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I had pre-eclampsia and went on to develop HELLP. I had no symptoms of PE it was picked up during a midwife appointment as I had protein in my urine. My blood pressure was fine so she wasn't too concerned but sent me up to the hospital the following morning as a pre caution. At the hospital I was sent home as my blood pressure and trace was normal. They told me there was no way I had PE due to lack of high BP but within about 40 minutes I was called to go back in and induced as my blood results showed I did have it. By the time of diagnosis and being took to the labour ward (about 15 minutes) my full body had swollen and my blood pressure was sky high and it went down hill from there with me developing HELLP. I have a few questions about this.
I had protein in my urine from around 34 weeks is it likely I started developing PE from then?
Have you ever saw this before PE with a normal blood pressure? Every midwife and doctor that spoke to me was completely baffled and had never heard of this happening before
The appointment I had with my MW that day was an extra one she gave me due to my anxiety I wasn't actually scheduled to be seen until the following week at 38 weeks. At the hospital I was told my sudden symptoms of PE were likely brought on by the stress after being diagnosed and told I had to be induced and that if I had been at home none the wiser I wouldn't have developed my symptoms as quickly and things may not have turned out well for me. Do you agree with this?
How serious and common actually is HELLP in your opinion ? I still can't get my head round the fact this happened to me and it's hard to believe that I was as dangerously ill as I was told I was. I've read a lot on the internet about it and the likelihood of developing it is so low and outcome not so great. I just can't quite believe that it's as uncommon and dangerous as it's made out to be. I'm not disputing it I think I'm in denial about it.
Sorry I know it's a long post and you probably don't have the answer to the first two questions as no one can know for definite but your opinion on it would be really appreciated. It's all the questions I didn't ask in my debrief and have wondered about ever since.
Thank you for taking the time to read my post I think the world of midwives after that birthflowers
Hi, HELLP is very rare and very serious. We see it very infrequently and treat it as an emergency.
It sounds like you had what we call ‘fulminating pre eclampsia’ which just means that it comes on quickly and aggressively. Again this is quite rare. The normal blood pressure with PET again is really unusual but I have heard of it and It’s mentioned in my annual training updates. I’ve never seen it myself.
Pregnant women shouldn’t have a significant amount of protein in their urine. Sometimes there will be a trace of it due to contamination or infection but any significant amount should be investigated. Possibly this was your first symptom.
I’m not sure about your symptoms being brought on by stress- you had severe PET, your symptoms are related to that. More likely it was coincidental that this is the point at which it ramped up and your body started to struggle. Most likely you would have called up and been diagnosed/treated at this point, but obviously sooner is better so it’s a good thing you were checked when you were.
Unfortunately you are more likely to experience PET/HELLP with a subsequent pregnancy and as such would be watched very closely.