 26/01/2010 19:39

What are your thoughts on Wysoy - I don't like the idea that it's made by SMA.

DD has been breastfed so far but I'm introducing formula to give me a break. Unfortunately she reacted to Aptimil yesterday (ds had dairy allergy).

I've found that Nanny Milk goats formula in waitrose - VERY expensive but looks very good. Got the doc to give Wysoy on prescription so would obviously be free.

Thoughts?

OP posts:
bridewolf · 28/01/2010 14:00

nanny goat milk is not on prescription because it failed to pass the health & safety tests that the nhs enforce.

many peads (plus pead immunologists) are not impressed with the supermarkets that still sell the goat milk.

for mild , very mild intolerance it might help, but like the other posters have said, the protein changed cows milk formulas may be more suitable , and certainly soy milk is well recognised as something that is to be avoided.

certainly for igE allergies, all forms of mammal milk will cause a problem, so the formulas with all protiens changed are the best way forward.

mspotatochip · 28/01/2010 14:44

bridewolf, what i can't figure out is if these paeds have such a problem with supermarkets selling and parents buying goats milk why won't my gp refer me to see said paeds in order to see if my child has an ige allergy or a 'mild' intolerance?

Its simple on cows milk he gets excema, on goats milk it goes. His dad has a bone fide proven rast grade 2 on cows milk protein and multiple other allergies and weeping pustulent excema and psoriasis that only began to be controlled once he finally insisted on seeing a dermatologist aged 30 after I nagged him and nagged him as GP said there was no point.

I feel like I'm weaning ds in a dark tunnel. I don't want to make him totally dairy free without "certificated allergy" but nobody will advise me.

rant over terribly sorry

Picante · 28/01/2010 14:58

Well I wrote the gp a letter including two of the links from this thread. She got the receptionist to call me and said the consultant at the hospital said to try the Wysoy first then Nutramigen, but at least she's referred me to see a consultant who will hopefully give me Neocate which is what ds had.

TBH I've done a lot of research on that goat's milk formula and it really does look pretty good. I'm still bf so it's only a couple of bottles a day.

mspotatochip Sorry you're having a bad time - how old is your ds?

OP posts:
mspotatochip · 28/01/2010 15:11

Picante glad you're getting somewhere It really shouldn't be this tough should it! Ds is 8 months and the happiest little guy and not scratching anymore which is great.

I really do need to stop prevaricating and get back to the gp and get an opinion on when to try him on cows again as I don't want him on any type of restricted diet if not necessary as I know how hard it is for dp.

Its the thought that any of our "choices" might hurt them in the long term that gets to me sometimes

I hope you get the neocate as by all accounts nutramigen is rank

Picante · 28/01/2010 20:28

DS had a dairy allergy and had grown out of it by the time he was 2. Don't rush your ds I know it's annoying!

OP posts:
bridewolf · 29/01/2010 23:23

mspotatochip, the lack of avaliabiltiy of prescribed goats milk has nothing to do with the GP not giving you further medical advice and support with intolerance and ige allergies.

the reason we all go through such a mess getting help with allergies is down to the lack of training of said GPs and lack of nhs funds to pay for a new lot of full time allergy clinics, and the shortage of docs wanting to be immunologists, (its just not a sexy subject for docs).

testing for intolerance in many forms out there, (mainly quack) give little in the way to true idea of intolerance, the only thing left to do that gives a better idea of what foods are the problem is a exclusion diet, followed by re- introduction.

of course the most common culprits are out there, milk and wheat etc, etc. and are the first port of call for infants on a milk only diet.

eczema as a symtom is not all down to food allergy, but pointers to ige , classic food allergy has eczema as a indicator , if it starts with a young infant under 3 months, esp breast fed infants.

anyway, am waffling, but a parent today has to make a lot of noise to get reffered to a pead immunologist, we get fobbed off then sent on a merry go round , of skin docs, asthma docs, who , again, have little training on allergy, and only use what info they have while being faced with the huge numbers of children with such food concerns.

the goat formula was removed because of fears over possible food poisoning due to to risk of milk being contaminated with the companies current policies , which dont fit in with the strict nhs health and safety polices.

thats why docs are not impressed with the stuff being sold in supermarkets.....

