please recomend a cream or eczema specialist having problems with everything tried

[cakenomore]

any thing i put on 2yrold son's eczema seems to make it worse. tried double base, dipro base, E45, Aveno, Epaderm and loads more. all causing problems, noticably red and inflamed after use and gets better when stop using. Using eumovate ointement (cream version caused more irritation) daily which also irritates but steriods seem to benifit.

anyone else had this problem? health proffessionals treat me as neurotic mother. I think its the parrifin causing problems but also preservatives in creams.Can anyone recomend anything?

Also i think i need to see someone a bit more knowledgeable than local hospital dermatoligists. Can anyone recomend anybody?

I second that
Ditch snake oil and chemist over the counter stuff and see a proper paediatric dermatologist!

dont buy off any online quack,charlatans making hyped claims.avoid

as for miraculous claims - well hmmm.he would say that.given he sells it for profit

Dh uses aloe Vera based products he says definitely help. I can check the brand but lots of chemists will sell a version from straight sloe Vera gel, which I use for pregnancy itching, to more complex products.

I am terrified ds will suffer too as dh gets it so badly so am keeping an eye on treatment ideas already.

Homeopathy got rid of my DD's eczema. We saw a homeopath and were prescribed 2 lots of tablets and then it went and never came back. It wasn't cheap but it was worth it. I have never used homeopathy for anything else as I am usually a 'give me some medicine' kind of person.

ah yes, that's right - because those arbiters of human decency and altruism, the pharmaceutical companies, of course they make stuff out of the goodness of their hearts and just give it away, with no eye to profit...

pharmaceuticals are about profit,same as homeopathy

except pharmaceuticals is tigher legislation and an obvious pay your money transaction.unlike homeopathy

homoeopathy has veneer of treatment.when it is in fact inflated placebo thay you pay for.so dont kid self on that homoeopathy isn't about profit imperative too. hence consultations, and paid forrecommendations

eh? of course homeopathy (or in fact the stuff I was talking about, which wasn't homeopathy) are an obvious pay your money transaction - d'you think they should give their services away for free?

Pharmaceuticals might be more tightly regulated but that doesn't stop downright dangerous pharmaceuticals coming onto the market, does it?

Homeopathy may appear placebo - but if it works, then it's achieved the aim, hasn't it - you pay for treatment, treatment works.

The OP has tried a lot of different products, many of them pharmaceutical and they're not working - so trying other avenues is a valid option.

why sneer at pharmaceutical profit,when homoeopathy is for profit too? you assert big buck motivates pharmaceuticals- yes.just like homoeopathy.and no a business person like homoeopath wont give away treatments they need clients to pay to cover costs, hire consultation room, and cost of placebo

and selling placebo as treatment in my opinion is unethical.as it alludes to clinical efficacy that homoeopathy cannot and has not been able to definitively prove

so to paraphrase you homoeopaths are not wholly altruistic and dont of course recommend stuff out of the goodness of their hearts and dont just give placebo away, with no eye to profit...

SM - you started the profit-sneering, not me. I was responding to your comment.

so you agree homeopathy is for profit,same as pharmaceuticals?

certainly i advised not to buy off on-line quack,to which you opined on the profit motives of pharmaceuticals.inference being homoeopathy is somehow removed from this profit imperative.which of course isn't true

SM - if you read back, you will see that I made no mention of homeopathy, someone else posted their own experience of homeopathy which I (unfortunately, it appears) x-posted with.

I was discussing your comment re. the post I made on the pawpaw man.

YOUR implication appeared to be that anyone offering anything OTHER than pharmaceuticals should not be profit-driven - why not? If you have something for sale, it makes sense to make a profit out of it, whether it's goods or a service.

Hence my comment. You have chosen to make it about homeopathy, I have already stated that of course they are an obviously paid for transaction - I don't know really where you think I have stated otherwise.

you linked man selling for online profit and called it miraculous?really can he walk on water?raise the dead?

nope?

thought not, so he isnt miraculous then

My daughter had really bad eczema when she was a baby, after finally getting referred to the dermatologist at the hospital the infection was cleared up with antibiotics and I managed to keep it under control by using Hydromol everyday especially after a bath. oilatum in the bath, and hydrocortisone 1% ointment but only when it got really red after she had been scratching. I found that anything that wasn't oil based had no real affect on her skin as it didn't moisturise her skin at all it just sat there irritating hr more.

Hydromol worked wonders and keeping her away from anything perfumed like fabric conditioners and using non bio washing powder.

It is only God that can do all that!

SM - you are clutching at straws now. I said his STUFF was NEAR-miraculous - and actually anything that can reverse gangrene, as reported, IS near-miraculous.

Look, I get it, you don't like anything non-conventional - but the OP is looking for help and there are non-conventional treatments that may help her child.

