Not sure if you see this very often.
My grandson, who has epilepsy, GDD and significant speech delay, (also waiting for grommets and tonsillectomy) had a significant seizure last week which left him very confused and with one sided weakness. He managed to stumble downstairs afterwards and was in a very poor state. The seizure wasn't witnessed but he was behaving as he does in a postictal state. The confusion and weakness lasted for a few days and resolved. His speech regressed.
He was just up to stringing three to four words together. These could only be understood by close family as the words didn't sound correctly pronounced. E.g. 'Nana bi tru ban me ed' - nana the big truck which my brother just threw at me banged me on the head.
He now has no speech at all apart from screeching 'mama' - he pronounced it mumma before the seizure. He blurts out sounds now which have no resemblance to words. He gets very upset/frustrated that no one has a clue as to what he's saying. He shouts these sounds at full volume - no control over volume.
He missed a day of nursery and when he went back the teacher said that he had stayed inside all day and wanted to sit in her knee. He had not attempted to speak but seemed to enjoy looking at books. He would normally play outside all day in the mud kitchen and come home 'caked' in drying mud.
His mum reported the seizure and its effects to the epilepsy nurse who, several days later, rang back to say that she'd spoken to the consultant and they wanted to see him today. They have just said that regression can happen.
We don't know whether he thinks he is speaking the same as before that seizure but he certainly does not sound the same. The difference is very concerning.
He saw a speech therapist six months ago who was convinced that he was simply delayed and 'it will come eventually'. He was pointing to objects in books during the appointment but not saying the words. He said 'woof', 'qua' (quack) and 'ba bye' to the speech therapist during the appointment. This does not appear to be the case now as what little vocabulary he did develop afterwards is completely gone.
Do we wait until his next review appointment comes through or is there a way to get in contact with the speech therapist and expedite another appointment? Will he be able to recover what he had?
He is three years and seven months. He is having increases on his second epilepsy drug at the same time as decreases on his first epilepsy drug. They don't appear to have worked up to now.
He is eating/drinking/playing/following instructions as normal. He still waves goodbye but blurts out a random sound whereas it was a clear 'ba bye' before.
Hopefully this is not permanent?
And never happens again?
It's just as if he had a 'brain storm' and wiped a chunk of memory.
My daughter said that the consultant didn't appear concerned.