severe milk intolerance often means that goat milk cant be used, after all, its still a mammal, like us, so does cause some problems.
also its worth thinking about the fact that generations are looking for alternative milks, as they become intolerant to the current one avaliable, camel milk is now being mentioned as being the next best milk to try, when dealing with ezcema and intolerance.
our grandchildren may be the next generation of infants that cant tolerate camels milk, and so we will look towards another milk that may work, some other mammel to milk............dolphins? (shrug, who knows?)

so i would sugest going back to gp , asking for a refferal , get a nearest name from a allergy charity, and try again. if milk intolerant ask for a whole protien changed cows milk formula, and try it for at least 6 weeks . as this may be the length of time a gut may start to improve as its damaged by previous milk feed.

good luck.

bridewolf · 29/01/2010 23:27

sorry - re- read post, its only mild ezcema concerns, not food intolerance, , but still worth following advice and get reffered, and get the formula, a partially changed cows milk will still help with skin for many with mild problems.

urm.......babies bowels ok? when on cows milk?

MummyMellie · 30/01/2010 10:24

I have a very lactose intolerant DS and have managed to get him Enfamil Lactofree on prescription, he is now 3yrs and has been on it since 3 months!!!! It has been brilliant, has no soy, will keep in the fridge if made up etc etc. Worth asking your GP about.
Incedentally, am about to have DC2, anyone know if this one is as likely to be lactose intolerant? I am but DH isnt.

mspotatochip · 30/01/2010 19:51

bridewolf, thank you for taking the time I think I understand better now. We have had some further upset since I posted on this thread and now have a referral in the post! Luckily he's still breastfed mainly, we noticed the cows milk when trying to use some (formula) in food when weaning etc. I've got hold of a double pump now and am going to try to find the time to express for his porridge etc at least until we have seen the allergist.
He had a very alarming reaction to either hummus or sweetpotato on Thursday evening and this has bumped me into action.

Picante · 31/01/2010 09:09

mspotatochip It's more likely to have been the hummus as it contains sesame seeds - what reaction did he have?

OP posts:
mspotatochip · 31/01/2010 09:25

I left him in his highchair after he had finished eating and went to get a towel to clean up and when I came back his face, neck arms were lobster red, blotchy and puffy. He wasn't distressed but v quiet. I thought his tongue was swollen. Dithered a bit, didn't know if I could give him piriton, thought about going to a & e then called 999. Reaction luckily went as fast it started nearly and paramedics watched him for twenty minutes sitting with us but he didn't need any actual "treatment". Not sure whether I overreacted but they were very reasuring that I did the right thing and not to hesitate to call / go to A&E if any problems later. I think I aged five years in twenty minutes!

Gp has since told me I can give small dose of piriton and we're going for a private allergist referral for further advice as he is on DP Bupa through work

passthevalium · 11/08/2010 10:38

Has anyone wondered why all our children seem to have these lactose intolerances? I'm not sure our generation had these allergies as children?? This is my third child who I have put on nannycare (reluctanly because of £££££). He was covered in oozing eczema and I started him on nannycare...three days later.....NO ECZEMA and a much happier baby. Does anyone know when you can switch from powder goats formula to st helens fresh goat milk. Baby currently 7months. Thoughts....

eskimomama · 11/08/2010 11:37

My DD is allergic to cows milk, also to any animal milk according to the allergist who saw her, so she can't have Nanny goat formula, then she's not taking Neocate, Nutramigen is not suitable and I won't be able to breastfeed until she's totally outgrown her allergy (1, 2, 3 years or more)
...so I kinda have to use Wysoy at some stage in future, no?!

She's 10 months and I was thinking of BF until 1 year and then switch to Wysoy when she's drinking well from the cup...
I don't know what other alternatives I have!

shockers · 11/08/2010 11:54

DS2 was on Nanny formula from about 8 months and then whole goat's milk from 11.5 months. He still drinks goat's milk now (age 10) and is in rude health.

Prior to the Nanny formula he was started on SMA by the hospital and had terrible constipation. I changed to Hipp with good results re bowels but he still suffered with a wheezy chest and excema. Both cleared up within days of changing to Nanny.

I didn't breastfeed because he is adopted.

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