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Adoption

Here are some suggested organisations that offer expert advice on adoption.

Accessing Funding for therapy

46 replies

Moosehat · 08/09/2019 17:09

I'm hoping for some advice and guidance. I have an 8 year old (nearly 9) adopted son who was placed with us six years ago. He is a wonderful boy who is often genuinely lovely, but he has some very significant issues. He suffers from Attachment difficulties and problems with Sensory Integration. There are also strong indicators that he suffered sexual abuse whilst living with his birth family and was certainly witness to domestic abuse.

Over time, all of this has translated into some pretty shocking anti social behaviours by DS which are getting very hard to control. These include an obsession with weapons, an inability to regulate his emotions and sexualised behaviours both at home and at school. Due to his obsession with weapons, we have to keep any dangerous items locked away as he has threatened to stab me / cause harm to himself on many occasions. He has also brought knives into school and on one occasion he threatened our neighbours child with a screwdriver. We also have to look at innocuous items and assess their capacity to be turned into weapons. For example, pencils, paperclips and pencil sharpeners also need to be locked away as he will use pencils to stab, he will unravel paperclips into a sharp piece of wire and he will remove the blade from a sharpener. We cannot keep photos in a glass frame, as he will smash the glass to obtain a lethal shard. The list of things that DS can make dangerous is endless, and frankly we can't keep on top of it. He needs significant therapeutic interventions to overcome his issues and if he doesn't receive the help he needs soon, it is a foregone conclusion that he will cause genuine and significant harm to another human being. This is more than a likelihood. I would say it is a certainty.

His sexualised behaviours have also escalated. His school have created a report containing a long list of sexualised behaviours he has been displaying there for nearly a year and these behaviours include exposing himself and touching others genitals (both pupils and staff), but recently those behaviours have gained traction at home as well. Pretty much every day I have to stop my son from either trying to touch my private parts, or trying to force my hand down to touch his. I can now only have a shower when my son is not around or when my husband is available to guard the bathroom door, otherwise my son will unlock the door from the outside and barge in. When going to the toilet, I have to keep my foot against the door to stop him trying to come in. He needs help with this as well to prevent him posing a sexual threat to others as he gets older.

There is more. Almost every day since he was placed with us six years ago, he has physically attacked us. This wasn't much of a problem when he was three, but he is now bigger and these days it hurts when he attacks us. Now, after six years of domestic abuse and with the problems escalating, we are getting dangerously close to breaking point and our capacity to remain calm in the face of this abuse is rapidly deteriorating. Both mine and DH's stress levels are in the clinical range.

However, we have not just sat back and watched this unfold. Two years ago, we got an psychological assessment done via the Adoption Support Fund (ASF). However, the assessment wasn't done properly as the LA instructed the psychologist to do the assessment in half the usual time to reduce costs. However, we did get a report with some recommendations for therapy. Following that assessment, I then wanted to progress with therapy using a company called Family Futures, but the LA refused to refer us to Family Futures on the basis that they would be too expensive. So we found an alternative practice who could provide therapy within the ASF limits, and we progressed therapy with them. However, it did not go well. The alternative practice did provide us with some excellent training in parenting techniques that have proven extremely helpful in containing our sons behaviour at home, but the actual therapy was a disaster. The therapist was not fully qualified in the therapy DS requires and was frankly out of her depth in dealing with his very complex issues. In short, the therapy was doing more harm than good, so after a year we terminated therapy with that practice. This did not go down well with our LA.

We have since had another psychological assessment done for our son, and this time the assessment was done by Family Futures and was done properly. However, their recommendations for therapy cost far in excess of the Adoption Support Fund fair access limits. The costs are estimated at around £30k for the total therapeutic package (i.e. not £30k per annum, but £30k in total). So we are now in a position where we need the local authority to match fund the surplus £25,000 with the Adoption Support Fund. However, our local authority have taken the position that they will not match fund under any circumstances. I had hoped that we might be able to suggest a three way funding partnership, whereby the match funding could be split 3 ways with us, the LA and the ASF, but it turns out that the ASF will absolutely not match fund with adoptive parents, only with LA's. This is an insane position to take and it puts us in a terrible position, because we absolutely cannot afford to pay the full £25k suplus for therapy. However, we would have been able to rustle up £8,500 if the therapy costs could've been split 3 ways.

