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Feminism: Sex and gender discussions

Fibroids

63 replies

ArabellaScott · 27/03/2023 17:17

I had no idea this was such a big issue.

Apparently fibroids affect 80% of black women, and 70% of white women, by age 50.

'Mr Narendra Pisal, consultant gynaecologist at London Gynaecology, says more awareness needs to be raised.
"I don't think there is much awareness of fibroids, even in the African-Caribbean community," the expert, who has practised gynaecology in London for over 21 years, tells the Mirror.
"I see women and they are often shocked. It does become a taboo, kept a secret, it is a private thing for a lot of women, they won't talk about it.
"The more awareness we increase, the better it will be."
He has called for every woman at the age of 25 to have an ultrasound - which can pick up conditions like fibroids, Endometriosis, and polycystic ovaries.'

https://www.mirror.co.uk/news/health/beverley-knights-battle-fibroids-affects-29542491?int_source=amp_continue_reading&int_medium=amp&int_campaign=continue_reading_button#amp-readmore-target

Beverley Knight's battle with condition that affects 80% of Black women

Fibroids are one of the biggest health concerns for women, an expert says, but little is known about the cause of the condition

https://www.mirror.co.uk/news/health/beverley-knights-battle-fibroids-affects-29542491?int_campaign=continue_reading_button&int_medium=amp&int_source=amp_continue_reading#amp-readmore-target

OP posts:
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Siameasy · 30/03/2023 22:32

I had these. Bled ridiculously heavily and was completely zapped of energy. Oh-I’m anaemic! I thought I was just lazy. At my worst I was taking the stairs on my hands and knees whilst berating myself for having no energy. They shrunk
after I had DD but they caused a “threatened miscarriage” at 14-16w. I was extremely lucky that the bleeding stopped and DD was okay. I know quite a few women with them

NotBuyingThis · 30/03/2023 21:27

@PatatiPatatras
I suspect it's a well kept secret! I'm not sure how many places offer it, we are a modest district general hospital but at least two if the much bigger hospitals in the county don't offer this.
We've a shiny brand new consultant who keeps reminding us that he was doing his GCSEs when we were doing xyz. 
But I'm selling it to him that he train up so we have more than one consultant who can do it as I know the demand is there.

Hope you can find somewhere.

@OldCrone So glad. That's what we like to hear!

And for those who prefer a female gynaecologist I'll just clarify it doesn't involve any vaginal examinations etc. We maintain dignity whilst minimally exposing the groin area on one side for access to the femoral artery.

OldCrone · 29/03/2023 10:47

NotBuyingThis · 28/03/2023 20:51

I work in Interventional Radiology.
One of our radiologists does Uterine artery embolisation for fibroids. We are doing about one case a month.
I can't remember his stats, it's not for everyone - you need to have finished your family for a start - and it doesn't work in every case, but for those for whom it it does the trick it's a lifesaver. One woman saw him in the car park and gave him a massive hug saying how life changing it had been.

Our protocol is women come in and have quite a lot of pre-procedure prep, including lots of iV antibiotics, anti emetics, analgesics and setting up a PCA (patient controlled analgesia). It's done under local anaesthetic (with lots of top up from the PCA obv), accessing the uterine artery via the femoral artery under direct real time X-ray control. The blood supply to the fibroids is blocked off and the fibroid will degenerate over time.

Women go to the main operating theatre recovery initially to make sure there is plenty of pain relief on board then admitted to the gynae ward overnight with plenty of ongoing analgesia.

For those on here with fibroids I really recommend looking into it.

Unfortunately it's not widely available. I live in a big county and I think our unit is the only place offering it for a long way around, women come from quite a long way away sometimes.

https://www.rcog.org.uk/media/gw3f4wzc/23-12-2013rcoggrcruae.pdf

I had this procedure a few years ago. I'd recommend looking into this for anyone with fibroids. It completely fixed my problems with anaemia and flooding.

Dougalskeeper · 29/03/2023 05:47

I was diagnosed with multiple fibroids, my endometrial surface was almost obliterated and my uterus the size of a 5 month pregnancy. I'd put up with the pain and flooding for years. I chose a hysterectomy just to end the issue for once and for all. I was lucky to have female care both gp and gyn consultant so my care was good, even had a phone call from the consultant to inform me the biopsy results were normal.

Boiledbeetle · 29/03/2023 00:25

nilsmousehammer · 28/03/2023 22:05

Yup.

I was losing several days work every month.

Thank God for an endometrial ablation, it was life changing. Had to pay for it though, and I was desperate enough to do it.

I was so disappointed when mine didn't work. By all accounts when it does it is bloody fantastic. And the operation for that is supposed to take about 30/40 minutes. Even with a much longer OP time (3 hours, he was very determined) I felt fine that evening. A bit of discomfort but nothing like even mild period pain.

