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Undiagnosed ND girl - very hyper, does it get better?

55 replies

Lylaswanie · 03/03/2026 22:50

I'm getting more and more frustrated with DD (8), I feel every day is a struggle. She's not diagnosed as we weren't aware she was ND until she was almost 5.

She was very verbal early, hit all milestones on time, always pointed and asked for things, no unusual tantrums, great eye contact, social. Went to nursery since she was 2 and when she left the teachers said she'll do amazing when she goes to school. At that time she would be happy sitting down doing some art, she'd have a go at all activities, listened etc etc. Just a typical, happy child, very well behaved too.

As she's getting older, we and her school can see clearly she is ND. I'm trying to put her on a waiting list for assessment, I've got an appointment with GP soon.

The thing that worries me the most is that she is VERY HYPER. She isn't hyper at school, but when she comes home we struggle to have a back and forth conversation with her. She just babbles irrelevant things, winds us up constantly and bounces off the walls. It's starting to impact my mental health as I really don't know what to do to change things. I take breaks from her by just going upstairs and leaving her with her dad. She's becoming a bit more unfocused at school too, makes mistakes, very slow with work and she's aware she is no longer doing as well as she used to. Last year she excelled at some many things.

Can anyone offer any advice? Do things get better when they grow or are we just going downhill?

School suspects ASD, but I'm sure there is ADHD as well.

OP posts:
MyTrivia · 06/03/2026 19:14

Can anyone explain how stimulants work for ADHD? Does it help focus the mind? My ADHD 16 year old has a thing for energy drinks.

stichguru · 06/03/2026 19:45

I agree with the poster who said maybe don't interrupt her. I have Cerebral Palsy and also memory difficulties, and I guess I sometimes did this as a kid. Almost kind of "stream of consciousness" talking. It was not me expecting the listener to accurately understand every minute of my day, it was more me reminding myself what had happened, and hopefully triggering anything I needed to remember. It was very annoying if I was interrupted because it spoilt my recall. I still do it now a little but I'm mature enough to know that no poor soul wants to listen to it!

RavenLaw · 08/03/2026 23:05

PinkPetal21 · 05/03/2026 14:11

Thanks RavenLaw - that's interesting to hear you are managing without medication. What kind of things does the OT do that helps your daughter?

Yeah, just heard others reporting side effects such as sleep problems, weight loss, depression etc, that do worry me a lot!

She has 3 sensory circuits every day which are (at least in theory!) designed to her sensory profile. I think in reality she goes out with a group of others and they all just do the same circuit but it's better than nothing. She has a movement break before and after eating, which is meant to help her to eat as she otherwise will just forget to eat. She has set times to drink water otherwise she'll forget to drink. And heavy proprioceptive work before she has to do anything like a timed test.

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PinkPetal21 · 17/03/2026 14:01

RavenLaw · 08/03/2026 23:05

She has 3 sensory circuits every day which are (at least in theory!) designed to her sensory profile. I think in reality she goes out with a group of others and they all just do the same circuit but it's better than nothing. She has a movement break before and after eating, which is meant to help her to eat as she otherwise will just forget to eat. She has set times to drink water otherwise she'll forget to drink. And heavy proprioceptive work before she has to do anything like a timed test.

thank you for replying! The sensory circuits sound good, I've never come across this and it's never been suggested to us, but will have a look into this, particularly the proprioceptive stuff as I've heard this can really help children who are hyper.

PinkPetal21 · 02/04/2026 12:38

How are things going OP? Did you get anywhere with the GP?

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