I don't know what to do here. Without this therapy my son will not improve, and given that he is fast approaching adolescence there is a very good chance that his issues will in fact get worse. It will not be long before he presents a genuine risk to others, and I can clearly see a situation whereby in a couple of years time, we will reach our breaking point and will call Social Services asking them to remove DS from our home. It will then cost the LA £50k per year to keep him in care until he is 16. Yet here we are asking for a one off payment of around £12k (if the match funding is done entirely by the LA) to prevent that from happening, yet they are taking the position that for financial reasons they will not match fund under any circumstances. I have considered offering to split the LA match fund on a 50:50 basis, so that the ASF pay £12K of the surplus and the other £12k is split between us and the LA, but I don't know if that will be possible or whether they'd consider it if it was. I am stunned by how immoral the LA funding position is. I am also stunned by how inflexible the ASF access to funding is.

I'm sorry to send such a long post, but I have tried calling the Adoption Support Fund and our original Adoption Agency, but no one has been able to offer any helpful suggestions. I can literally see our family crumbling away before my eyes and I'm terribly frightened for my sons future. If DS doesn't access appropriate therapy soon, then all I can see on the horizon is a life in prison for DS.

Family Futures have told me that there are many LA's who take the same position as ours with regard to match funding, and that many LA's do hold to that position. They have also told me that for many of the families they work with, theirs has been the first family that their LA have broken this rule for. Does anyone out there know how this has been done? Can anyone give me some advice on how to progress?

I'm really sorry for making such a long post, but I'm desperate to get my son the help that he needs before he does harm to himself or another person. I'm literally trying to save my family here.

OP posts:
Moosehat · 13/09/2019 12:41

Hi everyone

Sorry for the radio silence. I work Monday-Wednesday and by the time I get home and spend some time with my son, it's too late for anything else. This is has been the first time I've had a proper opportunity to reply to your messages.

Thank you so much for your many replies to my original post. I'm really touched by the effort so many of you have taken to offer me some advice and guidance. It's made me feel quite emotional, but also restored my faith in humanity. I'm so used to being rejected by the governmental bodies that are are in a position to offer help to adoptive families, that it's come as quite a shock to have so many people trying to help that have no vested interest whatsoever in doing so. Thank you.

Following the suggestions of a number of people on this thread, I've now spoken to the Adoption UK helpline for some advice (I couldn't get through to Coram, but have left a message). Unfortunately, the news is bleak. According to Adoption UK, Local Authority's only have a legal duty to Assess the needs of a child in their borough (and our local authority have done this twice for us). But they have no legal duty whatsoever to provide the therapy recommended if it exceeds the fair access limits of the Adoption Support Fund.

Some local authority's do provide match funding if there is a strong risk of adoption breakdown. But families are in their strongest negotiating position following placement, but prior to adoption. Once the adoption has taken place, then the Local Authority is not obliged to take the child back into care unless a place can be found for the child. Such places are in short supply and are prioritised to children who have been removed from abusive homes.

So basically, the LA have got us over a barrel. They're not obliged to provide our son with the therapy he needs if it exceeds the limits of the ASF and they are not obliged to remove him from our care simply at our request. We can threaten the LA that we are close to breakdown, but they know that we are legally unable to just abandon our son. We are his legal parents, and we are obliged to care for him until adulthood with or with the therapy he requires.

It's absolutely ridiculous. This is a child's future we are taking about. And I can categorically state, even as someone who loves him, that my son will pose a danger to society if he doesn't get the help he needs. The scariest part is that I don't think I'm alone. I suspect that there are many children out there, damaged by their early years experiences, who are left to struggle through life being denied the help the need to become happy, productive members of society because funding that help affects the bottom line of a LA spreadsheet.