I would recommend it as the benefits potentially are immense.

Zeugma · 28/03/2023 22:59

There was a thread on MN last year some time about women not receiving adequate - or any - pain relief for gynae procedures. Some of the stories were absolutely shocking. Not sure if I can find it but I’ll have a look.

nilsmousehammer · 28/03/2023 22:05

Yup.

I was losing several days work every month.

Thank God for an endometrial ablation, it was life changing. Had to pay for it though, and I was desperate enough to do it.

PatatiPatatras · 28/03/2023 21:43

@NotBuyingThis thank you! 😊 Why have I never heard of this?

ArabellaScott · 28/03/2023 20:56

Thanks for the info, Notbuyingit.

OP posts:
NotBuyingThis · 28/03/2023 20:51

I work in Interventional Radiology.
One of our radiologists does Uterine artery embolisation for fibroids. We are doing about one case a month.
I can't remember his stats, it's not for everyone - you need to have finished your family for a start - and it doesn't work in every case, but for those for whom it it does the trick it's a lifesaver. One woman saw him in the car park and gave him a massive hug saying how life changing it had been.

Our protocol is women come in and have quite a lot of pre-procedure prep, including lots of iV antibiotics, anti emetics, analgesics and setting up a PCA (patient controlled analgesia). It's done under local anaesthetic (with lots of top up from the PCA obv), accessing the uterine artery via the femoral artery under direct real time X-ray control. The blood supply to the fibroids is blocked off and the fibroid will degenerate over time.

Women go to the main operating theatre recovery initially to make sure there is plenty of pain relief on board then admitted to the gynae ward overnight with plenty of ongoing analgesia.

For those on here with fibroids I really recommend looking into it.

Unfortunately it's not widely available. I live in a big county and I think our unit is the only place offering it for a long way around, women come from quite a long way away sometimes.

https://www.rcog.org.uk/media/gw3f4wzc/23-12-2013rcoggrcruae.pdf

Fibroids
QueenHippolyta · 28/03/2023 17:30

@Naunet and make sure those b*stards give you a strong painkiller when you go home!

QueenHippolyta · 28/03/2023 17:23

Can you get a local anesthetic for your procedure. It's better than a general as general anesthesia is more dangerous

ArabellaScott · 28/03/2023 17:12

Here are a couple:

Review of findings:

'The expansive body of literature in this area clearly suggests that men and women differ in their responses to pain, with increased pain sensitivity and risk for clinical pain commonly being observed among women. Also, differences in responsivity to pharmacological and non-pharmacological pain interventions have been observed'

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3690315/

'Changes in autonomic indicators, to isolate the impact of sex, in response to pain have been measured and indicate that females have greater response to painful stimuli10. Sex-based differences that impact pain perception include the influence of sex hormones on pain-signaling pathways and anatomic differences in the organization of these pathways11.'

https://journals.lww.com/jbjsjournal/fulltext/2020/05201/sex_and_gender_issues_in_pain_management.7.aspx

Sex differences in pain: a brief review of clinical and experimental findings

Recent years have witnessed substantially increased research regarding sex differences in pain. The expansive body of literature in this area clearly suggests that men and women differ in their responses to pain, with increased pain sensitivity and ris...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3690315

OP posts:
ArabellaScott · 28/03/2023 17:09

AmandaHoldensLips · 28/03/2023 15:55

Women are regularly bullied into having procedures without adequate pain relief or anaesthesia. It's fucking outrageous. We have to stand up for ourselves and say NO and insist that we are not subjected to this kind of unacceptable treatment.

It is all done for their convenience and speed of getting us out the door, and it's not right.

I recall reading somewhere that women often also need more pain relief than men. I'll see if I can find the paper/research.

OP posts:
RudsyFarmer · 28/03/2023 16:40

I have a fibroid. We found it when I was pregnant but thankfully it’s caused me no issues.

Naunet · 28/03/2023 16:24

That’s good to know. I’d requested a female doctor/consultant, I’m not sure if that will be possible if I go under, but I can ask - therapy has certainly made me more comfortable with advocating for myself in these situations, and from the sounds off it, it’s a skill all women need when it comes to our healthcare.

Anyway, I don’t want to derail this thread with my own issues - sorry OP 😄

Tricyrtis2022 · 28/03/2023 16:18

the day units tend to be really nice on the gynae ones

The staff one the day surgery ward I was on were really lovely and it made a huge difference to the whole thing. I tend to be somewhat - okay, very - manic after a GA and tried to discharge myself before the paper work was done and while they quite rightly wouldn't let me do that, they were very friendly and jokey about it.

