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Adult ADHD meds- Need thoughts, opinions, experiences ahead of appointment tomorrow please

54 replies

freckles20 · 05/12/2021 23:10

I have recently been diagnosed with ADHD (primary inattentive with hyperactive traits).

After waiting for 18 months on the NHS for an appointment, I paid to go privately (and saw the same consultant privately that I'd have seen on the NHS Hmm).

Tomorrow I have another meeting with the same psychiatrist to discuss medication.

His report suggested Atomoxetine (Strattera an SNRI) or Guanfacine as an initial suggestion. He also mentioned Vyvanse or Elvanse as a possibility.

I'm aware that the first two are non stimulants, and the second two are stimulants.

I am supposed to have done some research but I'm a bit overwhelmed by it all.

I already take sertraline which is and SSRI. If possible I would like to keep taking it and I'm unclear if that's ok with the first two options.

I appreciate that everyone is different, and that I need to listen to his advice. But I'm mindful that every appt. is very expensive and for each prescription I have to pay a prescribing charge and also pay for the medicine myself.

Once (or if), we settle on a medication and a dose the consultant can pass me back to the NHS and my GP will prescribe. But the longer it takes and the more options we try the more skint I'll become!

I would love some thoughts from other people with adhd- especially wrt any medications that did or didn't work for you, or anything else that maybe I should know.

ATM the symptoms that make life must difficult for me are horrendous procrastination, lack of motivation, brain fog, disorganisation, forgetfulness, short term memory loss. My brain has a thousand tabs open and I am chaos personified!

I have had no issues with substance abuse, I don't drink alcohol and am in generally good health. I had bloods, an ECG, BP and heart health check and all was fine. I am in my mid 40s.

I initially didn't like the thought of stimulants but having heard how much difference they make to some people I feel more keen to try than. I did previously. But then I worry that I'm expecting too much.....

Any thoughts would be very gratefully received.

OP posts:
MissyCooperismyShero · 25/04/2022 14:43

I don't know what job you do op, presumably a 'normal' one where this wouldn't be a problem, but do be aware you cannot take adhd medication in certain jobs. DS is in the Army and they are not allowed, also certain civilians working alongside them in postings. So functioning without medication even when diagnosed is the reality for many.

BarrowInFurnessRailwayStation · 25/04/2022 15:52

I couldn't take the methylphenidate due to side effects and couldn't afford the atomoxetine that was prescribed instead. I'm on an SSRI and take a variety of nootropic supplements which are helping. I still can't talk to people or ever return to my career though following burnout.

Crispsmakemehappy · 20/10/2022 20:37

scarpa · 06/12/2021 00:59

I take Concerta XL, an extended release stimulant.

I was worried about starting stimulants as I'm overweight (thanks, binge eating that was probably dopamine seeking due to ADHD and I didn't know til I was 28...!). I thought I was already putting my heart at risk.

My consultant has been super careful to check my blood pressure and heart rate regularly, I've had no issues or side effects to concern me, and meds have dramatically changed my life. When I was first diagnosed a few years back, I didn't want to try medication. Throw in a covid related breakdown and a complete removal of all my routine and coping mechanisms and I decided I had to try... and wow.

It has been transformative and the only downside for me has been that days when I forget to take them show me how hard everything has been for so long and how it didn't need to be (and on those days the symptoms feel 'worse' than they used to, although I'm fairly sure it's just the contrast).

It's much more subtle than I was expecting. I thought 45 minutes after I'd taken them a lightbulb would ping on over my head and I'd be focused and motivated and energised - it's not necessarily like that. But a few days into taking them, I realised I'd gone through my to do list without the agonising guilt ridden procrastination, or having gone to bake something or got stuck in a mumsnet scroll hole. Then I found redirecting back to task after distractions was easier. I still need to trick/jolt myself into starting things and I still lose my fucking car keys 15 times a week and I still struggle with symptoms in certain scenarios, but I don't feel like I'm doing life on hard mode all the time anymore. And I'm no longer on the SSRI I was on for a decade - turns out I'm not depressed when I'm not constantly furious and frustrated at my inability to function Smile

I've never tried nonstimulants so I can't advise on that, but I hope you find something that works for you!

@scarpa hey. Intrigued reading ur story, I have only began thinking I’ve adhd as past few months. Waiting list is at least another year to be seen. I can’t afford private so I am going to have to wait. I also think I’ve serious anxiety and depression. Been trying AD’s as few months and can’t find one that suits. Now thinking maybe adhd meds would be better if doctor would
give me them without a proper diagnosis? My brain and overthinking never stops. I’m exhausted

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antipodeancanary · 20/10/2022 21:17

MissyCooperismyShero · 25/04/2022 14:43

I don't know what job you do op, presumably a 'normal' one where this wouldn't be a problem, but do be aware you cannot take adhd medication in certain jobs. DS is in the Army and they are not allowed, also certain civilians working alongside them in postings. So functioning without medication even when diagnosed is the reality for many.

Yeah this. DS has the same issues. No idea what other jobs make this stipulation, but he says there are quite a few.

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