Adoption UK did suggest that I appeal to the "higher-up's" in the Local Authority, as several of you here have suggested, although they basically said "it's worth a try" rather than "this will work". So I will be penning a letter to the Director of Children's services and copying in anyone else who might be in a position to help.

I'll keep you posted.

OP posts:
sassygromit · 13/09/2019 18:10

Over how many years did FF envisage the therapy would last? Can you go back to them and get them to re-do their costing so that they just include what is envisaged to be necessary in the first year. If they can get this revised annual figure under 5K all the better. If not, the way round it might be that they specify 5Ks worth of treatment in the first year so far as ASF is concerned and then have a separate contract with you for the remaining element of the year one therapy - so you aren't match funding. Though check that doesn't break any rules obviously.

It seems a bit bonkers for them to give a lump sum figure which is not annual if they know the ASF operates on an annual figure. Unless I am missing the point. I said it before but my impression was that Beacon House were a bit more savvy re funding but I might be totally wrong.

sassygromit · 13/09/2019 18:11

And as a PS to that - if what i suggested in my first para is acceptable for first year they simply need to do the same thing each following year.

Moosehat · 13/09/2019 19:40

Hi Sassygromit

You're not missing the point. FF have given a total cost for a therapeutic package that is not broken down on an annual basis.

It's difficult for FF to be specific about how long therapy will last, as they can't tell until it starts and my son's progress is then monitored. But their estimates are for x20 four hour sessions. I'm guessing they're monthly sessions, so 18 months worth of therapy for my son. There are also x3 full days of therapy for myself and DH which are apparently essential and have to happen up front. The total cost of all that is around £20k and there's no way to get it for £5k annually.

In addition to that, there are various assessments, analysis and support services that they have costed for as part of their therapeutic package, and these all add up to a hefty sum. I'm not sure yet whether those additional items are essential, or merely recommended as part of the "gold standard" of treatment, but I'm sure some of it could be trimmed.

But none of it helps really if the LA are adamant that they will not match fund. We can contribute some money, but there's no way we could pursue treatment with FF without some LA contribution.

You're right about Beacon House being more savvy about the costings though. I did look at Beacon House actually as a potential provider for therapy. They've got a very good reputation and several people I know have recommended them. Plus, they are more reasonably priced than FF. Unfortunately though, they only take ASF referrals for families in Sussex, and we don't live in Sussex. Sad

OP posts:
sassygromit · 13/09/2019 20:53

Thanks for confirming that - what a shame - their team and their materials look impressive, more so than FF dare I say it.

Italiangreyhound · 13/09/2019 21:19

@Moosehat I am so sorry this sounds so awful.

I do not mean to be suspicious but I would see if you can get legal advice on the information you have been given.

I just don't know "We can threaten the LA that we are close to breakdown, but they know that we are legally unable to just abandon our son." sounds so terrible. Sad Angry

assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/301889/Final_Report_-_3rd_April_2014v2.pdf

This is very depressing reading but page 202 is very interesting.

Moosehat · 14/09/2019 10:04

Hi Italiangreyhound

Hmmm. That’s report is really interesting. I didn’t read the whole thing (obviously, it’s huge!), but I did read page 202 and a couple of pages before and after it. And it seems that adoptive parents can relinquish their child back to the care system, so perhaps the advice I was given from the lady at Adoption UK is not wholly correct. Although it also seems that relinquishing a child is not just a question of picking up the phone and calling social services, so in that respect she was correct.

Thanks for sending. I may well take some legal advice.

OP posts:
Ledkr · 15/09/2019 08:38

Op. I just wanted to tell you to definiteky go as high as you can go.
I work in adoption support and we are all so frustrated with the constraints of the Asf and agree with all your points about early intervention being much more cost effective than the long term prospects let alone the cost to your poor sons life!!
I have known a few cases who have eventually achieved the extra funding (2 from FF as it happens) but after a long fight and involving just about everyone as high up the chain as they can. So its worth keeping going if you can.

