So sorry to hear you are going through this and that your child will need lifelong care also for your son because you are right siblings don’t have a normal childhood.
Sad that mistake are still happening and agree about cover ups and lies.
My eldest had a difficult birth. I wasn’t listened too. List briefly - monitor for contractions not plugged in so not recording. I was told I wasn’t having contractions. Time - from when mistake rectified. So labour hours longer than what they said. Left in labour too long. Baby was stuck. Saved by Consultant who returned to work after 24 hrs off to find I was still in labour. He took doctor out and shouted at her. Baby’s heart failed while he examined me and they ran down the corridor to theatre. Baby born by section. 36 1/2 hours!CS cut large ragged cut from belly button to pubes this was described at another hospital as a bloody mess. I had an infection for four months afterwards and it was stitched to tight so is twisted and still itches and bothers me forty years later. Baby was born dead and resuscitated Apgar score 0,2,4 and in ScUba unit for a couple of weeks. Birth weight dropped by 2 lbs. I didn’t see him till he was six days old and was wheeled into Scuba feeling like that could give me any baby and I wouldn’t know it was mine. After care not great. Husband not informed I had nearly died and I wasn’t properly conscious for three to four days. When we left hospital no one talked through what had happened and never told me prospects for baby. I had a letter 6 months later and GP discovered that I had no idea about it and had to break it to me that baby might be brain damaged. Baby under Peds for 18mths. At 2 1/2 GP told me son looking healthy and medical staff didn’t expect him to live - down as “ failure to thrive”. We were lucky he lived and has had no problems other than asthma which wasn’t recognised until he was 6 despite me saying and in family. Breathing problems from birth.
Baby 3 same hospital/ no choice. Went into labour a couple of weeks early. 4 centimetres dilated kept over long weekend then allowed to mum’s nearby then allowed home. Continual start stop contractions. Baby arrived three weeks later. Baby small 5:6 lbs and when placenta delivered described as gritty as it was failing.
Baby 4 different hospital and 14 years after DS1Problems in pregnancy, local midwife 35 years sent me in high BP three times, taken in on day before due date went into labour spontaneously.during last stage I complained and wanted doctor (on call) told them something was wrong. BP high. Apparently ( DH ) I demanded doctor as something wrong, baby delivered. I couldn’t hold her as weak told like I had a steel band pressing on my head and wanted doctor they ignored me and I had a fit and nearly died. Doctor called. Had to stay in delivery room for 24 hrs. Consultant was raging. I know this because friend was on next day. Kept for five days, no visitors allowed for four.
Sorry for long post but I wanted to support you on the fact that mistakes are made, mums aren’t always listened to and cover ups do occur. I was lucky with DS1 and lucky I had fit after birth and not just before or baby would have died.
You expect things to improve but mistakes are still made. People are only human but if they are mistakes that shouldn’t be made then of course the family need money to provide for the care of that child. I hope it doesn’t drag on too long for you and you get the care.
For those disagreeing... Walk a day in this mum’s shoes.