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Allergies and intolerances

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Gluten free newbie

61 replies

Goingtobeawesome · 16/06/2017 12:42

I'm waiting for confirmation but it is looking very likely that I will have to follow a gluten free diet. My lovely pharmacist printed me off some information so I have a long list of what I can and can't eat but I'm just back from a trip to the shop and came away a bit fed up as all they had in their GF section was bread, cakes, chicken kievs, nuggets and a few other bits I didn't fancy.

I'm hoping it will become easier and second nature but right now I just see a long list of food I can't eat which of course my house is full of and no one else wants.

I would be very grateful for any helpful tips. Thank you.

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Goingtobeawesome · 16/06/2017 16:04

Very happy I can have bacon. I'd forgotten as not bought for a while as keep
reading it's not good for you but given all the other stuff I'm going to try and eat a lot less of a bit of bacon will be okay.

I've got an app and some labels so I'm going to go through my cupboards while tea is being cooked to label what I can and can't have.

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Schroedingerscatagain · 16/06/2017 16:22

One word- Pinterest!

We are a vegetarian coeliac family and I've found so many awesome recipes on Pinterest the cookie recipe we use is divine

As a brand new coeliac just adapt what you already eat, the kids can eat it too so don't worry

You need to avoid oats for the first 6 months (even gf ones) then gradually introduce, approx 5% of us have a problem with them

When baking just substitute gf flour and it generally turns out fine, I make a mean white sauce using doves farm plain flour

The best fresh bread around in our opinion are the newburn bakehouse fresh ones especially the sour dough

Goingtobeawesome · 16/06/2017 16:26

I've never heard of newborn bakehouse. Which shop sells that bread please?

Everything is coming together for me thinking I have to have an issue when I think about how I've felt when I've eaten certain stuff. Was missed as I went through a hellsih time and I thought it was related to that.

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Goingtobeawesome · 16/06/2017 16:51

Now I might confused. On my pharmacists supplied least I'm not allowed mayonnaise. On the app scan I am.

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Goingtobeawesome · 16/06/2017 16:52

But hurray for the sausages I already bought being gluten free

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dementedpixie · 16/06/2017 16:54

Surely must depend on the mayonnaise ingredients. My morrisons stuff has no gluten

dementedpixie · 16/06/2017 16:55

If it had gluten it would be highlighted in bold

Gluten free newbie
pastabest · 16/06/2017 17:00

It's just a case of rethinking what carbs you eat mainly and checking premade stuff for sneaky gluten.

Gluten free substitutes are far better than they used to be but thee are still some horrors out there, I've struggled to find edible tortilla wraps for example. Cafes and restaurants are pretty good these days too at providing gluten free options. There aren't many meals really that can't be made gluten free with a little tweaking.

Goingtobeawesome · 16/06/2017 17:04

It's hellmans and it says nothing about allergens. Just found a packet of smash dh buys when I'm ill and it says yes but list says no. I need to go by the ingredients then?

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Goingtobeawesome · 16/06/2017 17:15

I'm buying the full app so hopefully that will help.

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Goingtobeawesome · 16/06/2017 17:28

Grrr.

More help please, sorry. Is my app rubbish ? When the ingredients is obvious I'm going on that but some aren't obvious so I'm stuck.

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Goingtobeawesome · 16/06/2017 17:29

I do not recommend this app. It doesn't know 9/10 of my bar codes.

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CMOTDibbler · 16/06/2017 17:45

Just read the ingredients - the EU food allergen regulations mean that all prepackaged food MUST list clearly if they contain one of the regulated allergens and gluten is one.
I've never found a plain mayo which isn't GF and smash is fine. Some manufacturers will call out GF clearly on the packaging (M&S are great), but not having a symbol on it doesn't mean it isn't GF.

Goingtobeawesome · 16/06/2017 17:49

Thank you. I'm going to have to remember all the allergens. I'm just confused that the list says no but the app says yes but I've had a word with myself and told me to stop being an idiot. Thanks again.

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dementedpixie · 16/06/2017 17:57

They have to emphasize the allergens so for e.g. my sausages have wheat so it is in bold

Gluten free newbie
dementedpixie · 16/06/2017 18:04

www.coeliac.org.uk/gluten-free-diet-and-lifestyle/gf-diet/grains/ might be useful for you

Goingtobeawesome · 16/06/2017 18:27

Thank you very much. I'm going to have a look at the link and make notes. Some things are obvious so it's easy. I've already learnt can't have wheat or barley Smile but the yes/no contradiction stressed me. I'm not feeling well, I've upset DD and I'm exhausted so I'm being an idiot. I thought an app I can use to scan the shopping was going to be great and then it didn't go to plan and I had a tantrum. Idiot that I am.

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CMOTDibbler · 16/06/2017 18:44

I'd ignore the list tbh - they aren't very useful. But you need to read the ingredients of everything you buy, everytime you buy them. Somethings you will never have a problem with, some things the ingredients change frequently - crisps are a beggar for this ime. Sausages in the same range won't all be GF even if 2 types are.
Some stuff used to be a problem - grated cheese and boiled sweets for instance, but I haven't seen any that has been glutened through them putting wheat flour on the lines for years now

Goingtobeawesome · 16/06/2017 18:58

In my uneducated head I think the issue is bread. I used to live on toast then for some reason I stopped having it much for months then I've had nearly two years of issues, lots of tests, and now I think it's the problem. Plus maybe pasta. Sometimes I eat things and within five minutes I'm in the loo. Been told it's accumulative and it can't affect me that quickly but I don't eat bread and/or pasta every day so I think it does. Week after next I'll get the results and will see what the doc says. He also wants to test me for a NET but he doesn't know what blood test to order so wants me to find out for when I see him.