Boiledbeetle · 28/03/2023 16:07

@Naunet also, I know your concerned about going under, but you'll probably find that the staff in the day units tend to be really nice on the gynae ones. they seem more aware than most that their patients might be stressed not just because of the OP.

By the time it comes round for your turn to go under you'll have relaxed a bit. They tend to be rather upbeat I've found.

Boiledbeetle · 28/03/2023 16:00

Naunet · 28/03/2023 15:56

I think you’re right - I don’t like the thought of being put under because for me, the vulnerability is my biggest “trigger” but reading what you just wrote, combined with the fact that when I went for the scan to diagnose the fibroid, despite the consultant and assistant being absolutely lovely and doing everything right, I still felt traumatised for about 2 weeks afterwards and couldn’t sleep.

Thank you so much for sharing what happened to you, its absolutely awful and it’s made my mind up on how to proceed.

They admitted to me that had they actually looked properly at my notes rather than it just being scan says this she needs that and realised which patient I was they'd have never put me through the trauma of it awake.

It's purely to save money, it's nothing to do with women not finding it painful. It's cheaper than doing it under general anaesthetic.

Boiledbeetle · 28/03/2023 15:56

I honestly was shocked at how unsurprised the staff were at the level of pain it caused.

Once the horrible woman who was attempting the procedure had left the room in a huff the two nurses who each were holding a hand trying to calm me down both admitted they would never have it done unless under general anaesthetic.

Now why would they have reached that conclusion if this was an acceptable way to treat women.

Naunet · 28/03/2023 15:56

Boiledbeetle · 28/03/2023 15:50

Then definitely no. You cannot do this awake. It was the worst flashback to my childhood i have ever experienced.

I think you’re right - I don’t like the thought of being put under because for me, the vulnerability is my biggest “trigger” but reading what you just wrote, combined with the fact that when I went for the scan to diagnose the fibroid, despite the consultant and assistant being absolutely lovely and doing everything right, I still felt traumatised for about 2 weeks afterwards and couldn’t sleep.

Thank you so much for sharing what happened to you, its absolutely awful and it’s made my mind up on how to proceed.

AmandaHoldensLips · 28/03/2023 15:55

Women are regularly bullied into having procedures without adequate pain relief or anaesthesia. It's fucking outrageous. We have to stand up for ourselves and say NO and insist that we are not subjected to this kind of unacceptable treatment.

It is all done for their convenience and speed of getting us out the door, and it's not right.

Naunet · 28/03/2023 15:52

Boiledbeetle · 28/03/2023 15:50

They tried to do a hysteroscopic biopsy on my cervix. You may want to take a couple of painkillers said the leaflet.

I take a high level of Oxycontin every day. The phone call to the consultants Secretary the next day I was still so distraught and in that much pain that I had the powers that be on the phone within less than an hour and a general anaesthetic version booked in for as soon as they could slot me on the end of a list. (Days not months or anything).

I have very rarely in my life felt such pain. They tried giving me a stress ball to squeeze first. Fuck me!, what's the gas and air thing?, That was next. But I felt like I wanted to die on the spot.

I couldn't stop crying for hours. I felt utterly violated and tricked.

So I would never want another woman to experience that if there is an unconscious version available.

Oh my god, that sounds utterly horrific. I’m so sorry you were put through that

Boiledbeetle · 28/03/2023 15:50

Naunet · 28/03/2023 15:48

Oh wow, I wasn’t expecting those replies, I think I just thought I had to get on with it and it was normal!! I’m going to phone them now and tell them I want to be put under - thank you so much for making me aware of this!

I was sexually abused as a child, so the whole thing is already deeply traumatic for me - it took me two years of therapy to even go to see a doctor about the issues I’d been having, so I’ve just been so focused on trying to get myself through it, but I have been really concerned that if it was painful, it could set me back, so I won’t take that risk now.

Then definitely no. You cannot do this awake. It was the worst flashback to my childhood i have ever experienced.

Boiledbeetle · 28/03/2023 15:50

They tried to do a hysteroscopic biopsy on my cervix. You may want to take a couple of painkillers said the leaflet.

I take a high level of Oxycontin every day. The phone call to the consultants Secretary the next day I was still so distraught and in that much pain that I had the powers that be on the phone within less than an hour and a general anaesthetic version booked in for as soon as they could slot me on the end of a list. (Days not months or anything).

I have very rarely in my life felt such pain. They tried giving me a stress ball to squeeze first. Fuck me!, what's the gas and air thing?, That was next. But I felt like I wanted to die on the spot.

I couldn't stop crying for hours. I felt utterly violated and tricked.

So I would never want another woman to experience that if there is an unconscious version available.