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Allergies and intolerances

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What do you give milk allergy suffer for breakfast?!

73 replies

BeansInBoots · 01/03/2015 14:16

Because I'm struggling!
Ds hates cow and gate banana porridge made with nutramigen. No other 'baby cereals' are suitable for CMPA
Looked at the adult rolled oats, the porridge oat dust stuff! And even though there's no milk in it it says it's not suitable (does anyone know why?)
So I'm going to try and blend some weetabix before adding milk and seeing how he does. He's 7mo with a developmental delay and CMPA so really struggles with any lumps at all. Help?!

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quietbatperson · 07/03/2015 17:06

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quietbatperson · 07/03/2015 17:13

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zoemaguire · 07/03/2015 17:57

Horses for courses:) Depends what it turns out that your LO likes best too. I find coconut is tasty but it has quite a distinctive taste, whereas oatly blends in better for stuff like sauces.

BeansInBoots · 07/03/2015 18:43

Can anyone shed any light on the 'fortifying stuff' that I can add to oat milk to make it more.. Nutritious? Better?
I find I have more luck getting things if I know exactly what I'm after!

I also have a 2yo dd, who on the whole I aim to have on the same diet as ds, so I assume she will benefit from that as well!

If I can get fortifying stuff I'm Deff going to give home made oat milk a go!

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HangingInAGruffaloStance · 07/03/2015 19:54

I would push to at least speak to a dietitian for advice. We were specifically told not to give dd oat milk or almond milk, even though she was still breastfed as well.

zoemaguire · 07/03/2015 19:58

Found it! It's called duocal. I don't know if it has enough calcium etc on its own - its main purpose is to boost calories. Sorry I think I was being confusing earlier - there is fortification as added by the oatly manufacturers, which involves adding calcium, but then also calorie fortification which is what our dietician told us to do, which involved adding prescription duocal to oatly! Sorry, clear as mud! Oatly is marketed as a low fat milk alternative, which is fine for adults but no good for little ones, hence the need to boost its calorie content.

Duocal+oatly wouldn't work as a main milk for under 1s - it isn't a formula equivalent. Dd did have it as a main drink from about 18mo after she stopped breastfeeding. We used it in porridge etc from diagnosis onwards, so from c 8 months. I suspect you'd need to see a dietician to actually get the duocal prescription though and determine dosage etc, unless you have a very confident gp!

Hope that's useful. I'm sure there are different ways of going about it all, I'm just relaying what we did based on the medical advice we were given.

slippermaiden · 07/03/2015 20:05

Fruity pots, puréed fruit, mix in baby rice. Fruit purée mixed with weetabix?

BeansInBoots · 07/03/2015 21:51

The gp who we are most often is actually a registrar, and as awful as it sounds if I say that I want to try something she doesn't even question me.. Which is handy!
So when I suspected a milk allergy one doctor said no and sent us away with gaviscon, saw this Dr a week later as no improvement and basically just said 'you know him best..' And gave me a pescription for Nutramigen.. I will try and get this and hope it helps!

We have been referred to the dietician but are now playing a waiting game, but until then he's really refusing any food with nutramigen in obviously, it's vile but I've scared myself reading about soya!

Il get some oatly (are all brands of oat milk the same or is this The One?) and try him on it next week, and hopefully get the fat booster for it!

You guys are amazing Flowers

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zoemaguire · 07/03/2015 22:03

My children claim that Oatly is The One, and splutter and complain if I try to sneak in an imposter. But I suspect they just like the blue packaging - there are other brands that look and taste pretty similar to me! I think ?provamel do one as well - they are all there on the same shelf anyway. They are all sadly similarly pricey:(

BeansInBoots · 08/03/2015 09:13

In which case I might just start with the cheapest one I can add onto my online shop and go from there!

So ds eczema has been pretty under control since starting on nutramigen, never fully went but never got worse.
We've been weaning him for a month now and he's reliably having hipp fruit pots, weetabix with nutramigen, broccoli and sweet potato, carrot, and sweet potato.
His eczema has come back with a vengeance, he's covered and he's started being sick again.... Is this another allergy? :/

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HangingInAGruffaloStance · 08/03/2015 11:30

Could well be. My niece is allergic to butternut squash, apparently more common than you'd think. Eggs and kiwi fruit are other common ones.

Dd got seen by dermatologist and allergy consultant at hospital, this helped us get a handle on it. She had blood tests which identified the problem foods from a short list without having to exclude them all.

BeansInBoots · 08/03/2015 13:35

So it may not be wheat, from the weetabix, it could be banana from the fruit pot or something.. I didn't even think of that!!

I'm going to start a food diary to try and see a pattern :/

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KarmaNoMore · 08/03/2015 19:09

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quietbatperson · 08/03/2015 19:27

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Basketofchocolate · 08/03/2015 19:31

We give DS cereal with Oatly, bread and honey, crackers like the huge rice crackers with jam, fruit loaf with DF spread, tinned fruit alongside some of these.

BeansInBoots · 08/03/2015 20:30

So I'm going to do a food diary for him, and pretty much start again with his diet.

What fruit are 'safe'-ish? :/

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HangingInAGruffaloStance · 08/03/2015 23:03

Apples come fairly low risk, particularly cooked.

I am banging on a bit here, but some input from a dietitian and/or allergy consultant is important. Restricting diet is not be done lightly. You may need to go back to GP and tell them there are signs of another allergy, and that you are removing foods from diet, and need more input.

quietbatperson · 09/03/2015 17:30

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KarmaNoMore · 09/03/2015 18:38

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BeansInBoots · 09/03/2015 18:50

He has been assessed by a paediatrician who has agreed with the Dr that he has a CMPA, we are on the very long waiting list to see a dietician, to try and make sure his diet is nutritionally complete, but until then I'm trying to round up knowledge from others who are in the same position but further ahead in the journey. I really haven't taken this diet restriction lightly, but trying to do the best you can for your child with only Google as a resource is hard work :(

Thanks for the advise everyone! I've put some oatly on the shop for tomorrow so will give it a go!!

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HangingInAGruffaloStance · 10/03/2015 07:44

Sorry beans, wasn't meaning to sound critical, just know how hard it is when you don't have help which is just for you.

BeansInBoots · 10/03/2015 08:29

No, no, it's fine! I'm probably coming across as one of those people who arnt ever wrong about what they think and they will forge ahead regardless and a hippy due to interest in making her own oat milk!
But realistically, the cost of feeding him a dairy free diet is going to close to cripple us, and I'm worried about trying to make him healthy- he was born on the 75th centile and is now in the no Mans land at the bottom in 0.2 :(

I really appreciate all the help!

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KarmaNoMore · 11/03/2015 20:28

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