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Allergies and intolerances

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Original poster

DS shaking and vomiting -- apparently not allergy related

42 replies

ilovemydogandMrObama · 02/05/2009 16:53

DS has a severe milk protein intolerance. He's on Neocate, and under a consultant.

Decided to venture out for the day rather than be ruled by his diet Went to Pizza Express. He had pasta and tomato sauce and checked with waitress there wasn't cheese, butter or milk.

Anyway, he managed to grab a piece of his sisters piece of pizza and was violently ill a few minutes afterwards, and started convulsing.

Ran to a walk in center and he was checked out. The nurse called the hospital and spoke to a Paediatrician who said that it couldn't be an allergy as fitting doesn't happen with an allergy.

Seemed to settle with Piriton

Anyone?

OP posts:

treedelivery · 04/05/2009 11:15

ILMD - did he go into a true seizure do you think? could it have been, I dunno really, a fainting type shudder or something? God it must have been awful.

I know that when people hyperventilate they can go into spasm with set claw like hands, and generally feel and look very unwell. I had this with pain once - it could have looked like a seizure of somesort, but I could talk so it clearly wasn't. I was stiff all over and totally lost use of my arms and lower legs.

Original poster

ilovemydogandMrObama · 04/05/2009 13:10

thanks Thumbwitch -- am seeing the consultant tomorrow, so will ask him about it, or print it off

Not sure if it was a seizure. My sister used to have seizures and it wasn't anything that dramatic; more like a case of really bad shakes. Hyperventilating may explain it. He didn't lose consciousness nor did he have involuntary muscle movements...

The nurse was saying that a lot of parents who have childen with intolerances carry Piriton, and sometimes give it preventatively, for instance when going to a party...

OP posts:

treedelivery · 04/05/2009 13:39

Maybe you could ask tomorrow, see what they say. Good luck, let us know how you get on.
How old is he now, totally lost all track of time.

thumbwitch · 05/05/2009 09:57

How did it go with the consultant, ilovemydog? (or is it today? )

I wanted to add about the seizures/convulsions/fits - totally irrelevant in terms of cause, but when my niece had a brain tumour we saw her have a fit on Boxing Day after my sis was playing Row Row Row your boat - she didn't black out, she just got severe shakes all over, no vomiting or any of the more dramatic symptoms. Her fit was due to the hydropressure in her brain, but it was still a fit.

treedelivery · 05/05/2009 10:22

Wondering too. I think it is today

Original poster

ilovemydogandMrObama · 05/05/2009 12:23

Well, good news. Saw consultant and DS isn't anaemic! The consultant did blood tests and ran up to Intensive Care where they have the rapid result test thing. DS has been taking iron 3 times daily, but it means that his body is keeping it stored.

As far as DS' convulsion, he seems to think it was a severe intolerance reaction, but allergic as this is a very specific definition such as anaphalix (sp?) where adrenaline would be used. The consultant commented that it wasn't really necessary to refer him as he already had a known intolerance to cow milk protein, but the severity was unusual, but not unheard of.

The consultant was suggesting doing a control test on cow milk products in a few months under controlled conditions, i.e. at Children's Hospital, but I am fairly opposed to this as it seems to be for curiosity reasons rather than anything else. I think it's too soon. Maybe when he's 2 years old (he's 14 months now)

Just waiting on the full test results as his kidney function test was not good and he may be referred to a Nephrologist at Children's Hospital.

OP posts:

simpson · 05/05/2009 12:28

Glad he is not anaemic

I agree with you on the cows milk test. Seems far too early to me

DD is intolerant too (not nearly as bad as your DS) and have been told she will be on neocate until she is over 2 (she's 15mths) and maybe then will we try dairy...

Original poster

ilovemydogandMrObama · 05/05/2009 12:33

That's a really good point. Now that I think about it, the dietician said DS would be on Neocate until he was at least 2, so may remind the consultant about that...

Pleased DS is not anaemic anymore. It was scary low before...

On a separate note, is it me, or do consultants fall into 2 catagories? Either they are terribly arrogant and up themselves, or slightly, um, nerdy? I quite like DS consultant, but he is a bit of a geek. In a nice way. Just had some time off and he went bird watching...

OP posts:

treedelivery · 05/05/2009 13:06

Oh nerdy for sure. They make lovely consultants. I often feel under their microscope but their nerdy thing means they can't bear to miss anything. Tendency to slimness and owl like peer.

There is also the detached consultant. Almost a 'pure' definition of the concept. I consult - here is my opinion. Take it and go.

So good news on the whole dog? Have you noticed a change in ds now he has more oxygen carrying capability? Energy levels for example? Hop ehe feels tip top. Well done fro negotiating another hospital trip.

treedelivery · 05/05/2009 13:22

hope he feels - oh my typing.

Bless his boots. How is he having his blood taken?

Original poster

ilovemydogandMrObama · 05/05/2009 14:10

Tree - Exactly! Yes! Very thin and slightly spooked by me (being American and he asks really awkward questions, like, 'do you like it here' 'what's the weather like in America' )

He treats DS symptoms almost a compulsive/obsessive thing; "this is a puzzle and I'm going to solve it...." Unfortunately, DS knows that when he goes to Children's Hospital, it means he is going to be hurt. He cries when he sees his consultant and anyone in scrubs/nurse uniform.

DS has drastically improved since being dairy free -- he has started walking, or at least wanting to walk. He pulls himself up and cruises around. He is defending himself from his sister (2.9) by biting her nose when she gets too close. He is sooo much happier! It's as if life isn't such a struggle for his body. And he smiles so much more

Did you get an appointment for DD2?
And he sleeps though the night

OP posts:

treedelivery · 05/05/2009 22:24

Thought I'd replied this afternoon y'know, i did in my head. I need more sleep

Feel so sorry for him knowing about being hurt. That is hard on you too. I assume they give him emla cream?

Buy Hurrah for his thriving advances, and also for sleeping through.

DD2 appointment is 2 weeks. I choose to go to nearest city [1.5 hours] as the wait was 2 weeks. Our local district is 2 month wait. But I know she would have got a thorough review and very personal treatment locally. I'm worried the big city will involve a less personal care and a certain amount of fobbing off.

Just me being judgey. We'll see.

Original poster

ilovemydogandMrObama · 07/05/2009 19:16

Advice needed: Just got an email from DS Paediatrician asking if I wanted DS referred to an allergy nurse for skin pricking...

DS Paediatrician seems to think that he may have developed a severe intolerance to his already known intolerance

Is there any point putting DS through this? What is the advantage of knowing DS has a severe intolerance rather than just an intolerance?

OP posts:

simpson · 07/05/2009 20:57

I would email back asking exactly what the advantages would be TBH.

Is it to work out whether it has turned into an allergy ie to use an epipen if he has another convulsion?

Original poster

ilovemydogandMrObama · 07/05/2009 21:00

Oh, good point. So, if the treatment differs, then worthwhile.

OP posts:

simpson · 07/05/2009 21:05

It would also be a good time for them to test for stuff you think he might have a problem with but are not sure iyswim.

treedelivery · 07/05/2009 21:06

I'd say given that horrid scare with the seizure, I'd go for it myself. Then at least should anything like that happen again you know you have no big bad allergies iyswim?

I think thats what I'd do, but having said that I don't have to deal with all the fall out of hospital visits etc. It must be really hard, so I dunno. Maybe do it in a bit? Or now and get it dealt with and over? If you feel it is worth it that is.

Your consultant sounds a star - hope dd see's one like that!

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