Hi Cakenomore, I am in exactly the same position. By trial and error of many of the prescribed products you listed, I have worked out DD is sensitive to petroleum based products, but my first visit to a dermatologist ended up in him saying it wasn't something he had heard of and I was probably wrong. I complained and got a different dermatologist but they still don't believe that her reactions are possible! The eczema clinic nurse said that it was maybe the way I was putting them on (rubbing not smooth downward strokes as it should be )and gave me sample pots of Epaderm. This maked her eczema worse over a couple of weeks and used in the bath provokes an immediate redness and itch, but they say it would be unusual if it does happen and told me to keep trying!!!
I have done a home patch test with White soft paraffin under a large (hypo allergenic!) plaster, and a control one too and there was definate irritation under it after 48 hours. Maybe ask for patch test although they reluctant to do it on smaller ones...
I have even asked pharmacists what the difference between White soft paraffin, yellow soft and liquid paraffin is incase its only one that she is sensitive to but no one actually knows!! Unbelievable considering how widely they are all prescribed...

The consultant to his credit says he will work with my opinions (tho clearly treating me as neurotic!) and said to try COCONUT OIL. You can get it in a refined, bleached and deodorised version,Bells, from a pharmacy in 90g tubs to try , or as a pure cold pressed virgin organic oil from a health food shop (Biona is good and reputable). It worked well for a bit then I used the organic one and she came up in extreme itching and hives, and it's probable she is now sensitised to it now as well as the other nuts that appeared on a RAST test.

Sorry to go on, I am just so relieved to know it's not just my child, and now I feel less neurotic!

Good luck, it feels like trial and error in the dark and I am really hoping our children grow out of it...
Please pm me if you want a longer chat, it's interesting to see someone else working along the same lines :)

Dr Atherton is your man. Had similar problem with DS at 3 months, nothing seemed to work and I too thought paraffin or preservatives might be the problem. Dr A's prescription brought a 95pc improvement within 24 hours and after about a month we were able to use only the moistuiriser. Still doing well a year down the line. Well worth the expense- I only wish we'd seen him sooner.

thankyou so much for all your input. i now have a list of things to try. feeling much more positve.

biblomum - so great to hear how your ds grew out of it.

rainbowgirl - great to hear from you. shame you are going through this too. have tried coconut oil which bothered him too. i was using a blend of evening primrose oil and pure pressed sunflower oil. which worked for a few months but seems to be irritating him now. would be good to pm you and maybe we can share any ideas and experiences. am useless on computer tho, how do you pm people?

If you go into Dr Atherton's clinic you see some of the worst cases in the country, children that look like burns victims, their eczema looks so bad. He can and does sort them out with therapies a lot less expensive and invasive than many other treatments, including some of the 'alternative' remedies cited in this thread.

My DD had a pretty bad case, involving inflamed skin, us being up all night and so on, but she too was sorted out very rapidly. It really is worth getting advice from him. He will liaise with your GP as well and make sure there's good follow up.

my whole family including myself suffer from allergies and my youngest son couldnt have cream put on his bottom at all so I just stopped using it and made sure he was washed before each change.. I wouldnt use anything to be honest. but try Surecare for your washing. and stop using baby lotions. creams or oils.. even if its the Family Company there from. it means nothing.. they are still full of harmful chemcals and mothers are kidded that they need all this expensive rubbish when all its causing is more harm.. also dont use perfume around or near the baby. and dont put anyting perfumed in the bath either.. Dogs and animals around kids also pose a problem with skin disorders.. so watch our for that too.. good luck.. Im a contact support by phone for Allergy UK let me know if you need anymore help....

Hi Cakenomore, I think you can click on "message poster" on the bar where my name is and it takes you to a email writing thingy that gets sent to my inbox? Sorry it's early and brain is not working! Will send you message, check inbox to see if it works... :)

cant stress enough about getting rid of anything smelly in the home.. this covers mostly.. soap powders. fabric conditioners.. as these would be on or near the body 24 hours.. also dogs cats. carpets. cleaners of all sorts including spray polishes. One child I know of with terrible eczema clears up when in hosptial for a week but returns as soon as hes brought back home and his parents just wont listen.. they still have a large dog and think its ok if it doesnt go in the boys bedroom..

Dr Mary Glover at Great Ormond Street. Fab.

Cardomon can i ask - did you have to go private for this? Im going to push for a referal to see a dermatologist as dds eczema not really responding to steroid treatment from eczema clinic

We did go private, but you can do it on NHS. Great Ormond Street is tertiary healthcare, which means that a referral needs to come from a hospital and cannot come straight from GP. However, as I understand it from a different GOSH consultants' secretary, another option is to pay for the initial consultation at GOSH, then, if the consultant believes that your DC should be seen by them, they write to your GP asking for a referral. Don't quite understand why having a GP referral this way round in OK, but it's not OK the other way round. Dr Glover has done wonders for DD. I've found with paediatricians (so far gastric and dermatology) that it's often only when you get someone right at the top of their field that they have the conviction and confidence to use strong enough meds in large enough quantities. Otherwise people just faff about with stuff that is just too weak to make a difference. And that includes general paediatricians.
If you want Dr Glover's secretary's number, PM me and will email it to you. XX