If you get nowhere then I can recommend a programme called NVR which might help you but he without doubt needs serious psychological intervention..
Good luck. I know how exhausting it is trying to fight the system whilst parenting such a traumatised young child.
Flowers

Italiangreyhound · 15/09/2019 22:10

@Moosehat I am glad it was helpful. I think no one ever wants to think about relinquishing their child and in one sense if you adopt a child they are your child and they cannot just stop being (as far as i am aware, unless someone else adopts them). However, that is not to say that the best thing for the child or parents is for the child to continue to live with you.

Your child not living with you is a very scary prospect and maybe at times a welcome prospect for some. But it also may be a way of showing just how seriously you are taking this. And how dangerous/scary/damaging etc the situation is that you are even thinking of this.

I am not sure all local authorities have exactly the same rules, I am not sure all the rules are adhered to, or adhered to equally and I am not sure that I would 'trust' anyone on the end of the phone to necessarily give you 100% accurate information when you are talking about something so serious.

And, one would hope, this situation is so rare (as a child being a danger to his adoptive parents or his community) that many in social services may just not know the full extent of the law, IMHO.

In the nicest possible way I would look into every aspect of this and just be a real pain the arse, in a nice way you can, to get what you need. So in the end helping you get what you need is better for the service than facing the consequences.

Thanks thinking of you.

And agree with Ledkr "Op. I just wanted to tell you to definitely go as high as you can go."

Thanks
sassygromit · 17/09/2019 13:32

OP, I would strongly suggest that you find a really good clinical psychologist with expertise and experience in relation to developmental trauma, or a psychiatrist, and pay for an assessment and start therapy, funded by you, while you are pursuing the ASF funding. I realise that this is not ideal but this problem is not exclusive to adoption, non adoptive parents are also failed in relation to mental health and some of those that can afford it, pay for it.

I would also reconsider FF - looking at what you have said and what therapy you could get with the ASF with the additional LA matched fund (looking at the rules).

I would also look at doing more therapy at home, as there are some very effective things you can do, if you have the time and enthusiasm, the effect being far more than just containing, in relation to sensory integration and regulation. Re the weapons, there are some very dark feelings there and you are right to get prof help, but at home things that may help considerably is helping him to see and experience good things and making him aware of the kindness that exists out there, and get him interested in using his strength to save people, take him out to fun things as much as possible to raise general levels of happiness, find out if root cause is things happening at school. NB testosterone surges may be more difficult for him to handle due to regulation problems. RE sexual behaviours this could be to do with something happening to him currently or in the past and it may help to talk to the nspcc and other charities to get advice about how to talk to him to find out what is troubling him. In this way, break down the various complexities into simpler units to progress now rather than wait.

@Italiangreyhound in one sense if you adopt a child they are your child and they cannot just stop being did you mean to say "in one sense"?

Italiangreyhound · 17/09/2019 17:03

@sassygromit yes, I meant if an adopted child can be returned to care, or adopted by another person, or even cared for full time by another person then in that sense adoption is not necessarily always final. Of course in most cases it is, which is great and how it should be.

I cannot imagine my adopted son ever not being my son. I cannot imagine my birth daughter ever not being my daughter.

However, there are things people can do to sever the birth child/parent relationship and so likewise there are things people can do to sever the adopted child/ parent relationship.

So I am not attempting to undermine adoption, but in the context of this thread sometimes that relationship is not going to always involve the parent caring for the child. But will usually involve the parent caring for the child, if you see what I mean.

Italiangreyhound · 17/09/2019 17:05

Sorry... parent caring for the child (practical) verses parent caring for the child (caring about the child).

sassygromit · 26/09/2019 09:41

I was talking to another mother at a dc sports club who happened to be a psychologist, and I asked her about parents doing therapy at home - because although I have done it myself with a dc who needed help with sensory integration a part of me wondered how good an idea it was, as parents are not usually skilled. I had no option - at the time we had no one near us who could help.

I thought I'd pass on that she thought that parents doing therapy for things like sensory integration was of huge importance, if the parents could do it, with support and advice where needed - because it takes time for a therapist to establish a relationship, parents already have that trust and knowledge - and because the therapy is things that parents can do and in fact is incredibly time consuming - lots of long hikes, trampolining, arranging cranial osteopathy, reading and doing things together - this is all really important, would cost an absolute fortune if therapists were doing it - wouldn't be feasible because of waiting lists so drawing out therapy if waiting for therapists, and so on.

