I've had a double lung transplant.

[Justalittlebitmore]

I had my transplant nearly 4 years ago now. It was a physical and emotional rollercoaster but I will be eternally grateful to my donor and get family.

Ask me anything!

@HollyandJingles
I'm sorry, it is a nasty illness. There are so many new drugs coming out now and loads of research going into gene therapy and modulators. I hope she can benefit from them. I know some people's lives have been transformed. Wishing you and her the best!

No questions, just super glad and happy for you that you got a second chance at life ❤️ a family friend passed away from CF despite receiving one new lung, I think it was the second lung that deteriorated too much for him to have another op.

What a great thread! Nothing to say ,other than all the best OP 💕

Wow amazing. Made me feel super grateful and a bit stupid for taking my lungs for granted. I've been meaning to quit smoking, and now I will OP.

I feel like a bit of an idiot or be damaging my lungs when you've been through that.

Amazing. Nothing to ask but wishing you
all the best.

I saw one of the contestants on Married at First Sight Australia was having great success with a new drug. Hopefully advances are being made every day with medications.

you are amazing. The whole operation is fascinating and I just wanted to wish you all the very best. Did you have tons of stitches?

@3luckystars
They did something called a clamshell incision. They made an incision under each breast, like a boob job but I think they reach a little further along to the side. They were dissolvable stitches and healed really quickly considering. I've just been left with 2 silvery white lines. The four chest trains have left larger scars but again, healed quickly.

Congratulations on your new lungs! I worked with someone who had a heart transplant 27 years ago now. His surgery meant he had to change career and had to shield during covid but he's healthy and been to the transplant games and all sorts.

Can I ask how long were you waiting on the list before your transplant?
And how much notice did you get that it was happening? Did you have to have a bag packed incase the call came?

That's good news!

@Justalittlebitmore that's amazing though that you can get more time .

Did you do genetic testing on your babies in utero . I believe CF is hereditary or at least has genetic links .

Gosh - reading this thread made me well up! Op, you and your donor are amazing and I'm so glad medical advances have given you many more years with your little one. What a wonderful thread, I'm signed up to donate and this makes me very glad I am!