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GrainOfSalt · 16/06/2017 19:09

Going GF can be very daunting at the beginning BUT much of your diet is naturally GF and it is possible to make much more GF with little tweaks - for example you say upthread about it being ok if the kids eat GF sometimes - how about roast dinner with roast spuds, all the veg, gravy etc - just substitute cornflour for any normal flour you might use in cheese/ white sauce etc. Same for cottage/ shepherds pie, curry and rice, casseroles etc. Jacket potatoes, salad etc all fine. You say you cook from scratch which should make it easier but if you use e.g. gravy powder/ stock cubes then the kids will not know the difference. Any meat and potato/ meat and rice dish is often gluten free or just needs a tweak. All meat, eggs, veg are fine and SOME grains - e.g. corn, rice, polenta etc - you just have to be aware they can be contaminated if processed (e.g. rice crispies/ corn flakes should be GF but they are not - you have to get the free from version). Nearly all cheeses are GF but you have to check the packets fro some - e.g. some cottage cheeses/ cheaper cream cheeses

It is only if you want to go down the pasta/ biscuit/ bread (e.g. pizza) line that you really need to make major substitutes from the free from aisle. As above other cereals like rice crispies/ cornflakes etc could be GF but you often need to to look in the GF aisle as the 'normal' e.g. Kelloggs/ own brand ones often contain traces of gluten. You can get gluten free oats for porridge/ to make your own flapjacks (again these could be GF but are often not so you have to get the pricey ones from the GF aisle) and there are loads of substitute flours for baking but as others say look for GF recipes - GF cake/ bread baking is a bit of an art form. Chocolates/ other treats are variable - go to / join Coeliac UK - and google is your friend here, you can google the ingredients of almost any brand

Sauces can be variable - some are fine, others you need to get the GF version but it is always worth checking as sometimes the normal version is just fine and you don't have to pay for the pricey one - e.g. we found a mainstream pesto was GF and quarter of the price of the 'free from' version. You need to check for mayonnaise - not sure - but often a 'normal' version of many sauces is fine. Many crisps are fine, some are not

Most drinks are fine - just be careful with e.g. Horlicks. When it comes to alcohol all beers are out unless they are special gluten free ones - but cider is generally fine. many spirits are ok but whiskey is variable

The big thing is, if you are diagnosed as having Coeliac disease, then you have to completely jump on the GF bus - that means not thinking a tiny bit won't matter e.g. don't eat a a gluten free scone if it has been on the same plate as ones with gluten in (many cafes just don't understand this); don't cut cheese for you with the knife you have used to put butter on the kids bread (not using the same butter either if a knife has been put in it that could be 'contaminated'). It is very easy for people to follow a mainly GF diet and all those who follow it as a fad support the free from aisles and make it possible for those who really need the diet to have far more variety in their diet BUT be aware that those who follow it as a fad, and those who work in cafes etc often do not get the difference between a real auto immune disorder where you should avoid all cross contamination and those who have an intolerance or just like faddy diets

It seems like a big faff at the beginning but you get into the swing of it and it DOES get better. Visitors often just don't know we are a gluten free house but I don't tend to do things that are based around bread - our 'easy' visitor meal is jacket spuds

One thing to be aware of is snacking on the move - often there can be nothing you can grab on the go from e.g. a garage - get used to making sure you have something with you Grin

(well that was a bit of an essay, hope it helps and really hope you don't need to know any of it Grin )

Goingtobeawesome · 16/06/2017 19:30

Thank you very much, that is very helpful.

I was upset today as I felt really hungry and just couldn't think of what I could buy or eat when I got in as I'd already had scrambled eggs for breakfast and thought a lunch of boiled eggs was too much.

I'll get my head around it and if not I'll be doing the one week in four plan constantly!

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GrainOfSalt · 16/06/2017 19:49

breakfast:
Eggs , bacon, baked beans, porridge/cereals (GF ones)

Lunch/ dinner
soups (including some tinned soups); jacket potatoes with tuna/ cheese/ beans/ salad etc; salad box with balsamic/ other GF dressing, chicken/ other meat/ cheese and salad/ potatoes/ rice and veg

For takeaways
Indian food is often naturally GF - even the saucy dishes (obviously not the naan etc
Many fish and chip shops do a GF night the day they clean the fryers (some have a dedicated fryer all the time)
Some pizza places have recently rolled out a GF line but to be frank I do not trust the chances of cross contamination from the preparation of the gluten pizzas - there are GF pizzas available in the frozen free from section now though :D

Obviously you can augment all that with the GF breads etc

Good luck - Grin

GrainOfSalt · 16/06/2017 19:50

Oh and if you are going to have more tests/ biopsy etc then carry on eating gluten unless you have been told to stop as otherwise it could come back with a false negative!

Goingtobeawesome · 16/06/2017 20:03

Thank you very much. That is a great help. I'm making a menu as soon as I've finished this.

I have started to try and be GF as I've had my blood tests taken already and while I originally planned to carry on eating it the stomach pains were awful so I decided to try the new plan.

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dementedpixie · 16/06/2017 20:06

Don't think you're supposed to cit it out unless a biopsy has been done

www.coeliac.org.uk/coeliac-disease/getting-diagnosed/