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AMA

I suffer with misophonia - ask me anything

42 replies

AlwaysBloodyWorrying · 04/11/2022 16:03

Fire away... but do it quietly 🤫

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AlwaysBloodyWorrying · 04/11/2022 16:42

BeyondMyWits · 04/11/2022 16:40

I also suffer. My worst trigger is a "clicky " pen. I changed all the bic clicky pens at work for ordinary ones just so that I didn't spend hours anticipating people clicking, let alone listening to it.

Do you find that anticipating a noise can be as stressful as actually hearing it ?

Yes. Like waiting for the axe to fall.

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Eyesopenwideawake · 04/11/2022 16:52

AlwaysBloodyWorrying · 04/11/2022 16:35

Nope. But hypnosis kind of freaks me out.

It tends to have that effect! 😂You can do "no trance" hypnosis which is much more like a talking therapy, except the talking is with the subconscious, while you're awake and aware throughout. Have a look at my AMA 😊

parrotonmyshoulder · 04/11/2022 17:03

Have you found any way to manage this without making the rest of your family walk on eggshells or feel like they are gross/ horrible? DH has this and it makes mealtimes and general family activity quite unpleasant for everyone else. Yes, he can get up and leave, but that makes the children feel they’ve done something wrong. It’s awful for them, and for me trying to protect them.

Lapland123 · 04/11/2022 17:07

Reading with interest as only heard of this recently and totally have it and my youngest also seems to. Interested in solutions though it doesn’t seem there are any, bar staying away from others when they are eating/ drinking/ snivelling!!

AlwaysBloodyWorrying · 04/11/2022 17:19

parrotonmyshoulder · 04/11/2022 17:03

Have you found any way to manage this without making the rest of your family walk on eggshells or feel like they are gross/ horrible? DH has this and it makes mealtimes and general family activity quite unpleasant for everyone else. Yes, he can get up and leave, but that makes the children feel they’ve done something wrong. It’s awful for them, and for me trying to protect them.

I only have a small family so I only really spend time with my parents, who I can really be myself with. I have had several massive arguments with my Dad but we've compromised and they know it's a real issue for me. So he doesn't tut (massive trigger) for example... and I try not to swear in front of him. My friends know how much I struggle but to be honest when we are together we don't eat... we just drink! So it's not a big thing. All their kids find it hilarious though and they regularly start eating apples at me... but ironically this doesn't really bother me! It's when they don't know they're doing it. One time in a room where there was music on and everyone was talking my best friend bit into an apple. We were on opposite sides of the room but I STILL heard it and immediately glared at her. She and my other mate burst out laughing waiting to see if I'd notice!

OP posts:
AlwaysBloodyWorrying · 04/11/2022 17:20

Lapland123 · 04/11/2022 17:07

Reading with interest as only heard of this recently and totally have it and my youngest also seems to. Interested in solutions though it doesn’t seem there are any, bar staying away from others when they are eating/ drinking/ snivelling!!

In my opinion there is no solution to this other than trying to remove yourself from the situation.

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Kindofcrunchy · 04/11/2022 17:24

Jeez I just looked this up. I did not know there was an actual name for not being able to cope with the sound of my husband eating, it makes me nauseous, anxious and stressed! I have to block my ears if he's eating around me. And I thought i was just a grumpy bitch 😅

AlwaysBloodyWorrying · 04/11/2022 17:28

I remember being in Scotland when I was 17 staying with a family and the Mother was a very sloppy eater. I remember finding it funny and thinking bloody hell that's gross, but it didn't massively bother me and certainly didn't make me not want to join them. So I didn't always have this... if it was now I'd be physically unable to stay in the room.

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HaggisBurger · 04/11/2022 17:56

erikbloodaxe · 04/11/2022 16:41

I have it, my DS has it and so does my sister.

Mouth noises, moist noises, mouth breathing....... makes me want to cry or punch the offender.

It's bloody awful because once you pick up on the sound it's all you can focus on and it takes over everything.

Me too. Plus my sis. Self diagnosed. But when you know you know.

my youngest is a knuckle cracker. On god. I hate it.

AlwaysBloodyWorrying · 04/11/2022 18:28

HaggisBurger · 04/11/2022 17:56

Me too. Plus my sis. Self diagnosed. But when you know you know.

my youngest is a knuckle cracker. On god. I hate it.

It's really, really horrible to live with. I had a stupid neighbour who adopted a massive working dog and left it in a cage ALL DAY barking and yelping. It made me hate being in my own lovely home. When I saw the removal van I nearly came in my pants 😃

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HaggisBurger · 04/11/2022 18:31

AlwaysBloodyWorrying · 04/11/2022 18:28

It's really, really horrible to live with. I had a stupid neighbour who adopted a massive working dog and left it in a cage ALL DAY barking and yelping. It made me hate being in my own lovely home. When I saw the removal van I nearly came in my pants 😃

Got I can only imagine. Yes I am always in awe of people who are blissfully unaware of noise that I find unbearable

GreenWasTheColour · 04/11/2022 18:35

I have this and I hate it. My worst nightmare is someone chewing gum, it's so grotesque and goes on and on and on. I also cannot bear the sound of other people's music - in the garden in summer, through the walls or worst of all off people's phones out in public. It makes me want to claw my own skin off.

Music at the dinner table helps (I like our own music! If I have control of the volume switch!). If someone is eating something really noisy like a juicy orange or cereal, I would have to find an excuse to leave the room.

I hate having this, I wish I could make it go away and it caused me enormous distress in my teens particularly. As an adult with more control over my circumstances, I have got better at handling it but sometimes it can tip me over the edge still.

TheOtherWoman2 · 04/11/2022 18:40

there's no actual diagnosis here you're making a mockery of those truly suffering with phobias

AlwaysBloodyWorrying · 04/11/2022 18:48

TheOtherWoman2 · 04/11/2022 18:40

there's no actual diagnosis here you're making a mockery of those truly suffering with phobias

Oh Foxtrot Oscar! 🙄 There's always one

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17CherryTreeLane · 04/11/2022 19:02

Oh, I can't stand the sound of anyone eating, but just thought everyone felt like that. Do they not then?

BeyondMyWits · 04/11/2022 21:54

I'm fine with eating sounds. But I also have misophonia.

The main diagnostic "tell" for misophonia, no matter what the trigger, is the rage.

Every sufferer gets "the rage". You have to walk away or you will explode, scream or cry, or hyperventilate or any other action that releases the rage.

Misophonia can get progressively worse, with it building to a point where you do not even need the actual noise... if you see a socked foot near a coffee table you get anxious. If someone picks up a click-top pen, or a cotton wool ball, you leave the room, not because you can hear the noise, but because you fear that you might.

PuggyMum · 04/11/2022 22:13

Pretty much everything you've said OP I could have written.

My friends Dh and son slurp their tea in a way that makes me murderous. My fil eating soup is even worse. Apples on trains should be illegal.

When people talk at the cinema or a show I just can't zone it out and have to give the death stare.

I also agree that when people do it on purpose it's not the same.

I like all the nice sounds you mention too!

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