Following the discussion about councilling for children with allergies and funding. PLEASE READ

[youarekidding]

OK, many will remember the great thread babybarrister started re children with severe and multiple allergies not having access to councilling, and that similar was available for diabetic children.

You may remember I contacted AAIR Charity, (using my other name heliumballoons at that time).

They have emailed and want to ring me to chat and do an article for their newsletter.

As this wasn't my thread and many contributed to BB's thread I thought it would be great if everyone put some suggestions of what can be said, what we want here and I can pass it all on.

I also wondered whether I was allowed or should mention the chat originated from Mumsnet? MNHQ if your reading this can I or should I?

3 DS here. All have intolerances/allergies and the spread of atopics. But they are all different and have had different experiences.
1 frequently hospitalised with asthma, 1 with swallowing difficulties, 1 with CMP, fructose and sucrose intolerance and allergy to banana. They kind of support each other - and in a way it makes cooking easier as i'm doing it for more! Agree with the holidays comment. We only do self catering - and have to take most of the things that they will need with us. So there is actually no break from the cooking and watching over at all. Constant vigilance must take its toll in some ways on our own health. Worry too - on who would do this job if i was to become ill (DH - excellent provider, burns toast, forgets which DS has which problem).
It's strange that other 'invisible' conditions, such as autism, carers can get respite for a few hours a week. Although with a DS with SEN as well, i know that many don't get this support either. But the idea being that when you look after someone with a chronic lifelong condition that the carer needs a break away too. Siblings often are given a young carers club as well, where they can do activities in their own way without having to always be worried as to what effect it may have. But even this support for siblings gives them a forum to rant as well within their peer group and not with adults.

Hmm both mine had/have allergies but because both dh and I have them too it was never as big an issue as it was never an adjustment for our family (dh still v allergic to chicken/eggs, dd was egg/milk/soya and ds was milk).

My biggest problem was the nursery that nearly killed dd by giving her milk and the the same chain (diff branch) did actually go on to kill some poor little baby boy by giving him milk. Even our GP was pretty clueless.

Psychologically, for me, my biggest battle was the reflux they both had because of the constant crying and no sleeping.

I think there needs to be more awareness. A lot of people don't take allergies seriously.