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Allergies and intolerances

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nutramigen stopped working any alternatives??!

29 replies

Ellibop · 20/05/2008 06:41

Really hoping someone can help as feeling desperate.My 7 week old has a dairy/soya intolerance and was prescribed nutramigen. It's worked fine for a week but now symptoms are back -not sure why. Are there better alternatives i can ask my doctor for - is neocate likely to be any better for him? Really thought it was sorted and am desperate to find him something he can manage.

OP posts:
jasperc163 · 22/05/2008 19:04

ellibop
sorry you are having such a nightmare. If going back to breast feeding isnt an option then you are going to have to put on a hell of a performance at the GP and get a fast-track referral to a paed. Just stand your ground and cry if you have to!

I couldnt get a referral as DD wasnt failing to thrive and didnt have respiratory problems or anything despite terrible reflux, hence having to go private. But that only helps if your GP will support the referral as you would only get a 'private prescription' which you have to pay for - my GP was happy to accept the gastroenterologist paed's prescription and give me a NHS one. I dont know where you are but if it comes to it can give you the details of the top guy that i saw - a paediatric gastroenterologist who works out of London and Sheffield.

anyway good luck in the morning.

eddiejo · 23/05/2008 18:26

How are things today?

easydoesit · 23/05/2008 21:26

Hello! my little one is dairy allergic and was allergic to nutrimagen. She has pepti-junior. GP's can't refuse a formula without good reason, we went through our HV and had a referral to paediatrician. you can buy pepti junior worth a try x

Herbiethecat · 23/05/2008 21:44

Sympathy. My DD has just, at almost 3, got over the worst of her dairy and soya allergy. She's still breast fed as it seemed the easiest solution. (Well, that and the idea she has that it's the single most important thing in the universe and she's not going to stop, ever, apparently.)

I found that if I had dairy, she would react pretty promptly, and when I totally cut it out (as I had to for a while, though I slowly added back cheese and so on into my diet as she improved) she improved quite quickly too.

We were given neocate by the hospital dietician as they were unfamiliar with breastfeeding toddlers and were unconvinced of it's nutritional value. But it smells and tastes foul and she wouldn't go near it, no matter how I disguised it.

GPs have drug prescribing budgets and the cost of neocate swiftly eats into it; a lot are restricted by local prescribing guidelines too. Round here a consultant paediatrician with an interest in allergy has to ok the prescription of neocate.

Best of luck with it all. In a few months once you're into weaning there are all kinds of good dairy free products about - it's amazing how fast you become expert about what has what in it.

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