Thank you to the link to the Jane Fae article. I hope someone has archived that. Fae seems to view themselves as having some kind of informed sage perspective on the safety and outcomes of modern day invasive medicalised child transition in the NHS over the last few years. So what’s Fae’s experience of going through GIDS services as a child or parent? Or what is Fae’s professional GIDS expertise giving Fae the authority to comment on this?
No? Nothing?
Yet Fae feels entitled to dismiss Professor Hilary Cass, a paediatrician at the height of her profession, and former President of the Royal College of Paediatrics and Child Health, as some kind of unethical ‘cispert’. It would be funny, if it wasn’t so ignorant and threatening to medical and scientific understanding that could actually help children’s health and welfare or could help to avoid any serious medical mistreatment of children.
I think anyone could tell Fae what’s actually seriously unethical here- that would be the long years of experimenting on vulnerable kids subject to a vast amount of pressure, leaving them with permanent physical and mental changes and keeping them permanently in their child bodies with a host of side effects and known health problems, and without the benefit of natural physical and mental adult maturation. With no research being done to say whether it’s safe or effective at helping them at all. It’s almost as though they were a group whose outcomes nobody cared about. And that’s the real scandal.
Most tellingly, while Fae is trying to whip up feeling against the Health Secretary (who has finally acted responsibly in this issue whereas previous government ministers have not), and while encouraging readers to take action against individual researchers and other people who may have authorised access to children’s or adult’s health records as part of doing this research, Fae fails to explain why doing this research is actually a problem. Fae just doesn’t want this research done.
Fae clearly has zero understanding of the extremely strict rules concerning use of data in medical research whether it belongs to an adult or a child. So strict in the case of GRC holders that government has to bring in legislation to allow this. Fae actively promoting an anti-research position and calling on others to follow tells us all we need to know.
And once again, shame on the original legislators who passed the hugely ill-thought-out GRA. I didn’t realise that its requirements for secrecy must have been a block to medical research invitations and social research follow up of people who have had GRCs ever since. That is outrageous and would have been actually something to write to MPs about to get it changed. No group should be given untested medical treatment with no research or follow up.
It’s great that this has been overturned and research can now take place. But does that change permit researchers to apply to use GRC data indefinitely? Or is it only applicable to those doing specific research to inform the Cass report?