Sugar intolerance

[sugarhoney1]

I've just discovered my little boy is intolerant to sugar. I don't know which sugars or if it's all of them or even if it's artificial sweeteners. Anybody out there with a similar problem don't know where to start for help!

Gets odder by the minute.

@PacificDogwod he's followed or there about a followed his growth centile lines for weight and height except for when he got over silent reflux aged 2.5 when his weight gained slowed, but it slows at the aged any way and HV wasn't concerned because he was still putting the minimum amount t on

@BertrandRussell hopefully I'll have some answers once I get the regulars of the blood test or once I've seen the contenance service or pead gastro

Wait so is he having a glucose tolerance test e.g. Being tested for diabetes? Rather than what you think as a general intolerance?

I was going to say it sounds like a glucose intolerance (diabetes) which I would want if OP. However, I think she believes it's an allergy test.

Ok, an 'impaired glucose tolerance' does NOT equal a 'glucose intolerance'.

Really, this goes beyond what a forum can advise on, continue seeking RL advice, sugarhoney.

Fwiw, diabetes in young children tends to come on very suddenly and aggressively, children presenting quite ill. Impaired glucose tolerance is more of a presentation in typically middle-aged, overweight adults.

@Toomanycats99 can I ask how old your daughter was when she had the breath test please? I think I've narrowed it down to sucrose. Was the blood test your daughter had ige or none ige? Thanks for your help

@dinnerlady1.she was about 7 I think. I'm not sure how old your son is but there was a toddler aged girl there having one at the same time and I know she struggled. It's a disgusting drink to drink so I think trying to get a young child to drink it is a bit difficult! What does ige mean for blood test?

@Toomanycats99 ige, from what I can gather, measures the amount in your blood, but it's only for allergies. He's 4 1/2

Not sure what blood tests were to be honest. They were about 3 years ago now.

Thanks for all your help, this is a mind field. Do you count the amount of sucrose she's eating or just limit the foods high in sucrose? I've identified most of the foods in his diet, but we've been out for a few days which has created a big wobble. Trying to figure out how to calculate 2g of sucrose in 100g of food. Am I meant to weigh each meal and calculate the total content of sucrose on his plate?

I think you need to see the consultant, they will be able to advise properly how best to tackle it. We were advised to cut out a few specific foods. We have then had occasional hiccups where we didn't realise something had fructose in and we just added it to our list. Really you need to get proper referral now I think, but at least you can go in armed with the information you have so far gathered.

Thanks, just want to get it organised, especially for when school starts again

This really doesn't make sense.

I have no idea what the blood test would show that you can't do with a glucose test strip. A urine dipstick would be a first point of call too- if the kidneys are leaking glucose which pulls water with it you'd see glucose in the urine.

None of this makes sense. I can't see how sugar intolerance is even a thing- your body makes it's own glucose so even if you only eat protein and fat you will still produce glucose in your body.

As pp have said, why it would make him pee is also not logical, unless he has diabetes or kidney disease.

@reallyanotherone

Sugar intolerance really is a thing! My daughter has fructose intolerance / malabsorption. Means her body cannot convert it properly to glucose.

@Toomanycats99 thanks for your support, means a lot in the mine field I'm facing 😊

@reallyanotherone sucrose intolerant people cannot digest sucrose as effectively as other people causing constipation amongst other things, constipation in young children (like mine) can lead to incontinence. If he doesn't have sucrose he doesn't get constipated and doesn't wee himself. I've tested him for diabetes and I'm sure if there had been a problem with his kidneys for as long as he's been constipated they'd be other things wrong

"Sugar intolerance really is a thing! My daughter has fructose intolerance "

That's fructose intolerance.

Sugar intolerance would be against all sugars including glucose, which is not possible if you are an actual living breathing human being.

@CoteDAzur I wrote sugar intolerance in the title because when I first started this thread I didn't know which sugar he is intolerant too