Hope that all makes sense and is helpful.

@Italiangreyhound I think my responses are probably for another thread, but basically you cannot parent from afar, the child will be being failed unless someone steps in to do that role. I am not saying that you are wrong that adoptions should break down, because if the parents can't cope then that is no good for the child either, but far more could done to prevent it happening. It is not an inevitable that some adoptions will break down. Plus more effective solutions are needed ready for situations where it does happen. To me the report you referred to is an indication of not only the total lack of joined up thinking but also how little has been done, which could have been done, since I was a child - a while ago now - which is pretty damn appalling. Though there is more professional help available now compared to when it was written, I think.

Italiangreyhound · 26/09/2019 14:51

Hi @Moosehat how are things going?

Any developments?

@sassygromit "I think my responses are probably for another thread" Do you mean a thread I am on as well, or just another one you are on?

"...but basically you cannot parent from afar, the child will be being failed unless someone steps in to do that role." Totally agree.

"I am not saying that you are wrong that adoptions should break down, because if the parents can't cope then that is no good for the child either, but far more could done to prevent it happening."

I am not saying adoptions should break down. I am saying that sometimes adoptions do break down. And if an adoptive parent can see that coming then it is better to flag that up, to the appropriate authorities. e.g. "I need you to realize unless XYZ happens almost certainly ABC will happen." Sort of thing...

"It is not an inevitable that some adoptions will break down." As an adoptive parent I would not ever assume it was inevitable that adoptions break down, indeed the whole point of flagging up "Our family is in danger, please help." Is to stop an adoption breaking down.

"To me the report you referred to is an indication of not only the total lack of joined up thinking but also how little has been done, which could have been done, since I was a child - a while ago now - which is pretty damn appalling."

I completely agree.

And it is hugely short term thinking to deny vital therapy now, when it could make a world of difference.

There may be more professional help available these days but I think one big issue is who is paying for this help?

Adopters are rarely very rich, often only one parent works or works full time and so adopters do not necessarily have the funds to pay for help. So the issue is both is suitable help available (in the case of Moosehat it looks like help may be possible) but also how will it be funded.

sassygromit · 26/09/2019 15:14

I meant another thread to be started (if someone wanted to start it - I don't) as the discussion didn't really belong here.

Though you can raise what you want, of course.

Italiangreyhound · 26/09/2019 20:52

Ah, I see, you start one and i will join in!

Italiangreyhound · 26/09/2019 20:53

Or anyone else! because I don't know what it would be about.

sassygromit · 26/09/2019 21:42

It would be about what you said originally, which I had responded to!

Italiangreyhound · 26/09/2019 22:04

Ah Ok, well I think we covered that.

sassygromit · 27/09/2019 08:54

Actually from an adoptee perspective there is more to say, but this thread is about therapy.

In relation to finding help and funding help you are right - and you say adopters don't always have funds and of course that is right too. It is the same for non adopters, depending on where they live.

If you divide the annual fund by 52 weeks you get @£98 and if you add on the matched fund amount you get @ double. That would pay for decent therapy, I think, but not enough where problems were complex. But having said this, it seems that adopters are encouraged to struggle on as though behaviour which is clearly not normal is something they just have to deal with (eg the OP said she got help 2 years ago but had been dealing with daily attacks since day 1) and should be encouraged to get help far, far sooner? As time goes on things get more complex. An expert would be able to pick up on clues re sexual behaviours and violence, and the earlier sensory integration is dealt with the better - the younger the child is the better.

Italiangreyhound · 28/09/2019 11:28

@Moosehat i really hope there are some developments. But I fear not as you've not been back for a while. Really hope you persist and get somewhere.

@sassygromit yes definitely earlier intervention better. The OP has been failed by the authority not engaging propely IMHO.

Yes birth families don't necessarily have the funds either. Any family brining up a child who could be a danger to themselves or others needs support because the cost of failure will not just be born by the family but by others.

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